FDA Denies New life Saving Brain Tumor Treatment to Kids.Says uses Chemotherapy Instead.

The FDA which is one of the most corrupt organization in America has denied small kids new treatment for brain tumors using a legal clause pretext when the real reason is they are protecting the massively profitable chemotherapy industry profits.

What would you do if your child was denied this treatment by the FDA?

The FDA is condemning children to death by refusing to allow them access to experimental cancer treatments, even though it has the authority to grant such access to terminal patients who have not responded to conventional treatment
Six years ago, 10-year-old Braiden was enrolled in a clinical trial for his incurable brain tumor. The “experimental” drug Antineoplaston (ANP) was the sole treating agent. He went into full remission, and suffered no toxic side effects
An MRI recently revealed Braiden’s tumor has reoccurred. The FDA is now refusing to allow Braiden to go back on ANP even though the treatment has already proven...

articles.mercola.com... um=email&utm_content=art1&utm_campaign=20140325Z1&et_cid=DM41444&et_rid=464903796

The FDA says use more chemo because it makes more money for the chemo makers.

Worse yet, the cancer industry has become a massive for-profit business that is doing everything in its power to maintain the status quo. It is, quite simply, not interested in truly reducing cancer rates; it's interested in treating cancer, using treatments that provide the greatest profits. ANP does not fit comfortably into this for-profit model.

It's incomprehensible to me that some parents are forced to treat their children with chemotherapy and radiation, even when such therapies are KNOWN to be ineffective for a particular type of tumor. Where is the humanity in that? And then when such therapies fail, as they often do, other treatment options are blocked out of industry fears that these alternative treatments may prove effective! Where is the compassion and respect for LIFE? Just as we need to stand up for our right to choose when it comes to vaccines, we need to become engaged in these issues and demand Parents Choice for terminal kids. Getting involved with the ANP Coalition (ANPC) is one way to get this ball rolling.

experimental drugs are just that experimental.

Yes it worked once, as part of a scientific trial,

It may sound cruel but once that trial is over, why would he be any different than any other child with the same type of tumor?

Not trying to play devils advocate, but there are unknown with the drug, and further experimentation outside of a clinical controled trial could have unforeseen outcomes.

protocols exist for a reason.

reply to post by championoftruth


.....and they are ok with cigarettes.

benrl
experimental drugs are just that experimental.

Yes it worked once, as part of a scientific trial,

It may sound cruel but once that trial is over, why would he be any different than any other child with the same type of tumor?

Not trying to play devils advocate, but there are unknown with the drug, and further experimentation outside of a clinical controled trial could have unforeseen outcomes.

protocols exist for a reason.

Glad you can sit back and take a measured approach.

I bet you would sing a different tune if it was your child or if it was you personally.

You view would change instantly.

championoftruth
Glad you can sit back and take a measured approach.
I bet you would sing a different tune if it was your child or if it was you personally.
You view would change instantly.

The above is the kind of thinking that Obamacare is designed to stop. The discussion is already steadily shifting in professional and political circles to: the cost for one to possibly be saved vs the benefit to many being saved for the same cost. Why should any one person's child be more important than anyone else's when there is an essentially fixed amount of spending available.

Go look at Canada and England -- in their "superior" systems these types of decisions are made daily. The problem is, as a parent, you have little choice of other options in those systems. It's where we are headed.

reply to post by championoftruth

That is the only approach available to modern medicine - now.

There maybe 4 - 500 hundred kids diagnosed with AML or ALL - TODAY! ( prolly more !! )

Because there is no magic bullet as yet.
They group newly diagnosed sufferers into different "protocols" .

This is good science - as it shows the results of current chemotherapy strategies -across different groups. Ie: -

Too much of this ! Not too much of that!

See what works best - ( scientifically of course ! ).

The Childrens Oncology professors have have told me - face to face -

" We are dealing with dying children on a daily basis, we hate to have to tell Parents ... "

It is not all about the net ... They would use that - which worked.

Ask the pro's !

you'll not get a truer answer !

benrl
Not trying to play devils advocate, but there are unknown with the drug, and further experimentation outside of a clinical controled trial could have unforeseen outcomes.

Name me a worse outcome than terminal cancer ? Please !! ...

reply to post by championoftruth


would I take illegal and possibly unethical steps that might save a family member?

yes.

does it make it right to put me and mine over anyone elses?

no.

people will do illogical and dangerous things for emotions, including subjecting their child to unknown drugs with unknown effects for emotions.

thats why we need doctors and scientist to be objective.

reply to post by WeSbO


that raises an interesting question,


is death the worst?

i could come up with numerous painful possible side effects,

heres the thing no one can answer that with out proper testing.

The latest I've heard is that the FDA have asked Burzynski to provide other physicians with his antineonplastons for them to carry out research.
The reason they've done this is that Burzynski, even though he's had 40 years to do so, has not completed and submitted any phase II trials but keeps using litigation and legal loopholes to keep his clinic running.
He cites money as being his main obstacle in this even though his clinic turned over $30,000,000 last year (at least!) and that if his trials prove as effective as he likes to make out he would become a billionaire overnight by licencing them.

