Hello! I usually lurk and will comment on the Religion/Spirituality threads as that's my passion. So many of you don't know me, but I know what an
amazing place ATS is, I've been a member longer than this current account - but have always lurked and other names over the years.
My to-turn 21 year old daughter, who has high functioning autism (think: Asperger's) has been diagnosed with a malignant Giant Cell Tumor of the Bone.
Malignant. This is someone that I have been taking to the children's hospital for her bloodwork as they are gentle there and will use the butterly
needle but it is now closed due to covid precautions. She has to date had a fine needle biopsy, 2 CT scans with contrast (think catheter left in vein
while they do the scan), a core needle biopsy, an MRI and a nuclear PET test. She doesn't do people/smells/busyness/sounds. She has panic attacks at
the sight of a needle and when she has to have these tests she scratches her arms and hands and chest raw (part of stimming). This child has struggled
all her life with school, not fitting in, has a 1% memory retention ability and has never kissed a boy, never been drunk, never been on a campout,
never left home without me at her side. She just had progressed (with therapy) to being able to talk to cashiers one on one.
The tumor is growing on the end of her hyoid bone which controls speech, breathing, swallowing, head control, etc.
They want to do surgery, but she is adament she will not do sedatives/anesthesia. She understands fully what is going on and is not in denial or not
able to comprehend her circumstances/future. The family pressure is unreal to make her do what needs to be done. They simply don't get it, and don't
try to understand the autism aspect of things that control her. We are working on her. I have a prayer group assembling (I don't know these people,
but they are kind enough to do this for her) this Thursday and they will pray for her.
I am a huge person of faith - I put all my trust in Jesus for everything and will admit that as hard as this has been to watch her dreams potentially
be destroyed and not see any action from my prayers, I still am holding onto my faith.
We received a call last week saying my Dad has pancreatic cancer and biliary duct junction cancer. He has approx 3.5 months to live. He is currently
stuck in a hospital in a large city undergoing a huge covid outbreak waiting to be transferred back to his small town in B.C.
My husband had a stroke in the pon area of his brain three months ago. He is doing fine, but is more emotional (cries at the drop of a hat). He is
going through various tests right now to see where he's at.
I have severe depression which is currently stable. However, I have felt more and more like just turning off, which I cannot afford to to. I am the
only one holding this family together.
Our family is in a crisis. I just wanted to share and ask for prayers, positive thoughts. Thanks for listening. I just wanted to put that out there. I
have had some people come forward to offer prayers and be there for us, but so many have simply responded with, "I'm so sorry", and then I don't hear
from them. I don't understand people sometimes. I feel very alone some days. Thanks for listening
You guys are the best.
1-3-2021 by hiddeninsite because: typo