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In what can only be described as a harrowing instance of misdiagnosis, a Belgian man presumed comatose for 23 years after a near-fatal car crash was actually conscious and paralyzed the entire time. Rom Houben, whose real state was discovered three years ago but only now made public, could be one of many falsely diagnosed coma cases, raising serious questions about those diagnosed as "vegetative" and, even more frighteningly, the process by which vegetative people are removed from life support.
Houben, now in a facility in Brussels and communicating via a computer controlled by his minimally functioning right hand, came around after his 1983 car accident. But while he could hear every word his doctors spoke, he could not speak to them, nor could he move his body to communicate with them in any way. For years researchers and doctors tried to coax a response from Houben, who all along was trapped within his own body, living a life of frustration with his inability to interact.
"I screamed, but there was nothing to hear," he told the Guardian via his computer.
For over two decades Houben remained in what doctors thought was an unconscious state, though he was fully conscious of the world going by around him. It wasn't until three years ago when doctors wanted to try a new state-of-the-art PET scanning system on Houben that they made a startling discovery: the "comatose" man's brain was functioning almost normally.
For Houben, the discovery of his consciousness by the outside world has been like a "second birth," to put it in his own words. But for science, while the news of Houben's "discovery" is heartening, it will likely rehash the debate over when, if ever, a patient who by all indications of modern science is vegetative should be terminated.
Belgian neurologist Steven Laureys has published a paper on Houben's ordeal suggesting that his case is not isolated. According to his study, as many as 40 percent of cases diagnosed as vegetative may indeed possess enough consciousness to not only communicate, but to actually make considerable progress with the right treatment. Of 44 "vegetative" patients Laureys analyzed, 18 ended up responding to communication.
The idea of losing the ability to communicate with the outside world is terrifying enough, but to then be misdiagnosed and forgotten -- or deemed a lost cause and slotted for termination -- all while possessing fully functioning mental capacities is downright unthinkable. The question "how many times have we been wrong?" is one the medical community is likely loath to ask, but if Houben's case is any indication, it's one that needs to be addressed. If Laureys analysis is to be believed, there should be many more Houben's out there screaming in silence.
originally posted by: Bassago
a reply to: Kangaruex4Ewe
Wow that's pretty horrendous and I can't begin to imagine what it was like for this man. Sounds like a horror story from Edgar Allen Poe.
I'm happy he was finally able to interact with people again, what a strong mind he must have. Honestly I think if that was me I'd have gone stark raving mad just a few years into the ordeal. Probably by 5 years I'd be hoping someone pulled my plug.
Surprising no other brainwave testing machines detected his mental activity though. Someone dropped the ball big time on this it seems like.
originally posted by: Kangaruex4Ewe
How many of us have ever wondered "what if" or had nightmares about being in a comatose state but fully awake inside and aware of everything and everyone around you? You try to communicate in any possible way but you can not. You can't move, you can't open your eyes, and you can't speak out loud either. The only thing you are left with is screaming inside your own head and making some sort of peace with having to endure the torture of being trapped in your own body with no control over who touches you, what treatment you get, etc. Every second of every day the screams in your head continue in hopes that one will finally break through to the surface.
Experts say Laureys' findings are likely to reopen the debate over when the decision should be made to terminate the lives of those in comas who appear to be unconscious but may have almost fully-functioning brains.
originally posted by: wasobservingquietly
a reply to: NarcolepticBuddha
I thought hubby & I had some bad experiences
with doctors & hospitals!
But you win hands down!!!
I had Guillain-Barre & was paralyzed from the bottom of my neck down...It drove me crazy
at least you didn't wake up during the surgery!
Now the world is gone, I'm just one
Oh God, help me
Hold my breath as I wish for death
Oh please, God, help me
Darkness imprisoning me
All that I see Absolute horror
I cannot live
I cannot die
Trapped in myself
Body my holding cell
Landmine has taken my sight
Taken my speech
Taken my hearing
Taken my arms Taken
Taken my soul
Left me with life in hell