reply to post by davethebear
I am thankful for the time you took to answer my questions! Was scared I was going to scare you away with my eagerness! I just feel the same, it
is so unlikely to meet another with this condition and when I saw your post I literally just lit up!
I STILL wonder to this day, the 'why me' question, the 'Why my father out of the millions'?? So I know the exact feeling of wondering the answer to
A few other things we can completely relate to you on..
Apathy- my father used to be a very active person, cycled in races, and stayed on the bike at the gym and lifted weights on a weekly basis. When this
was onset, it was a hugely drastic change and we all noticed it, and felt for him, so I feel for you. He could not get out of his recliner, did not
even want to go to places as close as the store, and yes another thing you mentioned, couldn't even make himself want to or have the energy to do
things around the house which was such a huge huge change, I was young and he used to be the one who would take me to all my ball games, he could not
even find the strength or will to make himself go watch me play anymore.
The depression was, and still is uncontrollable. It does come and go, but when it is here, it hurts my heart. Especially since things that I mentioned
above helped attribute to it.. He could not work out anymore and be active which used to help release endorphins to stay happy, that was not even in
the cards anymore. Depression has got to be one of the hardest things he has struggled with even over a lot of the physical aspects. Not to mention
the older he gets, the worse it gets. We have not yet found a way to medicate it or treat it as I do not even know if there is a way, so you would
laugh at how hard I try to come around and just find any way I can to make him laugh or to have in depth discussions with him that always keep his
mind off of feeling that way.
The weekly and monthly shots and treatments, boy is it a toll on his patience and wallet! He literally has to go have a shot (in the rear end lol)
every 2 weeks! And there are many other shots and treatments he has to have and be monitored for on a monthly basis! Some shots the needle is the size
of a think toothpick he tells me, it hurts to think about! He said he has now had to deal with it so long he is used to it, but, He has stated to me
that 'If he did not have such a "hot" nurse, it would make it a lot harder to go every other week!' Ha, that is just my dads personality, and
actually, I saw her, she is pretty cute! Lol! I again commend you for your strength having to do that so often in life, a lot of people will never
know the amount of time you guys will have to spend in a doctors office.
You have got to be one of the strongest men I have come to learn about. Radiation therapy is EXTREMELY hard and taxing, physically and mentally and in
every way you could think of! You are so strong for going through that. You are a trooper! It is hard to know you are doing that, yet there is still a
chance it could come back! Especially since little things, actually big things like the fact your growth hormone level could take 5 to 10 years to
even return back to normal after the radiation therapy! As if the levels weren't already abnormal anyways! You are so so so strong for going through
that, I wish I could hug you for that!
Unfortunately, and I hope you haven't had to deal with this, my father broke both of his hips due to acromegaly, long story short, the hip is a ball
and socket hinge, as his legs and the balls of his hips continued to grow, the socket which the balls fit into did not grow whatsoever, causing his
hips to literally crush from the pressure and abnormal growth pattern. He now has had 2 metal hips replacements, which are causing so many problems
and more pain than before, not 5 years ago did he get them, October he is going back to get a new plastic compound type of hip because he is suffering
severely from metal poisioning from them, specifically chromium and cobalt poisoning.. Which has made him so so very sick recently, because this
poisioning has literally enhanced every single detrimental symptom acromegaly had already brought about..literally enhancing his condition in every
way. He can't even walk anymore, it is so sad, I have bought him a cane, but it doesn't help much, since he is so big and the upper body being a lot
larger than the lower, it is painful to watch him even attempt to stand and walk..
So if you ever have more trouble with your shoulder or any body part due to acromegaly, steer clear from the metal replacements!!
Sometimes I feel I was brought to ATS for a reason, and reading storied like yours and meeting people such as you makes me know I did not stumble on
this site by chance. I immediately told my father I had found another like him, who actually shared some interest of ours. He lit up and automatically
read your story, therefore we may have a new ATS member soon here to share the experience! It's so rare to find another with such a familiar story, I
am SO thankful!
edit on 12-9-2012 by Katharos62191 because: (no reason given)