Fibromyalgia ???

reply to post by Vamp333

It sounds just like my Lyme disease. Look it up and check. I have had good results with astragalus and colloidal silver

It kept the pain down for years.

You know something interesting I read was that many of the unknown diseases and also many known are actually caused by parasites and they are only now starting to realize that the little critters are killing many many people... heart attacks and kidney disease, you name it and they feel many may have surrcumed to parasites.

reply to post by Vamp333


If it is Fibromyalgia you may need a hot tub if you don't already own one. Soaking in hot water should help lots.

Good luck.

My mother suffered with this, along with many other problems.. It seems the only solution was to just feed her prescription drugs. I remember her being sick most of my life, and I remember fibromyalgia being one of her main problems.. Luckily, she doesn't have to deal with these problems anymore.


My suggestion to you would be to find as many alternatives as you can for pain management. I can tell you, prescription drugs are horrible, and they cause more problems than they fix. Hopefully you don't have this problem.

reply to post by Vamp333


I have been diagnosed with fibro. and being male that just makes it another problem because it is rare for men to get this disorder... then you get ignorant people like Rhino who think they are some kind of Dr. only who add to the stigma that this is hypochondria.

when someone hugs you and you cringe in pain, then come to me and say Fibro. is Hypochondria.

stay strong focus on controlling your pain and mastering it. stretch every day 3 times a day there are many many techniques Active Release Technique (ART) has helped me. also eating healthy is a big deal drink lots of water.


i just read this thread recently and some of the techniques have helped.
The most effective ways of healing ourselves & how to here!

Originally posted by eXia7
My mother suffered with this, along with many other problems.. It seems the only solution was to just feed her prescription drugs. I remember her being sick most of my life, and I remember fibromyalgia being one of her main problems.. Luckily, she doesn't have to deal with these problems anymore.


My suggestion to you would be to find as many alternatives as you can for pain management. I can tell you, prescription drugs are horrible, and they cause more problems than they fix. Hopefully you don't have this problem.

this is great advice pills only make you dependent and ruin your body.

I personally suspect our food is both nutrient deprived & contaminated to various degrees with all manner of bad stuff, which is leading to these sorts of conditions becoming common. Look for anti-inflam herbs & greens to add to your cooking, I forget which ones they are. Magnesium / calcium combo is meant to assist nerve regen but hard to quantify.

My only advice besides sourcing clean food & water is to then look at things which exacerbate the prob, so get posture & ergonomics correct, particularly related to heavy use of computers & laptops.

reply to post by watcher3339
[more

You may be on to something Watcher. Especially concerning the mercury. It is known that some people are not able to process mercury out of their bodies, this is a genetic issue. I got sick from the Anthrax vaccine, and it is rumored the DOD knew there was a genetic component to those of us getting ill. Not saying it was mercury in the vaccine - but saying there are genetic components.

I want to bring up the Herpes Virus folks - there a many types of Herpes - to include Chicken pox - they are beginning to believe these viruses create a sort of opening for other issues. They now agree some cancers are viral. What this all means is it is possible that these illnesses are caused by something we have not recognized as of yet. Viruses are an example. The new retro virus XMRV is pretty hotly debated in the world of Chronic Fatigue these days. Lymes disease is caused by bacteria - Many diseases that were thought at one time to "be all in your head" - have become curable non issues once the true cause was identified. When was the last time you heard people talking about ulcers? When I was growing up it was assumed that those too were all in your head . . . now we know better.

Originally posted by LittleBirdSaid
reply to post by watcher3339
[more

You may be on to something Watcher. Especially concerning the mercury. It is known that some people are not able to process mercury out of their bodies, this is a genetic issue. I got sick from the Anthrax vaccine, and it is rumored the DOD knew there was a genetic component to those of us getting ill. Not saying it was mercury in the vaccine - but saying there are genetic components.

I want to bring up the Herpes Virus folks - there a many types of Herpes - to include Chicken pox - they are beginning to believe these viruses create a sort of opening for other issues. They now agree some cancers are viral. What this all means is it is possible that these illnesses are caused by something we have not recognized as of yet. Viruses are an example. The new retro virus XMRV is pretty hotly debated in the world of Chronic Fatigue these days. Lymes disease is caused by bacteria - Many diseases that were thought at one time to "be all in your head" - have become curable non issues once the true cause was identified. When was the last time you heard people talking about ulcers? When I was growing up it was assumed that those too were all in your head . . . now we know better.

