reply to post by Night Star
Yes, I know how that goes. I already have left side lymphadenopathy. No needle sticks or B.P. left arm, just like you. Mine is due to my burns
however. My lymphatic channels were damaged when I got burned as a baby, and it has affected me all my life.
I didn't know, though, until I was an adult, and got a simple herpes sore on my left thumb. I got red lines going up my arm, and they threw me in the
hospital, thinking I had septicemia! (blood poisoning).
It took YEARS (4) for them to figure it out, a team of doctors from the CDC, and one finally cultured the blister and checked. It was herpes
Prior to that, doctors were checking for infection, fungus, flesh eating bacteria, everything! I was locked up in isolation, all my sheets and linens
were destroyed, and I was fed on paper and plastic.
I even had one doctor tell me that it was all in my head, that I was making it up, doing it for attention. Some doctors just suck. In reality, he was
just mad he couldn't diagnose it!
Anyway, it ended up being left side lymphadenopathy with acute ascending lymphangitis. Lol. A big mouthful.
I no longer get the blister on my left thumb, however. As herpes is wont to do, it migrated to another nerve, and now comes out on the left side of my
head. Bit scarier place, because it is so close to the cranial nerves and the brain, so when I get severe headaches (I have migraines, sigh) I always
keep in the back of my mind herpes encephalitis. It is something I have to be wary of, alert that could possibly happen.
One thing I do hope is, that from this thread, or other medical threads, that people must learn that their best medical advocate is themselves.
No one is watching over you, or cares about your general well being, that is your job. JOB.
Get to know your body, what is normal, and what is not, and if you don't feel you got sufficient answers, go see someone else.
Get to the bottom of things, until you feel well again. Never let someone brush you off. I have learned this the hard way.
Such as, when I had my surgery, the doctor took pictures of my liver, and told my husband, "She has fatty liver, and her liver is enlarged." As I
said, I knew this. I went to a endo, who was going to quit soon. He did an exam, and says to me, "So you have hepatomegally, so what?!" Hepatomegally
is an enlarged liver, and yes, it hurts.
His attitude made me feel like I was being a whiny baby. Well, since my surgery, and the doctor showing the pics to my husband, it IS a big deal. He
was an ass.
But, you see, that's the trap we fall into. Doctor knows best. Well, I am here to tell you, and anyone else reading, they don't always.
They don't always know best, they don't always care, and they don't always have your best interest at heart. Advocate for yourself. Especially in this
world, as it is today.
I very easily, or my doctor, could have said, "Well, insurance denied the precert, nothing else to do." But, he took a stand, and tried again. If he
hadn't, I would have. I would have written a scathing letter to the insurance company, appealing the decision. I was prepared to do just this.
He may well have saved my life. He told my husband, in not so many words, that I have falopian tube cancer that likely has spread to my ovary. He did
the peritoneal and abdominal washings to stage the cancer. I realize what he was doing, and why, and what he was trying to say, without saying it.
He could not come out and say it, until the path report comes back. However, he was looking at my abdomen, including my liver, for mets.
I know that's going to be the answer. I accept that. I just do not know the stage yet. Nor, did he. He couldn't diagnose it yet, because he himself
didin't know, positively. He knew instictively, however.
He got caught off guard, which, I cannot blame him. Falopian tube cancer is VERY rare. In fact, very few women, worldwide, have been diagnosed with
it. If I have ovarian cancer, it is a secondary tumor. He simply was not expecting this, going in. He thought it was going to be a standard ovarian
cyst surgery, and again, I cannot blame him, he had no reason to suspect otherwise.
I just pray right now, that the washings come back clean. The prognosis is much better if they do. Median survival is only 3 or so years if the
washings show cancer cells, even with treatment.
But, this too is a bridge that I shall cross when I come to it. My one saving grace may have been that I had a tubal ligation when I was young. From
the images he took, it appears to be contained in the section of the tube at the ovary end, sparing my uterus. I may be very lucky, if this is the
case. The only fear is, the open end of the tube, and ovary, being open to the abdomen, and the chance of cells free-floating into the abdomen.
Love and hugs. Thanks for reading, just had to get that out there.
edit on 27-2-2014 by Libertygal because: (no reason given)