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A few weeks into sixth grade, Colman Chadam had to leave school because of his DNA.
The situation, odd as it may sound, played out like this. Colman has genetic markers for cystic fibrosis, and kids with the inherited lung disease can’t be near each other because they’re vulnerable to contagious infections. Two siblings with cystic fibrosis also attended Colman’s middle school in Palo Alto, California in 2012. So Colman was out, even though he didn’t actually have the disease
When Colman was born in 2000, DNA analysis of newborns was still rare. But he had a congenital heart problem that led to extra tests. That, in turn, led doctors to discover that he carried some genetic markers associated with cystic fibrosis. His markers are no guarantee of a disease though, and Colman never developed any cystic fibrosis. Still, his parents disclosed the information when filling out a medical form to enroll Colman in school.
That information made its way to teachers, who allegedly told the parents of the two other students with cystic fibrosis during a parent-teacher conference. Those parents allegedly demanded the Chadams remove their son from school. Eventually the the school district allowed Colman to return after missing a couple weeks.
To experts in genetics law, four letters are conspicuously missing from the legal wrangling: GINA, or the federal Genetic Information Nondiscrimination Act of 2008. GINA bars genetic discrimination in just two cases: employment or health insurance. That obviously doesn’t include getting education and housing and plenty of other situation where discrimination might happen.
It took a few seconds before I understood what you were getting at. Yes, we Yanks tend to see things from the limited perspective of our own country. I'm sure places like the EU will pass laws similar to this, if they're not already in place. But in other countries and regions it's probably going to take more time.
US congress making laws against discrimination is good, too bad for the other 95% of the world?
Oh my! The very thought of that "stirred my loins" so to speak. If we could clean out all 3 branches of our government, and undo all of the partisan gerrymandering, we might reestablish a functional government.
You might need to fire them all first.