I Have Lung Cancer

a reply to: Dinnedwiththedevil

Thank you for your kind words! Nice to meet another cancer survivor. About 5 and a half years for me and I had the chemo and radiation. I know of people who have had traditional treatments and are still going strong after 20 years and more.

I had always said that if I ever got cancer, I would choose a natural route, but once you are sitting in that Doctor's office and are being told you have two kinds of breast cancer in the same breast and one was aggressive, you change your mind really fast. I was lucky and got away with just a lumpectomy and had some lymph nodes removed.

So... I can relate to what you said above. People are so fearful of chemo and radiation and automatically think death and that is just wrong and fills others with dread and makes them lose hope for something that could very well save their lives.

a reply to: Night Star


Being an alternative news fan for the last 12 years ( I slowly am awakening) I refused the traditional treatment after being blue lighted to a specialist hospital. They wanted to start IV Chemo immediately as I got out the ambulance and I had a huge argument with three Drs throwing them all the nonsense I had read forever on various websites. I asked them all the questions ie would you let your children have Chemo if they were sick like me? 100% of the professionals I asked said that they would rather their children didn't die so yes would with out question give the only treatment method that was known to work. It was when a kind soul explained that I would die either from the tumour in my lymph gland in my neck as it would restrict my airways or the way my cancer travels is up ward Testis, Lymph system, Lung to Brain that is the common trail Testicular cancer follows (Lance Armstrong style) and that lung cancer would kill me within weeks. I put life in the hands of the gods flipped a coin and went for it. The point I keep trying to make is how many people refuse the treatment globally like I did and get let go because they are so adamant that the treatment will kill them? I am betting thousands of people have died because of reading things on the internet and deciding to go the natural way.


I know someone somewhere probably makes a killing out of the medicine sales but its not the Scientists and Drs. We have NHS meaning it does not make it expensive for me but I was fortunate enough to see price lists under freedom of information act and its safe to say I have had my share of our national insurance.... I am the million pound man

I have read your posts and they give everyone hope Nightstar I am sorry for your experience but hope that like me its made you the person you are today, have you been completely clear of it for five years? I feel better for experiencing this whole journey, meeting minds like yours and Kalis and the many others I have met on this bizarre trip. I feel I know more about how life works and that it is precious and that it is all about love and positivity.

No one wakes up everyday thinking today could be my last day on earth but the truth is everyone could be dead by the close of said day. Car accident, Heart attack, Fatal Stabbing, accidents in general all can take ones life away in an instance and those people would never experience the overwhelming sadness and regret that if given time to think about your impending death you fully think through. It has made me a better person and for that I am truly thankful.

My only issue with Cancer is how many people from babies through to mature adults are getting diagnosed. I sincerely think that we have radiation in our systems from eating food that is contaminated from our modern living. Pollution also does not help. I have also heard (no proof) that anyone that goes to a Drs and has a blood test will show signs of cancer and that its a time bomb waiting to go off in all of us.

I remember a decade ago that if someone got Cancer it really was the end of the world for all the family and friends of said person. It was also big news as not many people at the time were getting it. Fast forward ten years and even in these tiny redneck villages around me there are literally hundreds of people effected by Cancer. We can no longer prevent cancer its not possible. The only hope is curing it which at present means the treatments that everyone so bad mouths.

If one person read our posts and decided that the treatment on offer was actually better than IV vit C, Kale, Carrots and spinach etc or that people do get through the nasty side of the illness and treatment, or they thought long and hard about the next step and that Kali or Nightstars information has helped them in some way go for it instead of writing these treatments off and dying then I would be proud and maybe that's what my journey was all about?

Everything happens for a reason.

Thanks Nightstar and I love your pictures on this thread.

I recognize your ID, though I don't recall interacting with you much. Regardless, I wish you the best. I lost my mother to lung cancer and my father to pancreatic cancer, so I have some idea of what you and, especially, your family are going through. Best wishes.

a reply to: Dinnedwiththedevil

That was very inspiring! Yes I am completely free of cancer, though I guess it's only normal to be afraid sometimes that it could return. I don't dwell on it though. I live my life with lots of love and compassion and won't have regrets when I do die when that time finally arrives. Hopefully when I am much older. Glad you enjoyed the pics. Sometimes I don't have a lot to say, but I like to at least leave a picture to make someone smile and let them know I'm thinking of them.

Kali Hun, how are things going for you?

originally posted by: Kali74
a reply to: Skid Mark

Doing okay, thanks

Halfway through my second round of chemo pills (1 week on 2 weeks off). I feel like it's working as well as gaining faith that it won't make me bald again. I've been pretty active in the political threads, which I assume means I'm feeling more secure and more like myself and I need to start going for walks again.

Sending oodles of good mojo your way!

originally posted by: Kali74
I'm not really sure why I'm posting this, I was very superstitious before about letting so many people that dislike me know that I'm fighting for my life. Pretty silly, I know... this isn't for them anyway, though I wish them all well in their own personal lives. I just feel like it this time, I guess.

