Re- Introduction..

Hi guys , I have been here since 2012. Why a re introduction ? Well my life has changed for sure.
I left the Fire service here in the UK aged 50 in 2012 I had enough in my pension pot to get by on and I had a sweating problem, I thought this might be due to job stresses and would clear up when I departed.. It did not but it will..
Fast forward to today and I can just about wobble around and my voice is not working correctly I am mostly stuck indoors but can still Just drive safely..
My father with whom I had a on off relationship as he was sometimes to drunk and sometimes violent. He died at aged 59 after being diagnosed with ALS. two years earlier..
(

Amyotrophic lateral sclerosis (ALS), also known as motor neurone disease (MND), and Lou Gehrig's disease, is a specific disease which causes the death of neurons controlling voluntary muscles. Some also use the term motor neuron disease for a group of conditions of which ALS is the most common.

)
en.wikipedia.org...

I know I have this wretched disease although not as yet diagnosed, my appointment with a Hospital Neurology Dept has been given for September 10th Ho Ho.
I am currently trying to get this appointment earlier although I know there is no cure and I am destined to depart this body within the next few months and so cure my sweating.
I was on such a roll last year Swimming, Walking and Biking 4 times a week super fit in fact until November, I had notice some muscle twitches back in June but thought that was down to my exercise.
I am currently working on my pension arrangements so my wife and 2 older boys are taken care of somewhat.
I plan to arrange myself a quiet non religious cremation ( All above board ) and write my own individual eulogy's for my friends and family to read.
I hope to adventure when gone..
Sorry to report.. TIANDB

PS ( Anyone know how I can stay ? Although I don't want to do a Stephen hawking NOI ) Peace Yall.

a reply to: skywatcher44

As someone who has medical problems all i can say to you is happy thoughts bud , i have worked with a load of firemen over the years retained guys and know what a hard job it can be especially the clean up after words ? and boy did those guys give the Keystone cops a run for their money if a call out came at the weekends or at training on a wed night

cheers for all the life's you saved

and to life e mortal from a pagan

a reply to: skywatcher44

Sorry to read your news skywatcher , good luck for your examination and hope for a diagnosis other than you are expecting , you never know.

a reply to: skywatcher44

Sometimes my heart bleeds. Mainly when I read of news like this about one of the ATS family. This will sound trite and lacking but I wish you the best, and, hopefully, an effective symptom reduction treatment/medication. in as far as that is even possible.

If you feel the need to talk, or just complain with plenty of swearing, there are people here for you. (PM, I'm often here) Thank you for telling us. You are in my thoughts.

Ain't many guys I know who willingly run into burning buildings. My favourite TV show as a kid was about fireman and the crazy stuff they did.

Balls of steel.

a reply to: stonerwilliam

Thanks stonerw.

Thanks gortex. Almost 100% sure I have been ticking down since November not one sight of improvement day.
I live in hope but am accepting of my Karma..

Thanks Lightspeed. I don't really want to linger like this or worse and there is no cure. I have no pain right now TW just a bit of muscle cramping sometimes. I am accepting and looking forward to my adventures however they may ? Arise.

a reply to: skywatcher44


I will pray for you skywatcher.

I know I am probably trivializing this but it's been my life modo... Don't look for what you don't want to find.. ignorant I know. Who knows how many lives would have been saved if they had looked sooner.

You did a tough job. One of those jobs that whether your in shape or not you do it and your body deals with it. Then you retire and the bill comes due. Your nerves could have a lot of problems. I did drywall piecework for over 10 years and didn't realize the damage i was doing till I stopped at 32 and screwed my back for life. Twitching is putting it lightly. 24/7 spasms.

I know I probably don't know your situation and shouldn't doubt your intuition but I hate seeing people thinking the worst.

Your family needs you and there is no equal substitute so don't give up easy.

a reply to: skywatcher44

Well that's just balls. I am so sorry to hear of your ailing health! And having to wait so long for a diagnosis! And if you're just dismissed and sent on your merry way? Don't! Dig your heels in. Get a second or third or 4th opinion. Keep a diary logging every single symptom, being as descriptive as you can, the wheres and whens etc.

