posted on Jun, 28 2015 @ 08:12 AM
Hi. I have it. It is inherited through the x gene from the female parent. I can discuss it completely, thoroughly inside out, up and down from
start to finish. Probably have some good links and years of experience.
But I don't want to do it here. We'll have to take it to PM. My brother has it, of course. It manifests very differently in males than it does
females. Females are essentially carriers, so your son got this from his mother, if it is truly Alports. The treatment is dialysis for short term
and transplantation for the long haul. They have that down to an art form. He'll be fine, and it could be 10 more years before he even needs it, but
if it's Alport's, he will need it. My father gave my brother a kidney, and he is fine other than some side-effects from the anti-rejection meds.
If you want to talk, I'm available.
edit on 6/28/2015 by ladyinwaiting because: (no reason given)