Originally posted by thebox
My partner's mum has been diagnosed with Lupus. She experiences an awful lot of pain and the doctors have pretty much no idea what the disease
actually is or how to treat it.
Does anybody have any info on this?
I have lupus also, it can be tough. If it is in its early stages it can be controlled with lifestyle changes:
Stay out of the sun! If you go out wear a hat and cover up your arms and legs and wear sunglasses. The pain attacks are called flares by sufferers
of this condition. I call them solar flares. These attacks are triggered by the sun or florescent lighting. Also she may find that her eyes have
become light sensitive during these attacks and she should darken her house for a bit.
Next she should take at least one aspirin a day (after checking with her doctor) to keep her blood thin. One of the effects of lupus is called sticky
blood and the aspirin helps to keep this condition at bay. Also the aspirin helps bring down any inflammation in the body, one of the conditons that
usually comes on later in the disease. During major flares I take 4 aspirin a day which is not enough and I just got used to the pain. Also, ice packs
on a swollen neck or back or over the spine give a lot of instant relief if she is in the inflammation stage.
Eventually many sufferers develop high blood pressure which then causes kidney damage, so she might want to go easy on eating a lot of protein, think
chinese with lots of veggies or fish and veggies and rices and pastas. Also the net claims that potatoes, tomatoes, eggplant, bean sprouts are
trigger foods for attacks, but I have never noted any correlation from these foods and my flares.
The doctor will probably put her on a course of quinine prescriptions and steroids, these have many side effects which vary greatly between people.
After years of this and learning the rules to follow many people go off the medication and try to control it by diet and controlling their environment
and with aspirin.
It's a difficult conditon to describe, it varies and takes many different forms but the triggers are the same, so if her symptoms don't match mine,
doesn't matter, she should still stay out of the sun and follow the above.
The whole point is to avoid the flares. The flares cause the damage. Flares can last 2 days or 2 months, it is mostly inflammation within the body,
so stay cool, out of the sun, use ice packs, take aspirin, eat right, and try to exercise.
Praying for her health,