I assume your wait is due to public health service(NHS in your case)? It's bloody atrocious it is. I'm not going to go into my own experiences, thoughts and feelings about the matter but I stress the above!

Keep on trucking dude!

originally posted by: skywatcher44
Hi guys , I have been here since 2012. Why a re introduction ? Well my life has changed for sure.
I left the Fire service here in the UK aged 50 in 2012 I had enough in my pension pot to get by on and I had a sweating problem, I thought this might be due to job stresses and would clear up when I departed.. It did not but it will..
Fast forward to today and I can just about wobble around and my voice is not working correctly I am mostly stuck indoors but can still Just drive safely..
My father with whom I had a on off relationship as he was sometimes to drunk and sometimes violent. He died at aged 59 after being diagnosed with ALS. two years earlier..
(

Amyotrophic lateral sclerosis (ALS), also known as motor neurone disease (MND), and Lou Gehrig's disease, is a specific disease which causes the death of neurons controlling voluntary muscles. Some also use the term motor neuron disease for a group of conditions of which ALS is the most common.

)
en.wikipedia.org...

I know I have this wretched disease although not as yet diagnosed, my appointment with a Hospital Neurology Dept has been given for September 10th Ho Ho.
I am currently trying to get this appointment earlier although I know there is no cure and I am destined to depart this body within the next few months and so cure my sweating.
I was on such a roll last year Swimming, Walking and Biking 4 times a week super fit in fact until November, I had notice some muscle twitches back in June but thought that was down to my exercise.
I am currently working on my pension arrangements so my wife and 2 older boys are taken care of somewhat.
I plan to arrange myself a quiet non religious cremation ( All above board ) and write my own individual eulogy's for my friends and family to read.
I hope to adventure when gone..
Sorry to report.. TIANDB

PS ( Anyone know how I can stay ? Although I don't want to do a Stephen hawking NOI ) Peace Yall.

CORN?

It didn't happen on the job.

Over 6,100 people in the UK have been given weaponized corn. And other foods similarly altered.

It's bad news, skywatcher. About as bad as it gets.

It's been going on for at least 30 years, now. Your dad was given some. By your own government. You were, too.

Your family was not. Nor will they ever.


You fight this by stopping any and all behaviors which even might enable the deleterious effects you're suffering.

It's like fighting AIDS, or cancer: 100% CERTIFIED organic food (your wife and kids will try to help, but this is up to you); reduced celphone/device use (I recommend curtailment); a positive outlook on life.

Your sweating will stop in ten weeks. Keep up the regimen for at least another ten. And you won't have to say goodbye to your family.

The Neurology Diagnosis Machine will pretend to speed your case, but they won't. They will confirm ALS.
You have 15 weeks, therefore. To save your own life.

If, after 15 days, you're still getting worse (it will take a week or two for you to start getting positive results), or if they do move your appointment up, in any meaningful way, it means I'm wrong.

I'm not wrong, skywatcher.

As unlikely as all this must sound to you, it's nonetheless true.


Why don't I just Command a miracle? Why this regimen?

The answers are in one of my other threads. It's no great secret, but-

Why ask why?


The Light of the Light of all Creation is with you all the way.

a reply to: TheTruthAtLast

I'm sure you're well meaning - but not as sure that having a negative bent there like saying he has 15 weeks to save his life is going to be very helpful to his already despondant/frustrated state.

Thank's KTemplar.

Thank's Malbosia. I am positive and pushing hard for a speedier appointment. With the hospital visit they will test to rule out most things before any diagnosis. I watched my father fade exactly as I am doing so I presume I have some recent Genetic link as tracing his family back in Ireland shows up no trace.

Thank's auroraaus.