Interesting that you brought up Chicken Pox. My mom is autoimmune. My sister is autoimmune. One of my nieces is autoimmune. Myself and one niece are okay. However, I simply cannot develop an immunity to chicken pox. I have had it three times. The first I was six and I was covered in the nasty things. The second two times I only had a few pox but I was very ill. The last time I was exposed to chicken pox I got shingles on my arm.
Also, the three females with the autoimmune issues have had "female" issues, but they have the most exquisitely perfect skin you have ever seen. Never a blemish in all their lives. My healthy niece fought real acne. I never had bad acne but now on my way to middle age still break out from time to time. I really believe there is a hormonal component too which is why it is more common in women than in men.

thankyou for everyones response + advise so far.. will be reading into everything that has been suggested.

i'll just add a bit more info about me .. im a single mum of a 10yo boy + i have no out side support system when it comes to my son.. so as much as i'd like to rest + have less stress in my days to deal with what is going on with my body for the past few weeks.. it is extremely hard.

my diet - is mostly healthy.. i do not eat red meat.. or alot of junk food.. i eat mostly salads, vegies from the local farmers market, fish + chicken.

i do not drink alcohol or take drugs.. + will only take medication/pain killers if the pain or illness becomes unbareable for me + starts effecting me mentally... so im all for anything that helps that doesnt involve meds.

thanks again for everyones input so far.. u have given me alot to look into..

Originally posted by TheLieWeLive
reply to post by Vamp333

 

If it is Fibromyalgia you may need a hot tub if you don't already own one. Soaking in hot water should help lots.

Good luck.

yes my spa bath is getn used alot lately.. but i have had to turn the jets down to a very low pulse.

I have read an article on a website that said a Dr had rediscovered a potential cure for cancer and other diseases by electricity.
The first 20 mins on his device will kill all your parasites but then you must do it twice more to kill all the bacteria in the parasites, and then the third time kills the viruses in the bacteria.

I saw a BBC program about a Victorian pharmacy and they had a device that actually did this. The woman tried it once and got a massive headache after, as she did it only once.

I think you have killed all your parasites and now you need to kill all your bacteria and then viruses. No I don't mean electrocute yourself. A cheap version is a 9v battery and you touch both terminals at 2Hz for 20 mins and repeat.


My whole family suffers with Ehlers Danlos syndrome, where we have battled with pain since birth. These are the things we use to control the symptoms;

Vitamin E for pain relief (good for burn scars and warts too) Take up to 500mg a day if needed.

Magnesium oil spray for anti inflammatory and helps with sugar digestion-an A&E Dr told me no one gets enough of this anymore, whilst treating me a few years whilst giving me some Mg+.

Voltarol gel helps with the local pain. (I have had a dislocated shoulder for two months, so I used this a lot recently.)

Visualisation-where you imagine the pain outside your body and you are pain free.

Hope this helps.

Originally posted by Char-Lee
reply to post by Vamp333

 

It sounds just like my Lyme disease. Look it up and check. I have had good results with astragalus and colloidal silver

It kept the pain down for years.

You know something interesting I read was that many of the unknown diseases and also many known are actually caused by parasites and they are only now starting to realize that the little critters are killing many many people... heart attacks and kidney disease, you name it and they feel many may have surrcumed to parasites.

just had a read about Lyme disease .. it doesnt sound like what i have at all but thanx

I'm a single momma too Vamp. Mine is 7. Mine has grown up with this - and he is an angel about it and we have adapted. I snooze while he watches his programs. We are together - and he will talk to me and I do answer, it is more like cat naps but they help me.

You didn't post where you are but I wanted to let you know weather and light seems to affect my flares. I always flare this time of year - I think the reduced daylight effects me, and DEFINATELY the cold. I moved to Florida to improve my quality of life. I couldn't even go up a few stairs when I lived in the snow climate.

Heat in all its forms - wonderful - I live with my heating pad.

I really want to bring you back to this electrocution issue - it is possible this is a reaction. I sincerely hope that this does not end up being Fibro, or that if you are diagnosed your symptoms lessen with time. The first rounds of flares were the worst - they are still no picnic but the worst were the early flares.

