posted on Feb, 11 2006 @ 09:33 AM
I have seen references to porphyria being the "vampire disease". First off let me explain, there are many types of porphyria. The one that people
are mostly referring to is congenital erythropoietic porphyria. This disease usually affects children, and this is probably 2 of the most severe
types of porphyria affecting skin. Becasue the porphyrins build up so much it is even stored in tissues, bone marrow, skin, eyes, teeth, nails. The
teeth may have a reddish/brownish tint that may look like blood. This is due to the concentration of porphyrins. Whoever said garlic makes symptoms
of any of the forms of porphyria worse, they have made a mistake. Nor does drinking blood do ANYTHING. That is the most ridiculous claim I have ever
heard LOL. The people with this form of porphyria have usually the worst photosensitivy issues, like severe sores and A LOT of hair growth on sun
exposed areas. Even fingers and limbs falling off due to the sunlight damaging the tissue, because people with congenital porphyria have such a
strong concentration of porphyrins. Bone marrow transplantation, and removal of the spleen helps this form of porphyria the most.
Porphyria cutanae tarda, is actually usually acquired, not genetic, rarely it is. And this is the only form of porphyria that is helped by
phlebotomy. You get sores, and fragile skin exposed to sunlight. Other symptoms, said by one of the previous posters are wrong. They were mostly
referring to congenital porphyria (and even some of their information was wrong referring to it).
There are a few others, ranging from protoporphyria, which is a photosensitivy condition that is usually mild to moderate, rarely with sores. Mostly
there is extreme burning on the skin, rashes, etc. Beta carotene supplementation works well for this form of the disease for some people, and some it
is ineffective, as the orange pigment helps protect the skin.
The other forms, such as variegate porphyria, coproporphyria, Acute Intermittent porphyria, and some others, are either skin and attacks, or both.
This means that, they have AIP symptoms (like attacks on the body), which is severe abdominable pain, becoming mentally delusional, severe
constipation, paralysis, etc...Variegate, and coproporphyria can have both photosensitivity and attacks. Attacks can be triggered by chemicals,
medication, not getting enough food.
There is another extreme photosensitivy disease that is called Xeroderma Pigmentosum, which is worse then all the above in the photosensitivity
department. These children and people literally cannot even be exposed to UV light at all because their DNA cannot repair itself after UV damage (we
all get DNA damage after UV exposure, but don't suffer due to us getting it repaired). So these people get skin cancer very quickly (like a 2 year
old having 17 cancerous tumors...), severe burns (can even be third degree), going blind from light, and retardation from DNA damage.
I have a lot of information, but it is too much. This should be a outline of the truth about those 2 diseases.