Originally posted by Stormdancer777
reply to post by FissionSurplus
It does behave like a viral infection. It feels like the worst flu ever, where even the breeze on the skin hurts. Yet the government still pretends
like they have no idea what is causing it.
It is a retrovirus like HIV / AIDS.
Yes it does, you constantly feel like you have flu like symptom and there is joint pain and soft tissue pain.
I remember hearing years ago it was some sort of retrovirus and that people that had mononucleosis when young were more prone to come down with it
later in life.
And the fog you are always in a fog.
So how are you guys treating it, I would only do natural treatment, no herbal remedies either, only diet.
edit on 093030p://bMonday2012 by Stormdancer777 because: (no reason given)
I never had mono. The irony is, I rarely get sick. Never have flu or colds. My doctor says I have an awesome immune system. I cannot remember the last
time I was sick with so much as the sniffles. It's been over 10 years.
I am currently in remission, but I've been dealing with this on and off for 25 years. Over the years, I have tried EVERY possible diet/elimination
strategy you can imagine, and I find zero connection to diet. I would not bother going down that route (but of course eat healthy because it certainly
When in a flare, the best treatment is fibro massage. Have your doctor recommend a physical therapist or massage therapy who is skilled specifically
in this -- it is very different than any other massage. (If you're like me, any typical massage sends me flying to the ceiling in pain). It's very
simple, and you can learn to do it yourself at home, with massage balls and some help to reach spots you can't yourself. Basically, the practitioner
places his/her finger on the fibro pain points, applying some pressure, and holding the finger there for awhile. You feel the tension in this pain
points release. Then they move on to the next pain point, and repeat.
Yoga is great.
Low-dose valium, as needed. Especially taken if you know you are going to have pain, like at the dentist or if you strain your back. To nip the
infinite pain loop in the bud. We aren't talking much here at all. For example last night I slept funny and woke up with a sore back. Since back
strain has been known to set off a flare in the past, I took 4 mg Valium today.
Ice water baths or dips in cold ocean water. It gets the blood flowing.
Laying around on a beach soaking up the sun always seems to help; it's not a cure, but it helps. I did try Vitamin D once, thinking maybe there was a
connection, but it did nothing for me. And besides, my Vitamin D levels test high (all my vitamin & mineral levels are in the excellent range -- I eat
a clean diet).
Adequate sleep is really important. Melatonin is working pretty well for that these days, though I haven't tried that during a flare.
Get a new mattress, the best you can afford, every 10 years.
Hanging out with people who make me laugh. It's true.. laughter is the best medicine!
I have done pretty much every standard PT there is, as for the longest time they thought I was having repeated sports injuries. But the PT always made
me worse, not better. So I don't recommend that. Also I do not recommend chiropractors at all. That also made me worse.
Hope that helps -- I know it's not much.