I did take gabapentin (sp) for the nerve tingling episodes which were almost unbearable in the beginning. I no longer seem as plagued with those. Please be gentle and kind with yourself - and try very hard to breathe through the pain. You may find you have good and bad spells in the very same day. I had/have the worst of mine from 7-9pm. I wish you the best. Peace ~ Bird

Originally posted by Rhino5
Fibromyalgia is just another name for hypochondria. All the pain is in your head and the doctor (instead of telling you the truth) will take advantage of you by telling you should have check ups, buy pain killers, etc.

Oh please tell me you are being sarcastic! I mean, that would be bad enough, but if your post was sincere... I am truly sad about your misery. Only someone who is so beat down by life would respond in such a demeaning, cruel way to a fellow member who is suffering, and most likely fearful about a pending diagnosis. Where is the love, my friend? I hope you find peace and love soon. I mean that.

OP... all the best to you. My sister, a nurse for 30 years, who was always healthy, energetic, exercised regularly, and NEVER showed any signs of hypochondria was struck with this illness out of the blue 5 years ago. U2U me if you want info on some things that has lessened the pain. I'd post it here but I don't want anyone

reply to post by LittleBirdSaid


thanx bird

im in Sydney Australia.. Spring here at present + the last week it has been hovering around 30-36c temps.

it wouldnt surprise me if it has something to do with the electric shock earlier in the year .. the numb tingling in my arms is similar to the pains i had for the week after the shock.

i have a gap mid afternoon about 3-6pm where the pain seems to calm slightly.. i dont know why.. im in most pain when i first wake... my arms are really bad today.. + have been getn worse over the past 3 days.

im also spacing out alot lately.. really unfocused.. its like my brain just falls asleep for a few seconds.. but it might just be because im tired.

i have a great doctor.. he has been emailling me after hours with blood results + info.. he seems quite worried about the pain im in.. as he knows i deal well with pain usually.. + he is trying to rule everything else out first..

it has made it easier knowing that there are people who understand this pain... so thanku so much again.

I've seen quite a few cases of fibromyalgia. The typical diagnosis from their physican is myalgia and myositis unspecified.

Basically fibromyalgia is a syndrome not a disease. A syndrome is a collection of sypmtoms that tend to be grouped together in an individual yet they have no obvious reason to be existing together.

I hope that you can avoid the diagnosis of fibromyalgia, because every doctor and health care provider from then on will have that label in their head and will see any future symptoms through the fibromyalgia lense so to speak.
It happens more often than not, so I hope you can avoid that situation.

I would say that the recommendations to avoid the pharmaceuticals as much as possible, are good ones. They tend to be addictive.
If you have to, try the over the counter NSAIDS, but be cautious, they have side effects too. Liver, GI tract, and others.

Physical activity seems to be beneficial, as it is for arthritis also, but I would add that you try water aerobics, tai chi, Chi gong, and other gentle forms of physical activity, Don't just go out running or hitting the gym just yet.

Also, since you have multiple symptoms of pain which might not be neurologic, I would have your doctor also rule out psychologic issues, depression and pain go hand in hand.

Additionally, I presume your blood tests and urine tests have been done? How's your magnesium, sodium, potassium and calcium levels? Any signs of chronic infection such as changes in white blood cell counts?
I'd imaging your doctor has taken those things into consideration.

Look also at acupuncture, chiropractic, massage (odd as it sounds since it hurts to be touched, some evidence shows it to be helpful), gentle physical activity, improving your dietary habits.
www.foodconsumer.org...

Virtually all of my fibromyalgia patients have been female, over worked, over stressed, over weight, under nourished (eating too many high calorie nutritionally absent foods), and very involved type A personalities. They research this condition on the internet like crazy, almost to the point that they cannot see themselves apart from their condition, they forgot what life was like before the pain came. Don't fall into that trap.

If your doctor cannot find the cause of your symptoms, they may refer you to a rheumatologist or some other pain management specialist. Be prepared for an interesting experience. Either they will be super busy and only take a brief look at you and recommend cymbalta, narcotics, or some other drug regimen, or they will spend time going through the usual tests and then prescribe cymbalta, narcotics or some other drug regimen.

