reply to post by clearmind
Thanks for your input. Everybody needs to find their own way to deal with this disease, in whatever way it manifests. One thing I know for sure is,
western medicine falls woefully short when it comes to chronic disease. I went that route for the first 10 years of my illness, and I regret it.
They never discuss diet, but claim that you should just "get up and exercise", which always made me so angry. That's like telling a person in a
wheelchair, "get up and move around, you'll feel better".
My current doctor, which I see for my insomnia (the one thing I could never fix on my own) and panic attacks freely admits that most doctors are
absolutely clueless, and their only concern is to not have their patients get hooked on opiates. They have nothing to offer. They are building a new
"wellness center" in town, and he has asked for my recommendations on books and resources for fibromyalgia, since he is way behind the curve when it
comes to this, and he knows I research often and have lots of books.
Sometimes, we who try to blaze our own path to wellness can help the medical establishment get caught up. They don't have the time to research, and
so I feel it is my duty as a human being to help others by passing on whatever info I find. Thank God my doctor is open minded and honest about the
situation, a rarity these days...But I'm in a small town, so the doc has plenty of time to hear me out and for us to discuss this disease in
The day I decided to stop seeking help from doctors for fibro was the day I felt like I had my life back as my own, thrashed and ruined as it was.
Some days, I feel pretty good and like to move around. Other days (such as today), I feel like crud and am not moving around much.
I have pretty much limited my diet to meats, veggies, water, tea and decaf coffee. It has helped a great deal with the inflammatory response. I walk
and move about when I feel up to it. I am very jealous of my sleep time, and I do dope myself up in order to get a decent amount of sleep, because
without good sleep, I am almost bedridden.
I do still take Samento, as it does help me, but getting up to a theraputic dose is a rough ride. Some days I'm raring to go, other days, especially
as I up the dose, I am herxing badly and so I don't do much.
Sometimes, when I'm sitting there feeling absolutely crappy, I sit and imagine the creeps who let this monster loose on the population. Are they
laughing? Feeling guilty? Or waiting for people such as myself to die? Like you, I have no plans on checking out. Why give them the satisfaction?