Medical Mystery Is Killing My Friend's Son. Doctor's Have No Answers!

God, this is a horrible series of events... my heart goes out to Coleman and his family... I am praying for them.

This really infuriates me on how some in the medical field can be so blatently stupid. Doesn't anyone recognize this kid is dying?

I'm still with you on this Pax and following everyday for updates. Please let this family know that all of us on here are with them in thought. They are not alone.

Update: We now have some good dr.'S involved and If all goes well he will be in hospital locally and heavily sedated while they stabilize him, especially where nutrition is involved. This will allow them to run extensive tests and continue on the detox regimen which he has not been tolerating too well up to this point. The family will as well receive a much needed rest. .

One of the biggest stumbling blocks has been the excruciating neurogenic pain he has been in. Due to his outward reactions, Doctor's up until this point have viewed him as a psychiatric case and have not recognized his current psychological state as
one of the symptoms of an underlying acute medical cause.

Several people are researching other facilities for treatment. Mayo clinic along with Children's in Phili are being considered should it become necessary.

The main point is he get somewhere quick. Hopefully, it is not too late to save this child.

Thank you everyone,
Pax



[edit on 27-2-2009 by paxnatus]

reply to post by paxnatus


Thanks for continuing with the updates. I think a lot of us feel somewhat invested in this boy from following this thread.

It's a relief to hear that he will be hospitalized and sedated, even if it should have happened days ago.

And if there's anything I/we can help with, other than continued thoughts and prayers, please ask.

Pax....I have sent the U2U to you. You don't have to say anything here if you don't wish to... but I know that many people are pulling for Coleman. The strength in the kind words written here can be a strength for you too.



-Amnio

CHECK THE HOUSHOLD WATER SUPPLY AND ALL CONNECTED FILTERS!. Mold spores may have seeped into the plumbing and tainted the water supply. This could explain the stomach aches, reflux and the persistence of this infection. My advice is to take a water sample to the closest chemical lab and have some tests run ASAP!

[edit on 27-2-2009 by Avalon22]

[edit on 27-2-2009 by Avalon22]

Pax, that is good news or at least news in the right direction. I had sent you a U2U concerning the Mayo clinic here in Rochester, there are other Mayo's I think in Scottdale and one in FL I believe too but the one here in Rochester is outstanding and work on cases much like this one to get to the root cause.

How long will they keep him sedated? Long enough to continue him on his current regime of this medication that he isn't tolerating well?

Not sure if this treatment was mentioned? I wanted to get it up quick in hopes it may help?

www.time.com...

Physicians don't know much about this mysterious illness. Like TB, it is triggered by a group of germs called mycobacteria. Unlike TB, it is not contagious, though it seems to thrive in hot, humid states in the U.S. Indeed, a recent survey conducted by health authorities in Florida found that hospitals in the region discharged far more patients with non-TB mycobacterial (or, as doctors call it, NTM) infections than with TB. And once you have NTM, it's tough to get rid of.

"It takes three times as long to treat as conventional TB and relapses are common," says Dr. Michael Lauzardo, deputy TB controller of Florida. Drug costs alone run $5,000 a year, and a full course can last 18 months.One thing is certain: most people with NTM infections are not getting properly diagnosed. Their complaints tend to be general and vague: long-lasting fatigue and a cough that won't go away. A specialized sputum test can identify the infection--if one is ordered.

Telltale signs will also show up on a CAT scan--if you know what to look for. That is why doctors and patients are trying to spread the word about this mysterious ailment. (Leitman's husband Philip has taken the lead in Florida, raising funds, organizing medical workshops and creating a website, www.ntminfo.com. Sometimes what you don't know can hurt you.

Oh my goodness! Today has been touch and go. I am at the hosp with the family and have been here for 13 hrs.

Got a call from my friend that mold specialist called her with some of the labs and here's what we know highLy elevated levels of toxic marker MMP9 extremely high level of Chaetomium and Aspergillus. Several of the other results are not back yet. It is my understanding that the MMP9 is a matrix in that the toxins are being made by the enzymes in his blood stream thus effecting his entire system there is not one organ in his body that has not been damaged. This dr.s exact words were get him to any hospital NOW!! We have to stabilize him in order to determine where he needs to be moved for treatment. Took us 10 hrs. To get admitted under medical part of hospital. They wanted to admit into psychiatric part of hosp. Because his behavior is so bizarre clearly a sign of damage to the myelin sheath. is so bizarre. So in other words they wanted to place him in psych hospital. This time I was with her and made one of the biggest scenes you have ever seen. They finaly got the hospitalists to admit him. After I demanded to see the the spervisor of the hospital. and laid the burden of this childs death at their feet. I then threatened with a lawsuit and having the licenses of all physcians involved. I told him I wanted to speak with the ethics commitee. And brought up my exact grievences regarding the hospitals gross negligent mistakes. Well guess what? It worked!! Tonight Coleman rests more comfortably with sedation and pain med, than he has in months. The truth is the dr's are in over there head with this one and so don't know what to do.

Again this is a stop to stabilize before we get to the next stop. Planning on children's hosp. In phil.

Will try to update at least once a day.

Thank you, for the love and courage and persistence in sticking with me in this.

Thank you for all the great links.

This boy is in the fight of his life right now. I have seen him with my own eyes.
It may be too late! I pray not.

Pax,

Patient advocacy works. Good for you! And good for Coleman. As the friend of the family (and the one with the medical knowledge), you are in a very difficult position. I think that you handled it with grace and strength. I hope that you will continue to keep us updated. I suspected that this had gone systemic.... and that is a dangerous thing. If you need anything.... U2U me. I'll provide whatever knowledge I can about the possible treatment options (other than the ones that I have already mentioned to you).


