So the Dr. insists I have had blunt force trauma but that is not so

Poor Antar! I am sorry this is happening to you. Sending prayers and positive thoughts and light your way, and like the others said, please keep us updated. ((hugs))

I know how upsetting this must be to you, but you have a lot of love and support here from your ATS family. Sorry I didn't get to this thread sooner. Picture yourself with an angel overlooking you. I am not religeous, but somehow I find this comforting. If your doctor feels it is benign, I am sure he has seen similar things many times before and knows what he is talking about. HUGS!!

reply to post by antar


Sweetie, I would get them to refer you to a nuerologist. Honestly my Granmother died from a stroke and her eyes were the first sign. She was also told at the ER she had shown no signs of stroke or hemmorage. However she had gone to several specialists until she finally got the accurate prognosis. Then they put her on blood pressure medicine and some other pharms. I don't know what else it was. It did keep her alive a few short years, however now a days there is probably better drugs and treatments. I don't kid you you should definately seek a specialists help.Alot of times by the time you get to the ER the blood pressure is already coming down, showing a slightly high BP they should have given you some kind of BP meds... my best advice in the meantime, one Bayer aspirin per day every day... This is good for clogs in any artery as it thins the blood out.

I'm not a Dr. but I do play one on TV.

I think it was an insect bite of some type.

Get well soon!

Antar, my thoughts and prayers are with you. Our positive energy as a group praying for you will get you through this. Just know that you are loved and we are thinking of you. Please take care and keep us posted as you can.

Something similar to this happened to my dad last year. It started with his eye, then the side of his face started swelling. The doctor told him it looked like a sting from an insect, which I thought was weird, because there were no bite/sting marks. They put him on a cortisone & antibiotics & it helped, but every now & then it happens to him. He also has major nosebleeds on occasion & he jokes(?) that the aliens put an metal implant in his nose. He also likes to talk about how he saw UFOs often while growing up... I honestly don't know what keeps causing his face to look like he's been in a bar fight, but I do know the cortisones & antibiotics help when it flares up.

I'm sorry to hear about your ailment Antar. If you've never been in an MRI machine before here is some helpful advice before you go in:

Your doctor, and perhaps a neurologist if you end up going that route, will probably want you to have both a "plain MRI" and an MRI with contrast. This will help better determine whether or not you have a ruptured blood vessel or if you do indeed have an ocular tumor. The dye itself doesn't hurt, but it does burn a little bit when it first goes in. They will probably put you into the machine up to your shoulders, and it is a tight fight. I am a larger fellow, and I got feelings of claustrophobia within 30 seconds of entering the machine (I have very broad shoulders....the high school football coach tried to get me to be a linebacker for years, but I ended up doing the marching band instead ) . I meditated most of the time. They have a camera inside the rig itself so they can monitor your progress throughout. Don't eat before you go in. You are in a huge magnet, and your insides will feel very weird, especially after the contrast injection. Toward the end I thought I was going to have an accident because I felt like my intestines were trying to release all at once. If you end up having to go this route, just relax and you should be okay.

Of course, if you've had an MRI in the past, then disregard this entire post.

I'm sending you some healing energy, and I am hoping for your speedy recovery.




Peace be with you.

-truthseeker

Do you now or have you recently [say, in the last few months] taken ANY sleep aids such as Ambien or Lunesta? These have been known to cause functional sleep walking, where the person is actually asleep but is fuNctioning as if fully awake. People have been known to drive cars, fix meals, even have sex. All while sound asleep.

Could anyone please help find some info on this? all I can find on benign occular tumors is terrible, stuff like taking the eye out, cancer radiation therapies and stuff like that. I am trying to wait paiently for the dr. to call, was looking it up, but seem to be unable to find any good news, the dr. seemed worried but also insisted it was benign as if that was a positive thing, My head hurts and both eyes hurt, so its not too easy to stay on the comp for long periods of time.



