reply to post by davethebear
You have an amazing story.. I automatically clicked on your thread as I read you shared a health condition connected to Abe Lincoln and Andre the
Giant because those are 2 famous figures who were carriers of acromegaly, as I learned when studying about it because my father too is a carrier of
I am extremely interested to learn more about you and hear about your experiences because such a low percentage of the population carries this and I
would seriously love to talk more with you about your condition.
I find acromegaly to be one of the most interesting conditions I have ever heard of and come across and have been studying for years and am striving
to find the answer of who gets it, and why. I find the symptoms to be very intriguing, and yes it also scares me that if untreated it can lead to
premature death and many other debilitating health problems.
You said if we looked at a pictures of you in your 20's and then now, we would see the difference.. That is exactly how my father is, he looks
nothing like the man he was and has undergone a lot if physical changes over the years but I would never ever put the physical conditions of
acromegaly as ugly, ever. I say unique, and beautiful in their own way. If you ever do have the time or interest to put up your photos, please let me
know! Or u2u me!
I have been working on a thread about my father and his condition for some time and actually plan to write a book on his situation some day and
learning more about you will do nothing but help me and further my understanding about you guys condition. I also plan on posting his before and after
and progression pictures in between, of course only because I've gotten his permission.
I believe acromegaly is fascinating,I feel I will forever strive to find out why it happens to only a few, because I do not believe it is all random.
I like to believe that if way back in olden times, stories that are orally recited and written in history about giants, that you guys would be those
guys. The carriers of this fascinating gene, of course that is my imagination taking off but hey a girl can dream. I believe acromegaly and gigantism
are the genetic reasoning for fairy tales and legends about giants. That is one reason I find you is fascinating.
I also have found that the protruding jaw, forehead, big extremities, ie hands and feet have made you a piece of art, and a genre of your own. My dad
is so interesting looking, that quite a few actually find him attractive from the big jaw to big chest among other things, and I am sure you look good
If you don't mind me asking what are the most challenging things you have had to deal with since learning you are a carrier of acromegaly?
& I have always wondered since it is slow progressing, do you necessarily feel the growing changes in your body?
I also know you have a different system of the way your blood flows and works through your body, are you also a carrier of things like reynards
phenomena that come with it?
My fathers started with a tumor on his pituitary gland, that caused the growth hormones to cause his body to continuing growing after it should have
stopped after puberty.
Another question for you since you said you think it was progressing for years is,
Did doctors ever suspect anything while you were younger? Or did it take until that time at the age of 43 to doctors to even put 2 and 2 together?
I apologize for such a long response I am just so fascinated to read of another ATS member who is a carrier! If I could, I would study you until I
couldn't anymore! Lol!
I also take from your post that you are very intelligent, so is my father, I wonder if that has anything to do with this condition. It was almost
weird how my father came to learn he had it, when he was teaching, a child's parents of his class walked up to him at a conference walked up to him
and shook his hand, then grabbed his hand to look at it, and told him to stick his tongue out (weird I know) and automatically said I believe you are
a carrier and set up an appointment, thank goodness because if not we may never have found the tumor on his brain.
Do you realize just how interesting you are? You are one of the few in this world (few of course I mean very low in numbers left out of how many
people are here on this earth) who carry this 'giant gene'?
What has been the most challenging part of your condition?
Do you feel you were random selection or do you believe there was tinkering with your DNA somewhere along the line? (another weird question I know)
Are you upset you are a carrier, since it does have its down side health wise? Or are you okay with it?
You are a modern day giant in my eyes and I find that so interesting...
However I do feel for you and your issues health wise from the condition, coming from a girl who has watched her father grow