-Amnio

Hello everyone, It is with great sadness and a heavy heart that I update today!

Coleman is going home. The hospital cannot help! When you don't have a familiar illness, they simply don't know what to do! I will tell you his toxic
marker mmp9 which is an indicator of how much toxicity is in your body is unbelievable! The normal range is 85-335 his is 1343!!!

I also want to post the website of her personal blog: You can see for yourself,
how beautiful the boys are. Coleman is the oldest.

If anyone out there has an" in" to get us in to Mayo, or Children's Hospital In Phili. Please, please let me know!! WE need a miracle! We now have to go it alone NO Physician referral based on just her story, the lab work, and his symptoms!!

If you know a Dr. at either of these places. let me know!

link[coxbrothers.blogspot.com...]

We are all losing hope!

Thank you ATS
pax

I don't like the idea that they're sending him home, particularly if there is something in the environment that is causing this to worsen. Thanks for the link to the mom's blog.

My heart sank when I read this last update.... what can be going through these Dr's heads to order him home?

I am outraged and so worried..

Thanks for the updates, Pax... I don't know what to say.

The gray and black mold you said you found while moving the antique furniture is a BAD sign! Start there.


My dad is a contractor (now retired) who used to build and work on houses. He would always tell us of stories of black mold in the houses he worked on. Apparently black mold can be deadly, and when a house gets it, they usually have to destroy the house or if it's not too bad in magnitude, at the very least knock a few walls out and destroy the mold with industrial strength chemicals.


One story he was telling me about; this man wanted my dad to do some last-minute improvements to his house before the man sold his house. The man was telling my dad how he gets sick all the time and has trouble breathing, just during smalltalk conversation before my dad started work on the house. While in the crawlspace of the house doing electrical work, my dad discovered black mold all over the walls! My dad quickly ran (crawled) out of there, realizing how deadly black mold is. My dad told the man "Last minute improvements? Ha, try demolishing your house instead. No ones going to buy it with all that black mold in the house. That's why you are sick all the time and have respiratory problems..."



I guess the guy went and sold the house anyway, without telling the people he sold it to about the black mold problem. LOL. Son of a B.



Anyway, yeah it's pretty common knowledge black mold is BAAD and can make you very very sick. It's probably a good idea to stay away from that "farm" with the black mold you found on the antique furniture.




[edit on 28-2-2009 by BlackOpsAgent9]

chemtrails can contain any variety of metal ions, fungus spores and or viruses.

the protocol to take is magnesium citrate, 200 mg daily

along with vitamin e, 100 iu`s daily

vitamin c , two grams three times a day in orange juice

and pantothanic acid, 500 mg daily,

b complex 50mg daily,

make sure to drink plenty of water with vitamins,

avoid eating sugar and junk food,

also take liquid chlorella to clean the blood,

taking meds and or steroids will complicate the condition in the long run,

that is if you last that long,

if the chemtrails don`t wipe you out.... the drugs will.

take care,

Adonis.

It is so obvious it is heartbreaking. I feel for your suffering as I have been down that road. When you have a few minutes read up on the Staninger Report and carnicom.com. Nope folks, these are not advertising pushes. Look over the material on the sites and you will see real scientists putting their name by something that makes them a target for mainstream medicine.

With knowledge comes Responsibility. I am very hopeful that by raising awareness others may be spared the suffering you are having to endure. I have endured it as well. Good luck to us all.

Has caspofungin been prescribed? Caspofungin inhibits synthesis of beta-1,3-glucan, a component of Aspergillus cell wall. Caspofungin in combination with a triazole or polyene has been effective as salvage therapy for patients with recalcitrant Aspergillus infection (see Pubmed).

However, these were adult patients and I don’t know whether drug side effects would be tolerated by a child. Nor do I know whether these medicines are actually licensed for use for children in the US.

Originally posted by Anonymous ATS
Has caspofungin been prescribed? Caspofungin inhibits synthesis of beta-1,3-glucan, a component of Aspergillus cell wall. Caspofungin in combination with a triazole or polyene has been effective as salvage therapy for patients with recalcitrant Aspergillus infection (see Pubmed).

However, these were adult patients and I don’t know whether drug side effects would be tolerated by a child. Nor do I know whether these medicines are actually licensed for use for children in the US.

No, nothing has been prescribed! I will look into it. He actually had a pretty good day today. A first! Still waiting on the rest of the lab results. We had a huge snow storm here, and Dr. on Eastern Shore was no in today! Hopefully, she will hear from him tomorrow!

Thank you everyone for continuing to follow. I will keep you posted as I get more info.

To those of you posting on her blog, such a sweet gesture, one she really appreciates. Everyone is lying low right now trying to coordinate our next steps.

Pax

My heart breaks for this family and especially for the oldest boy who has endured so much. Please know that I will keep him in my thoughts and heart and will pray that he recovers. This is so sad.

Originally posted by PaulKCA
reply to post by paxnatus

 

I would recommend biologic saturation with Colloidal Silver as it is non toxic and very effective. But because it kills good bacteria as well as bad, supplement with good non BGH yogurt or better yet Acidophilus to restore intestinal digestive flora which can be had from most health food stores. Colloidal Silver is a powerful antibiotic with no harmful side effects, once the system is saturated with it it should kill off any virus in the host. You could also use it in a nebulizer and inhale it, as it kills the viral lung infection the coughing should expectorate mucous and the dead virus. Good luck!

There is a side effect.... you could turn silvery blue... look up records on use. It could happen from even one dose and it is PERMANENT. Look into the side effects online first before trying this.

You could try oregano oil supplements. It is an antiseptic NATURAL oil that may cause a funky burp taste but no worse side effects after extensive online research. It helped my staph infection and e.coli stomach infection.