Narcolepsy

Vancouver, British Columbia, Canada.

What I really need, is a doctor who will treat me for narcolepsy/idiopathic hypersomnia and prescribe me Dexedrine, Ritalin or Xyrem. Whatever it takes. I don't know. I've never tried them but, all I know is that the medications I'm taking now aren't powerful enough. My Uncle gave me information about a treatment center in the United States that prescribes Dexedrine and Ritalin to Crystal-Meth addicts. Which is what I have become. # you very much.

Though, I believe the underlying problem is my sleep disorder and I can't live a meaningful life without help.

By the way I am sober and clean for 6 months now. And I have no intention of using illicit medications again because this has nothing to do with getting high for pleasures sake. I really am disabled and narcoleptic and I really do need a doctor and medication to help me. Because, since I stopped treating and self medicating myself with crystal meth-amphetamine (which is a form of impure Dexedrine) they quality of my life has suffered dramatically. Once again the symptoms of narcolepsy have robbed me of my ability to lead a normal physical life. Something, I said I would never do again, lead a disabled life, and yet I am. Respecting the laws and system of a country that hasn't rewarded me in kind with the medication I need.

If I just had that, the medication, I could get a job, I could make safe and reasonable plans for the future, (not ones involving me manufacturing my own medications in this sick and perverse game of criminal syndication,) I could participate in a meaningful way in this society and that is the reason I'm going to the United States. Where we hate crystal meth. I believe my basic human rights as defined by the Canadian Charter of rights and freedoms is being violated. I think Dr. Fleming of the UBC Sleep Disorders Clinic knows this and I think he is trying to protect the medical community from a law suit by keeping me disabled.

And, trying to protect themselves from a class action law suit I threatened on behalf of the many people in the Downtown Eastside being denied adequate medical attention for illness and addiction and whose Human Rights are being violated as defined by the Canadian Charter of Rights and Freedoms. I know this to be true.

So, if you could help me that would be great. I could use a lawyer. I'm sure the Mormon Church or some crusading Civil Liberties lawyer can help me with my legal recourse. Or, maybe that lawyer that likes to throw pies in the faces of politicians here. Either way, Canadian Ivory Tower, your days are numbered.

Sincerely yours,

Carlos.
The mean ass muther#er whose the nice one in my circle of friends.
Hells Angels. The real ones.

Enjoy the apocalypse.

What exactly makes you think you have true narcolepsy?
Will you accept it if its proven to you that you do not have narcolepsy?

What you need to have done is a Sleep Study with a Multiple Sleep Latency test to prove that is what is in fact going on. There is not a Doctor out there that is going to accept what you have self-diagnosed with until you have that test preformed. There is no faking or fooling that test, and it will tell if you have sleep deprivation, narcolepsy, or if your just pushing your Doc for drugs.



[edit on 2/8/2007 by defcon5]

I've been to the sleep disorders clinic and I have passed both a sleep latency test and polysomnograph. Both of which confirm I have a sleeping disorder beyond sleep apnea. Leaving only narcolepsy, idiopathic hyper-somnia or klein levine syndrome. All of which whose symptoms are alleviated by either dexedrine, ritalin, modafinil and xyrem.

I am currently on the maximum dose of modafinil and I take paxil for cataplexy. But it does nothing to relieve me of the chronic exhaustion and fatigue I suffer.

As well I both experience all of the sypmtoms of narcolepsy and have informed the doctors of this.

In addition narcolepsy runs in my family, my mother has it as well. So did my Grandmother and one of my brothers shows mild symptoms.

And to top that off I began to experience the symptoms of this disorder after I caught influenza in Mexico. And researchers believe this may be an auto-immune disorder triggered by the flu virus. My mother as well caught the same influenza and began to suffer the symptoms at the same time.

Narcolepsy has devasted my life. And I am extremely impaired and yet I am not being offered appropriate medical treatment. Despite four years of explaining my symptoms to many doctors.

There is a blood test one can now take to confirm beyond a shadow of a doubt the presence of narcolepsy or not. And, oddly enough Dr. Fleming nor any other doctor has suggested it to me.

I am going to take that test in California and here.

So, I'll see. But nonetheless based on symptoms alone a credible doctor would make the diagnosisis of narcolepsy even without further testing. This is stated in the dsm V.

Well first off, I don’t believe that there is anyway your going to get a Doc to prescribe you based on symptoms alone. Doubly so since they having to prescribe a stimulant, and because they have to take your drivers license away if you’re diagnosed with Narcolepsy or cataplexy.

Secondly, I think it would be silly for a doctor to prescribe anything that is basically a narcotic to someone with a history of illicit narcotics usage. I think your going to have a rough time trying to fight that in either country, and I highly doubt that you’re going to find many lawyers that would look cross eyed at the case you’re presenting.

As to the blood test:

· Epworth Sleepiness Scale – This sleep questionnaire asks you to rank whether certain situations make you sleepy and, if so, how sleepy. Your responses will assist your doctor in providing a formal diagnosis.
· Nocturnal polysomnogram - This test will measure the electrical activity of your brain (electroencephalogram) and heart (electrocardiogram), and the movement of your muscles (electromyogram) and eyes (electro-oculogram) and usually requires an overnight stay at a sleep clinic for observation purposes.
· Multiple sleep latency test (MSLT) – This test measures how long it takes for you to fall asleep during the day. Sleep specialists will observe your sleep patterns.
· Blood test – A blood test that measures antigens, often found in people with a family history of narcolepsy, can also be done. The blood test is not conclusive but it can be helpful in establishing the possibility and probability of narcolepsy.