Also, I appreciate the place of kindness it comes from but please spare me the miracle cures and chemo kills stuff, I trust science. Cancer is a bitch of a disease and it mutates so rapidly (depending on the type) that it eventually outpaces medical ability to treat. That's changing thanks to science and with a massive amount of luck I will survive long enough for my disease to become manageable versus terminal.

I'm 42 and diagnosed in Feb 2016, I went through the big bad ass chemo combo as well as chest radiation, preventative brain radiation and the cancer was defeated however, lung cancer and especially the type I have (Small Cell Lung Carcinoma) is super aggressive and floats around through your blood stream making it highly probable for a come back.

Last week I was given the bad news that I have new growth in my right lung and a fairly large tumor in my abdomen. I'm shattered to be honest, I really was trying to believe that I would be one of the very few to have this type of cancer, not come back ever. The fact that it's also in a secondary location now also means my disease has progressed to the next stage. With small cell they don't do stage I-IV, there's limited stage (which I was) and extended stage (which I am now).

Tomorrow I will have a brain MRI to make sure there's no spots there and Tuesday I will have a needle biopsy for the abdominal tumor as they weren't able to get a good sample from my original tumor. This will help identify the gene expression of my cancer and will allow my medical team to tailor my chemo regimen as well as identify what types if any immunotherapies I'm a candidate for.

These tests will also determine my eligibility for a trial combo of an oral chemo (which hopefully won't take my hair again), this is a phase three trial (science geeks will get it) that has shown promise to become a first line treatment with SCLC due to it's ability to damage/destroy the cancer cells ability to repair it's DNA. Of course, this depends on my insurance approving the treatment as well. I'm now on free healthcare due to my inability to work.

Now for the PSA part... Quit smoking! Life is short, live well. 99% of our grievances in life are petty and you feel like a dumbass when you're suddenly faced with the endgame. Regret can make you choke, several times a day... everyday. Miracles happen. Positive thinking is good for you. Science is good, support it. God is good too. So I would appreciate any prayers and positive thinking. Hug the people you love and tell them you love them. The thought of leaving my son, my mom, brother and dad is unbearable, ultimately if this gets me, I get to be at peace... they will have to live with the pain.

I am so sorry to hear about your illness. My thoughts and prayers are with you.

a reply to: Night Star

Thanks, doing okay. Tired. Insomnia. I just lost someone that was like a second Mom to me to Lung Cancer... she was diagnosed after I was. I feel like I fell into some cancer nightmare. There's always bumps in the road, it will pass and I'll be my usual chipper, feisty self again.

This thread helps. Thank you all.

a reply to: Kali74


Oh Hun, I'm sorry you lost someone so special. You seem like a very strong woman, but even strong woman need people to share their thoughts and feeling with, like you are doing here in this thread. Sometimes it's better to let things out than to keep things bottled up inside. I'm glad that you have made this thread and have allowed us to stand by your side on this journey. Hugs!

Kali74, just catching up on your thread here, dealing with some issues myself, minor in comparison to yours, insomnia and pain are my constant companions right now, still waiting for the all clear on pathology results. Don't know if I'll have any further treatments. I find you to be a very rare, strong, inspiring and beautiful soul. I wish you all the best and I'm absolutely pulling for you, and you're in my thoughts and prayers.

a reply to: ausername

I find you to be a very rare, strong, inspiring and beautiful soul.

All true

Especially the beautiful soul part

How heartbreaking to lose someone so close to you.

I am so sorry to hear about the insomnia issues (can they give you anything for it?) Insomnia can exhaust you and when you fall into a sleep it's just not a restful one.

One possibly silly piece of advice that stood me in good in times of trouble was to find an uplifting movie or book and lose myself in it. I don't know if that helps you, but I offer it for what it's worth. For me, that'd be binge-watching Dr. Who.

originally posted by: Kali74
I Have Lung Cancer.

And then something worse happened...

Thanks all.

This thread is so comforting to me.

I'm very glad you're still here FWIW. You are an inspiration in how you're coping with it.

Peace.

a reply to: AugustusMasonicus

That's a good read right thar.

a reply to: Kali74

Hilarious stuff! What clever answers!

a reply to: Byrd

You're on my list too Byrd.

Well first sorry to hear the news but glad to see you are a trooper in spirit. For the record I also enjoy your post and they often make me cheer inside because you bring common sense into threads as well as contrasting perspective that so often gets ignored or shunned. You seem like a strong individual and I hope you get through all of this.
It is also comforting to see so many members that are supportive of other members that post personal challenges and situations. It reminds me of the good in our tribe and outshines the doom-n-gloom and animosity.


I do wish you well and hope you maintain strength in this battle.

a reply to: waftist

Thank you that's a beautiful post, put a smile on my face

originally posted by: Byrd
a reply to: Kali74

Hilarious stuff! What clever answers!

Full disclosure. . . Donna Brazile gave her the answers.

No lie! It's my alternate truth!