a reply to: Slinki
Here our "unconventional" approch for MS, work well for us as it seem to have stopped progression for a couples years now. I keep repeating myself
with this but nobody care, especially those with MS ?! Hear it if you find this interesting, if not, this is your choice.
First thing is you need to understand that modern way to treat MS is all bullsh*t. Big pharma love to use MS to sell molecules that did not succed at
their original purpose, neurologist are clueless about this disease and are mostly just "vending machines" for the pharma industries. It is correct to
listen to "official" medical advise when the disease is known, explained and CURABLE. For MS, we have strong evidences it is auto-immune, know a
little on the process of the disease, but that's all. Things have not really progressed since the time of Charcot. If you want to continue believing
the fairy tales neurologist(s) are telling you, then it would be better you stop reading this.
I did not know what is the starting cause of MS, but it seem once started, that the disease fuel itself from the damage it cause, some sort of
positive feedback between cause and effect. One VERY important factor we found is related to alimentation, one possibility is some sort of defect in
glucose energy metabolism at nerve cells. Also there is a possibility that nerve cells have some form of genetic problem making them especially weak
and vulnerable to any form of insults, chemical or biological. My theory is that MS is a collections of many factors that conspire to create some form
of syndrome, collectively called MS. Was alway septical of the "funny" permeable guts theory, but now cannot rule out it may be a factor among many
So sorry to say I have no easy or magical cure to propose, but we found couples of things that seem to greathly mitigate the effects and stop the
If you're still following me, you need to understand that pain medication MUST be stopped. I know, easy to say, as you may consider them the most
usefull medication for MS. Here is the rationale that in fact, pain medication is possibly the worst thing to do when having MS. Pain exist as a mean
developed by evolution to indicate to an organism, be it an ants or a human, that a situation is not favorable in term of survivability for them. Pain
tell you that putting your hand into fire is not a good thing. The pain associated with MS, at least for peripheral neuropathy, is telling you there
is something bad into your organism and there is ongoing damage being done to your nerve cells. The whole concept that pain in MS is simply the result
of damage to "wirings" and it is "phantom pain" and shall be "masked" is incredibly stupid and based on nothing more than guessing.
For peripheral neuropathy, when you have sensation of burn starting at extremities (feets) and rising gradually, this is small fibers type C being
"trigerred". These fiber are sensitive to multiples things like chemicals in blood, and initially are being trigered by the process of MS, and they
have the very bad tendency to sensitive themselves (lower the activation threshold). And when they produce a pain signal, they also produce a
mechanism of inflamation, making them more activated, and then more inflamation. This mechanism is also at work for diabetics, as they too suffer from
peripheral neuropathy, in their case, this is the abnormally high level of glucose that active and sensitise the type C fibers.
What need to be done is to stop the pain medication as it simply "block" the pain signal from reaching the brain, but the activation process of the
type C fibers continue, it is like if they crank up the volume for the brain to hear, since it is now deaf due to the painkiller. If the painkiller
would directly act on those type C fibers, it would be OK but it is not the case.
Then you need to experiment with your diet and discover what make the pain appear, and at what level it have risen, this is a very good indicator for
the many substance that may trigger inflamation and promote further attack against your Myelin. Like us, you may be shocked to discover that you are
intolerent to a multitudes of components of your diet that you consumed innocuously since you were born. For some it can be the gluten analogs, a
multitudes of food preservative, that your system doesn't perform well in high carbs diet, that you have food allergy or intolerance... You may
discover there are hundred of things that your system does not like and respond with inflamation.
The good news is that type C fibers desensitise themselves when you listen to them and remove, at least limit the offending(s) components from your
diet. When I say diet, it include also medication like antibiotics (some are very unfriendly toward nerve cells), and deficiency (if your deficient in
minerals or vitamins).
I can post more if you find this interesting. Take good note I have nothing to sale and I don't want to plug myself as a consultant. Just want to
share my findings at controlling this disease with others as I am quite convinced that they are important.
Be advised however there is nothing easy here, this is what we call fighting a disease, most peoples say they fight a disease like cancer, but in fact
they simply endure and resign to it. FYI EDSS 7.5 stable since couples of years, before this was spiralling toward severity as hell. Now COMPLETELY
pain free, except when indulging in infrequent treat like fast food, but goes back to pain free status promptly. Also completly free of chronic UTI
and no longer in need of antibiotics to control them.
edit on 11-6-2017 by Cofactor because: (no reason given)