Its NOT as effective as the MSLT in the determination of narcolepsy, so if your MSLT was negative, then I doubt the blood test is going to show otherwise. But hay, go for it, I have been wrong before and it cannot hurt much to have it done.

As to your sleep test, did it also come back positive for sleep apnea, as well as narcolepsy? I did not understand what you meant by passed them, did that mean you were positive for both or negative?

Hypersomnia can have a number of underlying causes, some of which could be from your illicit drug use and its effects on your nervous system:

Hypersomnia may be caused by another sleep disorder (such as narcolepsy or sleep apnea), dysfunction of the autonomic nervous system, or drug or alcohol abuse. In some cases it results from a physical problem, such as a tumor, head trauma, or injury to the central nervous system. Certain medications, or medicine withdrawal, may also cause hypersomnia. Medical conditions including multiple sclerosis, depression, encephalitis, epilepsy, or obesity may contribute to the disorder.

I think I would listen to your doctor if you want to get help, you can always try a different doctor, but then your starting over from scratch again, most likely getting you back to where you are now. If you were told you also have sleep apnea make sure your wearing your equipment correctly, it could be that they have treated the narcolepsy, but improper wearing of the Cpap equipment is causing you to still feel tired during the day.


[edit on 2/8/2007 by defcon5]

You see my problem has been my honesty in asking for help with my addiction to crystal meth and help for narcolepsy.

I should have lied and never told them I was taking crystal meth. But who would do that. Lie about something so important about ones health.

But, as it stands many clinics and treatment centers in the United States offer Dexedrine/Ritalin therapy to treat amphetamine/stimulant addiction. So either way when I go there I will get what I need.

And here in Vancouver the Mayor has been campaigning for some form of alternate drug addiction therapy programs including the prescription of modafinil/dexedrine/ritalin to treat stimulant addiction much the same way they treat heroin addiction with methadone and heroin.

So, either way there is no excuse for my quality of life to suffer.

And you missed the whole point. I threatened to sue them personally and to sue in a class action suit on behalf of all of the drug addicted people here in Vancouver.

And, as well, the point is, I have narcolepsy, it is devasting and I am disabled.

By the way I sent out these two posts to about 500 Politicians and News Agencies in Canada and today the called an emergency cabinet meeting to discuss health care.

I have a valid law suit and both you and I know there is some crusading civil rights lawyer out there who will just love turning this into a national media spectacle.

Have fun while I wag the dog. Enjoy the Apocalypse. Hells Angels.

Oh, and by the way. Why haven't they taken my drivers licence away.

You know how many cars I've crashed falling asleep behind the wheel. All of them. I must have been in about twenty car crahes in my life. And you should see my mother drive. She's worse than me.

I am a menace on the road and a danger to other citizens. And yet I just renewed my licence last week without any medical exam. What am I gonna do I need to get my passport and I lost my ID.

And another thing there is no aviation authority in the world that will allow a narcoleptic or anyone with a history of narcolepsy to fly an airplane. And yet my brother (who recently fell asleep behind the wheel and totalled his car,) has his aviation licence. It's criminal. People's lives are at stake here.

I am considing asking Doctor Fleming to sign off on an aviators licence application in my name. Or, speaking to the FAA about this because this warrants serious criminal litigation.

May you never suffer an illness in a country that has given it all away.

What I am telling you is that no Sleep Doctor is going to prescribe something that you have admitted to having an addiction for. Trying to bad mouth a Doctor for making that decision, and looking for another that is going to feed it, is called “Doctor Shopping”. All doctors and most lawyers are aware of what that is, and I think you would have a tough time finding a lawyer to disagree with a Doctors decision on it. As to fixing Narcolepsy, the doctor has you on a narcolepsy medication at full strength already, maybe your problem is that you’re looking to a Sleep Physician to cure a chemical addiction, which is not his job. As to your law suit, and such, good luck, let us know what happens with it.

Peace
Defcon5

Originally posted by HellonWheels41
Oh, and by the way. Why haven't they taken my drivers licence away.

You know how many cars I've crashed falling asleep behind the wheel. All of them. I must have been in about twenty car crahes in my life. And you should see my mother drive. She's worse than me.

Wow.
They would not allow that to happen in the US, but maybe our laws are different here on it.

I am an American, which is why I am so appalled at the apparent apathy of the Medical Health Care System here in a country which boasts it's national pride and treasure is it's universal Health Care.

Again, I have to point out that I am a drug addict and I am addicted to crystal-meth and that they do treat crystal-meth addiction with dexedrine/ritalin in the United States and abroad.

So, whether or not I am a narcoleptic is a rather moot point since they treat stimulant addiction with the very medication I need.

What I am saying is that, I haven't received any appropriate medical treatment in light of my circumstances given that either way they prescribe dexedrine/ritalin in either case.

You see what I am getting at here? Whether or not I am a narcoleptic or a crystal-meth addict they give you ritalin/dexedrine. But i haven't recieved it for either reason.

And it is becasue I threatened to sue them. Never mind that I am a material witness non-gratis in Canada's largest serial murder trial with much damning evidence pointed straight at the Police, Judges, Lawyers, Doctors and Politicians who slept with those poor girls who where disposed of at Robert Willy Picktons farm. (May justice see the light of day)

So you see my friend, someone is using my disability against me. And I know who it is.

THe OP here, "HellonWheels41" is on global ignore and a post ban for matters unrelated to this thread, you're probably not going to get any reponses on the subject.