Hi TTAL. I learned to control my sweating mostly by staying more in the shade and keeping things around 22C.
I am on no medictions.
Over the last 6 years I have been fixated on healthy eating, Cutting sugar, Fasting some, Apple cider vinegar,
Herbs ( mainly Rosmary, Basil, thyme, dill, mint, bay leaf ) spices ( Mainly Cinnamon, ginger, nutmeg, cayenne ) , Olive oil, coconut oil, Green Tea, Rooibos Tea, Nettle tea, Good water. Low carb, 5/2, IF, autophagy. Maybe I delayed it some ?
scholar.google.co.uk... ( Autophagy )
Peace to you and Take care..

To add I posted this thread before I realised I was going to wobble some.
www.abovetopsecret.com...

originally posted by: auroraaus
a reply to: TheTruthAtLast

I'm sure you're well meaning - but not as sure that having a negative bent there like saying he has 15 weeks to save his life is going to be very helpful to his already despondant/frustrated state.

To save his OWN life.

If skywatcher is given the diagnosis in September that both he (and they) expect, then we, in turn, will expect him to follow through on THEIR treatment. And then our prayers, obviously, will ask that THEY save his life.

Until then, there's no diagnosis, thus they'll give him no treatment program. Until September.

The things I recommended, by the way, will, for anyone, lead to a healthstate that is optimal. For a man with preexisting health problems, such as skywatcher, 'optimal' may not mean 'admirable'.

But it will give the Light something to work with.

I heal in secret. But a public offer, such as this one which I make to skywatcher, is a bit different.

If I instantly and miraculously healed in a public forum, like this, you can imagine the response I'd get.

And skywatcher did ask: "PS ( Anyone know how I can stay ?...)".

Yes, skywatcher. I know how.

Thinking of you Skywatcher and wishing you the strength and courage you need. Warm hug for you!

Words can’t express how sorry I am for you Skywatcher. I have no health advice to give, like others here, but if you do use suggestions I sure hope they work out positively.

That being said, try not to fear death , and make peace with God in your final months. None of us truly knows when our last breath will be taken.. life is fragile at best. 😕

a reply to: skywatcher44

Thoughts are with you in your time of worry.

New medical breakthroughs occur frequently.
Hope you are one of the lucky ones ...

🙂

Thank you Night Star.. Beautiful image.

Thank you Sheye.. Peace.

Thank you Timely. I am watching.

a reply to: skywatcher44

Just keep us posted ... we care about family here.

😎

Well after my Live apart Wife ranted at my Dozey Doctor then found a Hospital to get me a cancellation appointment
for Monday 21/5 otherwise I could have been waiting until September ( Song there somewhere )
A friend of mine an Angel nurse has arranged Hospital transport. So I will get seen at least before Zombifying.
Just as an interest. ALS Related. UK 32%

Diagnostic Delays Diagnosis of ALS is often delayed and is generally reported months after commencement of neuronal destruction (57). By the time patients enter a clinical trial, their disease may be too advanced for the drug to work (57). The potential reasons for delay in diagnosis include; the general perception of people to avoid visiting physicians for vague symptoms and wait until they are questionably ill (87). Moreover, earlier presentation of ALS symptoms can be confused with multiple other neurological processes including spinal cord diseases, mononeuropathies, and several neurological syndromes that further delay the diagnosis (87). Delayed referral to a neurologist is one of the major reasons for delayed diagnosis (87, 88). According to one observational study, after first consultation by a general practitioner, the referral to a neurologist, on average, takes 7 months (87–89). The average duration between presentation of first symptoms to diagnosis of ALS is 9.3 months, according to El Escorial and Airlie House criteria (87–90). Time to diagnosis can be further prolonged in patients with spinal onset of ALS and age between 65 and 75 years (87, 89). Limited trial centers for ALS also significantly hinder the access to quality health care and enrollment in trial studies (87, 88).

www.ncbi.nlm.nih.gov...

www.hopkinsmedicine.org...
Onwards and Upwards evenually . TIANDB

Since 2012? We are happy you are with us!

a reply to: skywatcher44

Still checking in here. Keep us updated Hun! Hugs!