Cluster headaches,what causes them?, page 1
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reply posted on 22-2-2010 @ 10:17 PM by jujumon9959
I had cluster headaches most of my adult life, no idea what caused them. They would go away for months and come back with a vengeance for weeks & up to 8 months which I think was the longest episode. Nasty and debilitating, I continued to work even though they robbed me of hours of sleep each night. Went to a ton of Drs., most wanted to prescribe pain meds but they're not for me and never worked anyway. Finally I found a "headache" Dr who suggested a blood pressure med + a 7 day round of cortisone. He explained that neither would help by themselves but when combined they produced a beneficial side effect. After 4 or 5 days the pain began to subside and a week later it was gone--absolutely amazing. I'm 57 now and haven't had and episode for 3 years which is normal for me. When I sense they are returning I call my guy, refill the Rx and take the meds for about 2 weeks.

On the first visit my "headache" Dr., he asked me what it felt like. I told him I'd go to bed feeling fine and fall asleep immediately, only to wake up within 45 min to and hour and my heart would be pounding in my chest. No problem with my heart, I was scared because I could feel the tingling in my head. That's the signal that within 5 minutes it would feel like someone had stuck an ice pick in my eye and began hitting it with a hammer. He laughed and shook his head saying, "you have no idea how many times I've heard that. Now let's see if we can fix it." It was a miracle as far as I'm concerned.

I hope this encourages you to continue looking for the right Dr & meds that will help your son.



reply posted on 25-2-2010 @ 12:49 PM by arbiture
reply to post by arbiture



Wow, you can tell from my last post how tired I was. I have ALS which gets worse every day. I cosider it an insult to other posters not to be in good form, and not ramble! Sorry people. Spelling has always sucked, so I can't blame any thing but being lazy. My spell checker is still not working! (Oh the horror...)


reply posted on 25-2-2010 @ 01:21 PM by arbiture
reply to post by JenRecluse



For most people medications can help quite a bit. As preventing them. These are not narcotics, which are only for acute headache's. But much more important headache's can be caused of a benign condition. I don't want to freak you out, but a very small number can be very dangerous. Brain tumors, pre-stoke, or high blood preasure. Having different types can be indicative of multiple causes, but not usually. The fact that you know certain triggers REALLY points to those that are not a major concern. One very commen cause is taking caffiene. But you should not have nausea, which is typical of "classic" migraine, cluster headaches, etc. (But there are always exceptions to most rules...) the odd benign headache can have nausea, but not most of the time.

Please see your MD asap. Even some serious headaches, caught early, can dealt with. This is very important.


reply posted on 25-2-2010 @ 09:39 PM by arbiture
Originally posted by saint4God
Originally posted by DevolutionEvolvd
I've reviewed much of the literature on this subject and it seems quite obvious that magnesium deficiency is strongly associated with migraine and cluster headaches.


Thanks for being on-point Devolution. Star for you . In addition there's information out there that recommends these treatments as well (under doctor care of course):

Ergotamine

Triptans

Local Anesthetics

***********************************

A few things that may help for those with the other two kinds of headaches. Not cures, but significant relief without medication:

For Migraine sufferers, my spouse has those frequently. Cold beverages, cold compress on eyes/forehead and caffeine.

I tend to get Tension headaches, which I handle just the reverse. Hot beverages, heating pad on the neck and/or forehead, NO caffeine (makes it worse).

[edit on 23-2-2010 by saint4God]


Thanks so much for posting your list of other medications which was more up to date then mine. I have had them for about years. Although I mentioned the cold compress and I believe caffeine was mentioned, I have to comment on a few points. As an acute urgent measure I have paristismal/paroximal or mixed headache syndrome in effect garden variety between that and the far worse cluster headaches. People have literally killed themselves in the after math of such insane, horrible pain for dread of having another one. Usually during a cluster headache one is so immobilized, you could NOT kill yourself if you wanted to. At least thats a positive thing. I and some of my friends own a gun. I begged my best friend once to take me out. I keep my gun in a locker at the range, so even if I want to I coulden't hurt my self.
That horrible act would so devastate my family, and I would never again think to do such a thing.

When I begged my buddy to "off me" he got so angry sayng if I ever, EVER
said such a thing again he would whip, kick and more or less torture me to death very slowly. I would not even think I had a headache. A true friend sometimes has to and does just say no. In retrospect I was humiliated by my being such a cowerd, and putting my friend in such a terrible state.
Thank God he was such a true friend. This dude is an ex ranger who today is a martial arts trainer in close protection unarmed combat. He has a double white belt in six forms of the martial arts, and works for my company. Believe me, he could take out, whole nations and, not come close to perspirering. You are right along with caffiene being more of a problem then solution. When compared to mixed headache syndrome chronic caffeine intake like all headache's will make things worse. A caff with drawl will create a c-with drawl thats really kiddy-play. No matter how bad it is.

But it's very important to appreciate we ALL respond to medication in a way specific to our genetic background, (we think the main reason), exposure with selective sensitivity, also genetic specific to the individual. Toxic exposure to the brain by a chemical or mechanical (physical) wound can also be the cause, though its some what rare. Also, I'm on anti-siezure medication, for what was a chronic habit of falling down and going boom, usually cracking my skull hard in the process. Ancient drugs like dilantin are barbatrates, but are not addictive like a classic migriane class problem drug like fioricet (which by the way have 40mg caffeine per tablet/capsule). And you can unless very carefull develop a tolerance to any anti-headache drug, just like you can develop a tolerance to booze. If on any drug such as mentioned you almost certainly will have a sciezure if you stop or even cut down abruptly. You MUST detox in a medical environment. Other wise it's just VERY dangerous.

You don't want to plow your car into some one, crack open your skull, or perhaps the worse danger is to develop status epilepticus. Thats repeated sciezures, one after the other and that can cause memory loss, some times severe and permanant. It can also cause a stroke, and also stroke related death. Other sciezure meds often can help with migraines, and don't present some of the varied problems. I had a stroke in '06, now I'm 50yrs old.

I had a nasty bout of stat. epp, in 2006. I in effect forgot how to type, lost use of my right hand, (I am right handed), good Lord also have bowel/bladder incontinance, and have to wear a diper. How humiliating. It's also hard to walk and since '06 can not not drive (the last one really hurts) I should add I will be giving my gun to a friend who's a cop, and uses the city weapons (which really suck I'm told) Why not? I used to relax by taking out paper targets at the range. He fired it and said in his words was "way cool". Sorry every one for pathetic whining, thats because I despite being a lucky man in my life, I feel sorry for my self. Pathetic.

I also want to add I think 98-99% of the people on this site are also "way cool". Never a dull moment with this group of the great unwashed!
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