posted on Sep, 7 2010 @ 06:26 PM
I would just like to give my two cents in on this, I am speaking from personal experience. Much of what everyone is saying on her is true. I was
diagnosed with narcolepsy at 30, Prior to that I was as healthy as can be, played college ball, and was on top of my game. I was prescribed one drug
after another, to help me with an illness that I was told is life long. Finally we found a drug that made me feel normal again while in my system, it
is a form of meth. or speed. It only last for 4hrs and it is a controlled substance. I visit my doctor on a regular basis, and I also have a
neurologist, that I visit.
In 06’ I was in a serious accident (not related) which landed me in a medical center for over a month. I drove my right femur threw my pelvis and
out my back, crushed my left foot, and have “drop foot” as a result of my sciatic nerve being compressed for a week while I waited for a surgeon
to take my case, and fix the multiple fractures I had.
Needles to say I needed a med to help me deal with the pain during and after the long physical therapy I had ahead. They prescribed Oxycodone. Since
06’ I have now had to take this mainly now 4ys after due to the addiction. I have NEVER abused or misused this drug. For the first two years it was
needed for the pain, my doctor asked if I wanted to get off it and use something else, but what ever he prescribed, would also be an addictive
medication. I choose to stay with what I was on because I thought, “why have to deal with the withdrawal of the Oxycodone, only to have to deal with
withdrawal of the next”
Here is the real problem as airspoon mentioned, and if anyone has any help to offer as in a patient advocacy group I would appreciate it.
Every single time! and I mean every time, I need to have my prescriptions filled it is a problem! A serious one, because of the restrictions in
number of days, ect. When I go to the pharmacy I am talked down to, and treated like a drug addict. When my medication starts to run down it becomes
very stressful because I cannot be without it, particularly my narcolepsy meds. I know the hassle I am going to have to go threw to get it so
sometimes I start early, which raises questions. But because of the delays of it sometimes being out of stock, or the mail, or doctor taking there
time to write it, I get paranoid.
This is an even worse situation now, because I just recently moved from NY to TX. You should see the time I am having to get what I need to survive.
Doctors, that won’t even talk to me and want to send me out to someone else, who wants me to go to a pain mgt. clinic, waiting for medical records
to be transferred, It is not fair. The patient is the only one who suffers. I have been slowly working toward ending the use of the Oxycodone on my
own because of the withdrawal. From what I was told it could take years. This is without abusing it, so I cannot imagine what it would be like for
someone who does.