Thanks.

reply to post by DAVID64


No I am pretty clean. I use little of anything, did quit smoking for a bit but went back recently. Ive had a joint in my medical supplies for years and its still there, no I have not taken anything.

reply to post by truthseeker1984


Thankyou my friend, when I went for the CT the other night I never even opened my eyes, I did meditate the whole time, 5 minutes went by in seconds it seemed. I will be honest I am scared. Not for me but for all the people I love so much that rely soley on me. I am not afraid of the procedures but how it affects my beloveds. This is the body, and the time has come for me to address the body in a way I never dreamed I would have to. I do wonder if all the comp time has added to this, i will ask at some point... also, I was blessed to be very beautiful in the features as I was growing up, as years creep in that settles down, but I am fearful that I will no longer be my childrens pretty mama. I want to come out of this intact, is this just ego or do I really want my family to feel at ease and not embarrased of me? I am also a chubby woman, and that I have found comfort in as it keeps the wolves at bay, but I think your post made me validate what I was just thinking in that I should do a cleanse before all this goes down, a clean colon you know?

reply to post by antar


Honestly, it could be a bit of ego, and a bit of worrying about your family. By the sounds of it, you'll be okay, but sometimes it's the nonsensical worrying of loved ones that can only aggravate your pain and your fear of what will be. They worry because they love you, and that's okay. I can tell you from experience that my loved ones were going nuts when I started having my neurological problems. I went through several MRI's to determine what was going on with me. It was determined that there was a cyst forming on my pineal gland (which of course MD's say is normal as you age....I call BS on that), and that the cyst could be pushing up against structures in my brain that could be causing some of the symptoms I have. The symptoms haven't aired themselves in some time, and I have stopped drinking anything or using anything that has fluoride in it. I went for another MRI this past January (before my COBRA expired), and it was determined that the cyst was actually getting smaller. Like I said, no more fluoride for me...not even in toothpaste. I buy non-fluoridated toothpaste now (very hard to find, and very expensive), and I drink well water that has been put through a very rigorous filter, and that seems to have worked.

Anyway, I was going off on a tangent.

Sometimes we feed off the negative fears of our loved ones, when we know that we will be okay ourselves. It's kind of like when a child takes a face plant off a bicycle, and gets right back up. If his/her parents don't react, the kid goes right back to normal. If the parents overreact asking "are you okay" and trying to coddle them, they immediately start crying. I think meditating on your own well being, while being sensitive to your loved ones' concerns is the best thing to do right now.

As far as the cleansing, that could be a good thing. I just wouldn't eat within 6 hours of having an MRI if you go for one. Sometimes the CT scans aren't as revealing as an MRI.

I am hoping for the best for you, and you will be in my thoughts and meditations.



Peace be with you.

-truthseeker

reply to post by truthseeker1984


We did quit flouride years ago, we have good well water but maybe I will buy a filter for drinking water. I just spoke with my Grandpa and you know, hes so worried, we just went through all of this with my MOm, seems like yesterday but was 06. I then 6 weeks later lost my healthy beautiful daughter to a hemmorage. its weird but I froze up in my throat after trying to sound up beat and positive. My heart just breaks at the thought of putting my family through any of this, it makes me feel like saying a million times I am sorry. I am sorry. I am playing with denial today as I wait for the MRI appointment. I wish this could be something else, something which would not be dangerous and way too real. As for me, there are so many mysteries I still want to discuss, to try and bring to light. Also, what else are you doing to shrink the tumor? I have heard of so many things, but for the life of me am drawing a blank on right now. Well, what more can I say but thankyou for your attention and support, I feel so alone today, you know I am really too much of a recluse and dont even have many people in my life to talk about this with, so this forum is it I guess. As for my family, I am going to try and put on a brave front, a positive outlook, but thats far from what I really am feeling.

Well they just called and I go on the 21st for MRI, they will do both or two, contrasting, one without dye then one with. Just letting you know since the dye was mentioned.

Antar,

It seems as if you are giving yourself the death sentence before you've even been caught for a crime. I really feel for you because I have been there before. I have struggled with that feeling of uneasiness, that fear of the unknown, and it hits you without warning.

I just spoke with my Grandpa and you know, hes so worried, we just went through all of this with my MOm, seems like yesterday but was 06. I then 6 weeks later lost my healthy beautiful daughter to a hemmorage.

Events such as this can often put a chink in our armor, more so when the events affecting your own realm of existence mimic those of other loved ones. My mother was diagnosed with a neuromuscular disease a little over a year ago now, with the previous three years being in the realm of uncertainty and fear. I had been showing some of the same symptoms as my mother, and whether it was due to the cyst, or whether it was due to my very strong empathic sense, I'll never know. The point being that when it became "real" for me, I spent some time in isolation and seclusion, trying to come to terms with the fact that at the age of 26 that I might actually be seeing an entire life time of medical problems. Well, as I have said, those ailments have all but disappeared. I don't know if they are in remission or not, but I'm going to ride it out as long as I can.

