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Teen Boy Is Youngest to Have Rare Fatal Brain Disorder
For three years, a teen boy in North Carolina developed progressively worsening movement, speech and memory problems, but doctors remained unable to determine the cause of his deteriorating condition.
It was only after his death at age 16 that they found the answer: The boy had an extremely rare brain disorder called sporadic fatal insomnia, which is caused by prions, or abnormally folded proteins. The boy is the youngest person known to have had this disease, according to a new report of the tragic case.
...If a doctor is "faced with a patient with very a unusual neurological disease that cannot be explained by any other cause, then they should start considering the possibility of prion diseases, even if the patient is very young," Belay said.
reply to post by soficrow
They need to check his surgical history (including dental procedures) and his diet.
He either ingested the prions or they were introduced into his body invasively.
The diet thing will be the tough one. He could have ingested neural tissue and never realized it.
Ya, unless they can tell us how he contracted it, all they are doing is scaring the crap out of us.
Are we going to be able to battle this in the future with nanotechnology or something or is this another harbinger of doom?
reply to post by kosmicjack
I think they withhold information to keep from scaring the poop out of people. I mean we cant have everyone moving into perma bubble environments can we?
Mad cow was known to manifest itself in victims in England in as few ten years after ingestion.
Yes. I still wonder what is down the road for me. In addition to consuming UK beef, I ate beef brains once about 35 years ago.
Family hopes for miracle after young mom struck by disease
After months of debilitating symptoms with no diagnosis, doctors this week say Sandi Tucker Kennedy, a 38-year-old wife and mom of four young children ages 2 to 9, is believed to have a prion disease, a family of rare progressive neurodegenerative disorders that take over the neurological system.
“She's actually very young for it,” …
“The neurological condition is going to continue. It's a rapid-moving disease,” Tucker said. “The prognosis is four to 12 months from the onset of symptoms and she's had symptoms for four months now.”
The focus on beef is entirely inappropriate.
My focus is really more on neural tissue being consumed or transferred via invasive surgical procedures. ...I believe the people with the highest risk of prion diseases that cause encephalopathy are people that consume neural tissue from mammals. I can't cite studies, but this is the feel I have for it.
Targeting of prion-infected lymphoid cells to the central nervous system accelerates prion infection
...inflammation did not change the virulence properties of the initial prion strain, but rather accelerated the targeting of the infectious agent to vital areas, resulting in a shorter disease.
...individuals incubating prion disease may be highly susceptible to CNS inflammation. ...During the years or decades of prion disease incubation, especially with low or subclinical prion titers, at-risk individuals are certain to encounter diverse pathological insults, such as viral and bacterial infections, autoimmune disease, or neoplastic processes, all of which may have an inflammatory component. These individuals may develop severe neurological diseases not immediately associated with prion infections due to the dissociation of the putative clinical findings from the accumulation of PrPSc. If so, then the effects of the bovine spongiform encephalopathy epidemic on the population should be looked upon differently.
Dr. Frank Bastian, a neuropathologist at the University of South Alabama in Mobile, said he knew of similar cases of Creutzfeldt-Jakob disease in Alabama, Mississippi and West Virginia.
I read your other thread as well and am trying to understand this. Prions exist regardless but sometimes get too overwhelming for our bodies to handle?
If so - what can we do to reverse this problem?
I heard you say eat a variety of foods and keep the body alkaline (I think you said this). What more can be done - just in case.