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Kaiser Permanente's Division of Research in Oakland, Calif., will conduct the study. The CDC will identify patients in Kaiser Permanente's Northern California region for the study. Northern California has a concentration of self-reported cases of Unexplained Demopathy, according to the CDC. Kaiser Permanente's significant presence in Northern California will help researchers systematically identify patients who may have this unexplained illness, which some have referred to as Morgellons.
It sounds like a freakish ailment from a horror movie: Sores erupt on your skin, mysterious threads pop out of them, and you feel like tiny bugs are crawling all over you. Morgellons sufferers describe symptoms that include erupting sores, fatigue, the sensation of bugs crawling over them and _ perhaps worst of all _ mysterious red, blue or black fibers that sprout from their skin. They've documented their suffering on Web sites. (like ATS)
Some doctors believe the condition is a form of delusional parasitosis, a psychosis in which people believe they are infected with parasites.
Why did CDC select Kaiser Permanente Northern California as the partner for the investigation?
This condition is thought to be rare; therefore, CDC sought a location and an organization that would likely have an adequate number of affected persons to be able to conduct a careful investigation. There are several factors that led CDC to select Kaiser Permanente Northern California as the partner in this investigation. First, Kaiser Permanente Northern California is located in a geographic area where self-reported cases of this condition are concentrated. Second, Kaiser Permanente has a membership that comprises a large proportion of the population in the Northern California area, thereby allowing estimation of rates of the condition in the population. Third, Kaiser Permanente has electronic health records that will allow a systematic method of identifying persons who may have this condition.
Now had you mentioned premier West Coast medical research facilites I would have been much more impressed like Stanford, UCSF etc.
The study will be done in northern California, the source of many of the reports of Morgellons (pronounced mor-GELL-uns).