OK - just thought I'd add an update here as I had a bit of a 'non development'
So about 2 months ago I was referred to a doctor with a 'special interest' in this condition, he was very interesting and basically he wanted me to
have a hearing test and an MRI - the hearing test went fine, I still have above average hearing and all that, this seems to be strange for the
doctors, they expect people with tinnitus to have some level of hearing loss? - well, nope, I even get told I have
hyperaccousis
Well the MRI was really specifically to look for a potential tumor on the 8th nerve, that would be an auditory nuroma really, a very unlikely result,
but worth checking out considering my symptoms have been consistent all throughout my medical history since child hood... An auditory nuroma is a
tumour in the the cells that wrap and surround the nerve, that nerve conveys the signals for hearing and also balance - the nuroma in that case is
8/10 times benign in that it is not cancer, but as it grows it does cause pressure on the surrounding structures, there is a facial nerve right up
close, so in the later stage facial numbness on one side of the face is common, also vertigo.
But! - the MRI apparently showed that I did not have this problem.... So I am still none the wiser as to why I have the symptoms I have.
Guess I'll keep pestering the doctors