My heart just breaks at the thought of putting my family through any of this, it makes me feel like saying a million times I am sorry. I am sorry. I am playing with denial today as I wait for the MRI appointment. I wish this could be something else, something which would not be dangerous and way too real. As for me, there are so many mysteries I still want to discuss, to try and bring to light.

Your family has not had the best of luck with these medical issues the past few years, but that doesn't mean that you should be sorry for what is happening to you. Your family is strong enough (by the sounds of them) to deal with whatever comes to them. This isn't to mention the fact that you hold a massive amount of internal strength regarding your mother and your daughter. To lose a mother is devastating, but to lose a child is earth shattering. I do not have any children myself (nor will I), but I don't think I would have enough strength to continue my existence knowing that I put a child in the ground before her time. Put it this way: the MRI will give you a ticket to take control of your ailment. This ticket gives you the opportunity to collapse and retreat into self, or it can give you a chance to be proactive, researching everything you can find on this type of tumor, the types of treatments, the side affects, and the potential long term effects of different procedures. This diagnosis is not a death sentence, but rather, a ticket to better your life.

When you get treated and get better the mysteries will still be there. You will have the rest of your life to share your wisdom and research with the rest of us, and with the world. For now, this is about you, and about you getting better.

Also, what else are you doing to shrink the tumor?

The only thing I have done is to stop ingesting things with fluoride in them. I have not changed my diet in anyway, I'm still a pack (or more) a day smoker, and I use the power of positive thought and meditation, and so far it has seemed to work. I 100% believe that the pineal gland is the window to the abilities that some of us on this Earth demonstrate. I'll die before I have any more damage done to this organ, especially with how little we actually know about it. So, that's all I've been doing in regards to that question. Of course, I don't know for sure how far the cyst has shrunk, because I have not been to have an MRI since January, and without a full time job with benefits, I will not be getting another one anytime soon.


No matter how lonely, or how alone you feel, there will always be people out there supporting you and rooting you on. The important thing to remember is that you and you alone have the power to take control of your own life. If you're not satisfied with the results of one doctor, go to another, and another until you get the results that you are looking for. I went through 3 neurologists before one would actually listen to my concerns and not think that it was due to stress or that I was just a nutter.

If you feel the need to write down your memoirs just in case, do it. I know I did. When I first starting having symptoms I thought I was going to die, physically, emotionally, and spiritually. I fought through it, and I still have this journal safely locked away in a bank lock box, just in case something does happen to me.

We're here to listen and to support. Take good care of yourself.



Peace be with you.

-truthseeker

reply to post by antar


In regards to your request for more info about a possible condition, I discourage against obtaining too much info now without knowing the diagnosis as it will probably provide more anxiety than anything but here are two good sources:

This is written and used by physicians, you will need to search through it...

emedicine.medscape.com...

National Institute of Health, Neoplasms of the Eye... check the Adult Ocular Tumor section...

www.ncbi.nlm.nih.gov...

I hope this helps.

reply to post by antar


From what I can gather
Ocular tumors are a form of cancer

I hate to say this but I thought that you might want to know the truth

The good news is that like all cancers
They can either be malignant or benign

So before I would jump to any mortal conclusions

Let the process play itself out and trust your treatment with the most qualified doctors

If I could make a recommendation

Try to get a referral to Emory Hospital in Atlanta

It might be easier to get in to the Hospital there to be seen than many other places (john hopkins et al)

And they are the experts in the southeast and abroad

My best wishes a million times over

-Josephus

reply to post by Josephus23


Tumors aren't necessarily cancer nor cancerous.

Not all cancers have tumors either.

Heck, it will probably not even be a tumor afterall.

www.knowcancer.com...

reply to post by Trexter Ziam


you are correct and I misinterpreted my information on eye neoplasm

here is the wiki link

it is possible but not definite

thank you for clearing that up

Hi Antar

I believe the tumor theory is wrong. It could be something that mimics the look of the effects of a tumor. Didn't you say that you had three strange scratches before the onset of the symptoms? Please google "cat scratch fever" and click on images. It doesn't necessarily have to be a cat that scratched you, could have even been you working in the garden and a tree branch or bushes scraped you. Very treatable. Definitely the better of the two, hope the mri goes well and they find nothing.

STM