To make a long story longer, take control of your health, don't leave it up to your doctors alone to just "fix" you, because you won't likely get the results you desire. The standard of care gives about a 50-50 chance of marked to moderate improvement.
www.jrheum.org...

Originally posted by AutomaticSlim
Look also at acupuncture, chiropractic, massage (odd as it sounds since it hurts to be touched, some evidence shows it to be helpful)

Hmm, my advice is to be VERY careful about this. I was getting similar symptoms to OP, and after a 'remedial' massage session featuring deep massage, full-on acupuncture and similar techniques i was in agony for over a month, unable to hold a coffee cup. It really aggravated whatever the underlying problem was. IMHO, osteo at the most, which I did find helpful, but make sure it is very gentle.

Originally posted by wtbengineer
reply to post by Vamp333

 

My wife has had the disease for a few years now and your symptoms sound like hers. And to Rhino5, I think that was your name, the doctor can do tests to confirm autoimmune disease, which fibromyalgia is, so it is not hypochondria. I think the medication my wife was taking that helped was Cymbalta. She says it helps a lot.

Thank you for proving my point!

I don't think you realized it, but Cymbalta would not cure any actual pain unless it is all imagined. The fact that doctors are treating fibromyalgia with antidepressants and not even bothering with pain killers proves my point.

Other people on this thread are saying get sunlight and exercise as to help the pain go away. Both of these are used for people who are depressed. Sunlight can affect your mood, but to actually help pain is extremely questionable. Your telling me she is in pain, but then tell her to do exercise? Hey, genius wouldn't that just make the pain worse. If she has trouble with pain just sitting or lying down, then wouldn't the pain be 10x worse trying to run, do sit ups, bicycle.

To the OP, you could be in actual pain, but if they doctor is saying you have fibromyalgia, then he is saying you are imagining this pain. You will get a different diagnosis if you truly are in pain.

reply to post by AutomaticSlim


my doctor is pretty good.. he takes time with his patients + likes to rule things out rather than just jump in + diagnois one with something... i had never hear about this illness until he mentioned it.. he also mention sock/glove syndrome.. + nerve damage from the elecricution in march..

im one who likes to know what he's talkiing about.. so when i got home i googled a few things he had mentioned that it could be.. Fibromyalgia is the one that described what im experiencing to the tee.. + i feel that is what he thinks it is too as he has been emailling me information on Fibro to read.. he just wants to rule everything else out first.

late last year i did have a few B12 injection as it was extremely low.. but that is all fine now.. other than that im pretty health.. oh + ive been low in iron all my life but i cant take iron tablets as they make me sick in the stomach.

blood test has been done..

full blood count, sugar, thyroid, liver, calcium, magnesium, phosphate, kidneys, B12, infection markers, were all normal.

uric acid level was a little high .. but he puts that down to me not drinking water.

iron stores are 31.. which is low but as i said they have always been.

he did a test called ANA.. This should be 1:80.. mine was 1:640 so he did an additional ANA test that came back ok... but he said he would check it again in 3-6mths.

my folate came back LOW + this is what he is hoping is the cause of my symptoms along with the electric shock i had at the beginning of the year.. so i have started taking folic acid tablets as of this morning.. so we will see if it helps.. fingers crossed.

i wouldnt call myself depressed.. occassionally stressed.. yes.. but not depressed..
im a healthy eater.. love my salads + fresh veg.. + im not over weight.. im 175cm + weigh 64kgs

reply to post by Rhino5


believe me i am in pain... and im not depressed, overweight, or an unheathly eater.. most things non medical that are being suggested i already do.

but i will say this.. + you need to understand this where the exercise is being suggested.. my pain is worse when i stop + relax... as crazy as it sounds that is just the way it is..

i am not saying that i have Fibro.. and it is last on my doctors list of what it could be.. that is why he is going through the process of ruling everything else out first.

i am here + started this thread to find out more about Fibromyalgia from people who have experienced this pain themselves + to learn more about it just in case.. because for example... people such as yourself who have not experienced this pain have absolutely no idea how frustrating it is for a busy active person such as myself to go through.

so if you dont mind i am politely going to ask you to leave this thread.. as it is not a discussion on whether this illness is real or not.. thankyou