Unfortunately though it does seem like Burzynski is running a very well organised scam.
burzynskiscam.com...
scienceblogs.com...
www.cancer.org... apy
www.quackometer.net...
www.cancer.gov...
thehoustoncancerquack.com...
www.quackometer.net...
The legal threat from Burzynski to the above blogger is below
www.quackometer.net...

Here's the poor doctor's house...
www.quackometer.net...



Would I take any of my family there?
No.

reply to post by Pardon?


Read my previous post.

The people who deal with this depressing crap - do so on a daily basis.

As well as fielding questions from desperate Parents who may have just jumped off the net ...

Fired up by non-involved - un-informed trolls.

They also deal with the results of - real life results.

They are Human!
They would like to see the end to the sufferage of small children and their Families !!

reply to post by Pardon?


This is the guy who, to avoid scrutiny from the FDA regarding treatment claims, has been running a perpetual trial (pay to enter, of course!) for decades with NO results. Shocking that people would defend this charlatan.

If chemo/radiation did not work and the other treatment did, then what is the logic behind going back to what did not work?
Why would anyone go back to the treatment that did not work, over the one that did?
Makes no sense to me

Part of what they worry about is being sued, so if someone who is ill or dying is willing to sign a waiver saying they will not sue or hold anyone accountable, they should be able to get experimental treatment.

The other part is probably just doctors not being familiar with the treatments, but in this instance that might not be the case.

GetHyped
reply to post by Pardon?

 

This is the guy who, to avoid scrutiny from the FDA regarding treatment claims, has been running a perpetual trial (pay to enter, of course!) for decades with NO results. Shocking that people would defend this charlatan.

Here's the list of his studies which are all on ClinicalTrials.Gov.

www.clinicaltrials.gov...

There are 61 trials.
Out of these 61, only ONE has been completed.
Guess what though?
The results of this study haven't been published even though it was completed in 2005!

Going back to the first post here's an alternative viewpoint to that dished out by Mercola.
Burz ynski

Chemo "therapy" was never designed to heal anyone. It will usher you out of this world that much faster. When you need your immune system the most, "they " come and destroy it. How much sense does that make? There are hundreds of things in nature (physical and non- material) that can cure cancer. There is nothing that is incurable. That is a fantasy concocted by the "medical" establishment. Turn to nature. She was always there to help. Some chose not to listen.

Oannes
Chemo "therapy" was never designed to heal anyone. It will usher you out of this world that much faster. When you need your immune system the most, "they " come and destroy it. How much sense does that make? There are hundreds of things in nature (physical and non- material) that can cure cancer. There is nothing that is incurable. That is a fantasy concocted by the "medical" establishment. Turn to nature. She was always there to help. Some chose not to listen.

Yeah right.

Show me irrefutable evidence of just one of them.
The evidence will consist of a confirmed diagnosis, any previous treatment prior to the "natural" one, concurrent treatments and protocols along with the "natural" one, evidence of regression of disease, evidence of remission of disease.
Testimony is not acceptable.

benrl
experimental drugs are just that experimental.

Yes it worked once, as part of a scientific trial,

It may sound cruel but once that trial is over, why would he be any different than any other child with the same type of tumor?

Not trying to play devils advocate, but there are unknown with the drug, and further experimentation outside of a clinical controled trial could have unforeseen outcomes.

protocols exist for a reason.

What the heck unknowns are there to know when the kid may die anyways. My God, what have we become? Who is the government to say when it should be up to parents and doctors what treatment they try.

And yes it is cruel. That's the point, why shouldn't any other kid get the same treatment. Problem is...the experiment worked, but maybe it worked a little to good, right? Threatening the traditional three treatments and their billions in profits..chemo, radiation and surgery. Don't you find it funny that there are all these cancer research organizations that raise umpteen amounts of money and yet, how long has it been since a new cancer treatment option (approved by the corrupt FDA) has been made available to the public. Screw these ass holes and turn to alternative treatments, there are many life-saving options that have proven effective time and time again, but the FDA will do whatever it has to keep that silent, working their tails off for Big Pharma, as evidenced with the imprisonment of Kevin Trudeau. Our lives matter none...Big Pharma profits are all that matter to the people who we are supposed to rely on to keep us safe...the FDA!

Rant over...

reply to post by Rezlooper


Because if if causes unnecessary suffering but has no effect or even worse shortens the lifespan of the patient or kills them outright we need to know before we start rolling it out to every sick child in the country.

Given this treatment in question has not produced any verifiable results (despite decades of "trials") and costs the desperate parents of children tens of thousands of dollars to enter one of these bogus "trials" it should be patently obvious as to why proper clinical trials are required for any treatment in the first place.

reply to post by GetHyped


But it had already cured him once. What suffering did he have?