Here is a good one.
Why can i not get a straight answer out of doctors.
By the way i was a EMT for over 30 years.
In early 2002 i woke one morning feeling like a 18 wheeler ran over me. and it has never went away.
They spent 14 months without coming up with a cause. and during that time i could not sleep but about 6 to 8 hours every third night. and being able
to work is becoming imposable
June 2003 they did a CT scan(looking for neoplastic disorder) and found a enlarged lymph node(5+mm) in my chest and removed and biopsied it as Hyaline
Vascular Variant of Castlemans Disease. but the pathologist never did a staining of the tissue slides or take any photos of the slides. (or never
recorded it if he did)
2004 go in for a followup CT scan and they find a number of 2 to 3 mm lymph nodes and run a lot of lab test.
DX Sarcoidosis then when these doctor can not review the old pathology slides then claim i never had Castlemen's disease.
But when i ask for a explanation they can not give me a clear answer.
In years of searching case studies on the internet i only find two other cases of people having both Castleman's and Sarcoidosis. Both are rare
autoimmune diseases and having both would be very very very rare.
About this same time they DXed the severe body wide pain as fibromyalgia but give me nothing for the fibro telling me my primary care would give me
meds for it. (this was a professor of rheumatology from UCLA)
I see my primary care doctor and he does not believe in fibromyalgia. (this doctor was a contract doctor from a HMO working for the VA under contract)
I fired this doctor and ask for another one.(don't mess with a EMT)
The new doctor gave me amitriptyline and after three months no pain relief. doctor tells me to keep taking it and it will start working.
After 6 months i tell the doctor its still not working and i am getting a lot of side effects.
This doctor tells me that i have to keep taking it as it is the only medication for fibromyalgia and it will work with time. I fire this doctor.
because i am Internet wise and have done my research.
Get a new doctor and ask for Gabapentin or Vicodin (i knew they would not give me vicodin) got gabapentin (I had already tried some bootleg Gabapentin
and knew it would work and i had got some vicodin after some dental work and knew it also worked) plus i wanted the Gabapentin anyway but would not
tell the doctor that.
At the same time i am trying to get the Gabapentin I ask for a sleep study for sleep apnea.(80% of people with fibro have sleep apnea) at first the
doctor does not want to refure me but i insist.(he my have read in my records where i had fired two doctors before him)
Get the sleep study and it finds i have severe sleep apnea. severe primary RLS and Periodic Limb Movement Disorder (PLMD)(no faking that if you are
Gabapentin also works for RLS and PLMD. one drug to treat three disorders.
The sleep study doctor sends me to a neurologist because he has seen this before. They find peripheral neuropathy that was being hidden by the
About this time(mar 2006) i have a heart attack and walk into the VA hospital ER and tell them i am having a heart attack
The Intern did not believe me at first because i was not having chest pain or shortness of breath.(did have left arm cramping, burning under the chin,
neck and across the tops of my shoulders(angina) and profuse sweating.my EMT training said atypical heart attack!!!) he puts the leads (EKG)on me and
gets a Surprise i go straight to angioplasty with a 95% blockage.
Got a angioplasty and a C-pap that night and 12 days later 5 way bypass surgery.
Been on the C-pap ever since as the sleep apnea was likely the cause of the heart attack.
2008 get DXed with diabetes.
Since then i still have doctor treat me like a hypochondriac. Yet i have been right most of the time when i come in with a problem(over 85 % record of
being right )
Don't read my medical records and try to tell me my neuropathy is caused by my diabetes.
Try to tell my i never had Sarcoidosis even though its outside there medical specialty.
Since i have been under the care of the VA every VA doctor has my complete medical record at the click of a computer keyboard. yet i have to correct
them all the time and give the month and year of when things started.
they treat me as a drug seeker and its almost imposable for me to get even vicodin when i really need it.
but they have no proof what so ever that i am a drug seeker and in fact i only would use Vicodin or any other narcotic only when i absolutely need it
and only for as long as absolutely. (my dentist(non VA) gives it out like candy and i save whats left for when i .absolutely need it.for severe
neurological pain )
I would hate to be someone that has parts of there medical record at at different hospitals
The biggest thing i am glad of is my training as a EMT 35 years ago and that i kept up the training for all those years.
And the biggest heartburn for my doctors is i was a EMT for all those years because i understand when something is wrong and get it checked out. I
also understand when i am getting bogus answers.
edit on 2-12-2011 by ANNED because: (no reason given)