reply to post by metodex
Originally posted by MidnightSunshine
reply to post by smilesmcgee
Smiles . Well the only thing he eats from the store are fruits, veggies, and a few other things like drinks and snacks made from fruit or veggie.
The bulk of his diet we purchase from companies that make low-protein foods. We buy pasta, rice, bread, cakes, and many ingredients that we use to
make things like pancakes, cakes, cookies, or breads. It's a very limited and boring diet, we are always looking for new ways to change things up.
It dosen't help that he is picky and dosnt care for a lot of the things he can eat a lot of!!! LOL thanks for your question!
I kind of thought I did. I did forget to mention the "NEVER EVER FOODS"
No meat, fish, nuts, milk, eggs cheese....
Also didn't mention we can also buy low pro cheese, we do a LOT with that...grilled cheese, pizza(low pro crust) w/ veggies, mac n cheese, soups,
His favorite foods are mac n cheese, pickles, broccoli, french fries, and cola
Because my son is so limited in his diet, I let him get away with some things... Like drinking pop or energy drinks.
Things are different for him. Like this weekend, It's Halloween!!! He went trick or treating till about 10 years old, then he got tired of getting
candy for me
Kidding...But it did suck to have to dump out his pillow case every year and separate it. He can eat as much 'candy' (nerds,
smarties, jollyrachers, peeps, starbursts...) as he wants, just no chocolate. He never really cared for candy though...He next to never eats it now.
AND holidays are a little different for him at first, but we are lucky to have (for the most part
) a pretty smart family, and my Mum and Aunts
learned what to do for him, so his special diet to us was and is..Just the way it is.
I get A LOT of people who say things like "Oh my god that's awful,poor thing...or...I don't know how you do it...But when it's like that from day
1, It's all you know
I didn't really realize just how much time we spend on his diet until 4 years later when i had a baby without pku.
HEY I JUST REMEMBERED SOMETHING IMPORTANT lol
He barely EVER gets sick. When he was a toddler he got sick a few times like any other kid, but I swear that kid never gets sick now. Seriously,
since he was about 8 years old or so...No colds, No flu.... nothing! He gets an occasional head ache but that's it.
There were other posts above this one that I wanted to comment on and I will
Thank you all for your intrest and replies