posted on May, 26 2017 @ 09:07 AM
Thanks for your post, Kali, as it gives me insight into what a family member of mine might be going through. So by sharing where you are right now,
you have helped someone else!
2 months ago my brother-in-law was found to have grade 4 glioblastoma multiforme- a terrible and aggressive brain cancer. The swelling of his brain
from the tumor got so bad that it shut down his vital systems one night, and he lost consciousness and stopped breathing.
After intibation and an emergency craniotomy, the neurosurgeon told us he could only get some of the tumor. He said my brother-in-law probably
wouldn't even wake up.
He did, a week later, but with many issues. He can only see out of one eye, and the vision in that eye must be poor because he doesn't seem to have
any depth perception. He can't walk, control his bathroom functions, or speak clearly.
After another craniotomy- we found a neurosurgeon who will operate on "inoperable" brain tumors- he is still coming out of the mist. The neurosurgeon
removed a softball-sized tumor from his brain. That was three weeks ago. He still has the same deficiencies as when he came out of that first
emergency craniotomy, but some things have improved. He does know who we all are, and he can speak when he tries, although he can be hard to
understand. He can walk short distances with two people helping and a gait belt. But his balance is pretty bad so he can't do any large movement
He still must have both chemo and radiation, because this cancer always comes back. As of yet, though, he isn't strong enough for that treatment.
We don't know what he's thinking about all of this. We don't know if he really even knows what has happened. Two months ago he was living a normal
active life, went to the ER for severe headaches, and then woke up in ICU with some of his brain removed.
But when I talk to him I assume that he understands everything, and I tell him to be patient with himself and have faith that he can be restored to
himself and to just keep fighting. Most days he seems down....it would be odd if he werent down, I guess.
Thank you for your post- it will help me when considering what my brother-in-law is going through. And no doubt you have helped many people who have
family who are suffering from cancer. The more we see into the patient's mind, the better we can be there for them.
Keep up your good work! I will have you and your family in my prayers, Kali.