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Physicians don't know much about this mysterious illness. Like TB, it is triggered by a group of germs called mycobacteria. Unlike TB, it is not contagious, though it seems to thrive in hot, humid states in the U.S. Indeed, a recent survey conducted by health authorities in Florida found that hospitals in the region discharged far more patients with non-TB mycobacterial (or, as doctors call it, NTM) infections than with TB. And once you have NTM, it's tough to get rid of.
"It takes three times as long to treat as conventional TB and relapses are common," says Dr. Michael Lauzardo, deputy TB controller of Florida. Drug costs alone run $5,000 a year, and a full course can last 18 months.One thing is certain: most people with NTM infections are not getting properly diagnosed. Their complaints tend to be general and vague: long-lasting fatigue and a cough that won't go away. A specialized sputum test can identify the infection--if one is ordered.
Telltale signs will also show up on a CAT scan--if you know what to look for. That is why doctors and patients are trying to spread the word about this mysterious ailment. (Leitman's husband Philip has taken the lead in Florida, raising funds, organizing medical workshops and creating a website, www.ntminfo.com. Sometimes what you don't know can hurt you.
Originally posted by Anonymous ATS
Has caspofungin been prescribed? Caspofungin inhibits synthesis of beta-1,3-glucan, a component of Aspergillus cell wall. Caspofungin in combination with a triazole or polyene has been effective as salvage therapy for patients with recalcitrant Aspergillus infection (see Pubmed).
However, these were adult patients and I don’t know whether drug side effects would be tolerated by a child. Nor do I know whether these medicines are actually licensed for use for children in the US.
Originally posted by PaulKCA
reply to post by paxnatus
I would recommend biologic saturation with Colloidal Silver as it is non toxic and very effective. But because it kills good bacteria as well as bad, supplement with good non BGH yogurt or better yet Acidophilus to restore intestinal digestive flora which can be had from most health food stores. Colloidal Silver is a powerful antibiotic with no harmful side effects, once the system is saturated with it it should kill off any virus in the host. You could also use it in a nebulizer and inhale it, as it kills the viral lung infection the coughing should expectorate mucous and the dead virus. Good luck!