I've had Fibro for many, many years, being first diagnosed in 1989 before it was a medically accepted diagnosis. I'm female, but both my father and
my son have also been diagnosed with it. As another poster said, it's more rare in men but it does happen. My father's mother passed away before
doctors began recognizing it but, based on her symptoms, i'm certain she had it, too. We also all have other autoimmune issues, migraines, varying
degrees of anxiety, TMJ and arthritis. I wonder, of course, about a genetic link.
Based on my experience, LittleBirdSaid has given you some good insight and suggestions.
If Rhino5 would like to take the Fibro off my hands and try it on for him/herself for a while, i will gratefully offer it to him/her; s/he can then
report back in a couple of months and tell us how easy life has become and how that whole hypochondria thing is working out for him/her.
Regarding the use of gabapentin (Neurontin) for Fibro: it's a popular treatment but having had it tried on me, i do not recommend it. I had
excessive weight gain with it as well as mood changes, as did the 3 other non-family Fibro sufferers i know. There are very few specific Fibro
medications here in the U.S. but i believe all of them contain gabapentin. Another treatment method common here is the use of an anti-depressant
because some "think" the cause of Fibro might be centered in the same area of the brain that some forms of depression come from. Well, as you said,
you're not depressed (and neither am i), so please consider not allowing them to pawn an anti-depressant off on you.
Here is what has helped me the very most: regular exercise (a gym membership being the best thing i ever did for myself) along with a proper intake
of water .... not just fluids, but water
use of an over-the-counter anti-inflammatory and a (painful) deep tissue
massage when the budget says i can.
If your diagnosis does come back as that of Fibro, don't despair and don't think it will ruin your life. Attitude sometimes really is everything.
The exercise and massage does hurt, but push through and in a few weeks you'll notice a reduction in pain.
A recent study (sorry, can't find the link right now) took a group of Fibro patients and broke them into 2 groups. One group did gentle stretching
exercises and the other group did Tai Chi (sp?) At the end of the study, the stretching group reported only a little improvement; however, the Tai
Chi group reported significant improvement. I've purchased a Tai Chi dvd and am going to add it to my regimen and see if it helps. Who knows? It
might, though! =)
It sounds to me like you're in a really bad flare. Fibro will sneak up on you, so to speak. If that's what you have, you've likely had it for years
and just haven't noticed the increase of pain because it's been incremental. It's impossible not to notice a flare, though.
The issues with your hands and feet may come and go or may stick with you for a while. Develop new habits of how you pick things up in order to avoid
dropping them. Try working your feet and ankles before standing when awaken in the morning or if you've been sitting for a while. Rotate your ankles
in both directions, flex your feet back and forth, bend and unbend your toes, then get up slowly and take your first few steps slowly.
Through the years, i think they've had me on about every medication they thought might help, but the truth is that they're just treating the symptoms
as they don't yet know the cause. Medicating the Fibro patient truly is a case of "practicing" medicine. I think the docs mean well and are trying
to provide relief but it's just a guessing game for them and sometimes they get lucky and one medication or another will help the occasional patient
for a little while and then it's back to square one.
Lastly, if you've had a particularly draining day with a lot of strenuous activity, it's okay to take it easy a little the next day. However, try to
avoid the self-inflicted trap that many Fibro patients put themselves in by giving up on activity ~ that's the absolute worst thing you can do.
I don't know how you'll come to feel about Fibro, but here's my reality with it: I have it. It hurts. It's going to hurt whether i participate in
life or not. Each of us have burden(s) to endure and Fibro is one of mine. I choose whether or not i allow it to control me. For example, today i
can't type more than a sentence without my left hand going numb. I shake the feeling back into it and then i type another sentence. I very much take
a "Scr*w you, Fibro" attitude.
Good luck to you. You have my sympathy and my empathy ... just don't let the damned thing get ya down! =)
edit on 11-11-2011 by SeesFar
because: my fingers don't know how to spell