reply to post by Openeye
reply to post by Openeye
Hell I'd say keep that dam job, even thou you may be so sick you can barely make it to work, and have to hide every few minutes to puke in
Then maybe, they can afford the $1800/month drugs and then hope they work for them (a LOT quit the drugs because of the side effects).
If you have NOTHING and no prospect for ANYTHING, and no motivation to fight....those drugs may not help. Getting those T-cell counts to 200 is living
on the edge of death and dancing with the devil. And those drugs are no party, kinda like chemotherapy in slo-motion for the rest of your life.
Me and that devil had that dance, and I decided to fight and work my ass off, what little ass I had left, I was nothing but a shell of my former self.
(Joke around a hetero web support chat I visited was we were the 'no butts' - either can't get no butt or don't have no butt.)
Damn, can't they break a leg or something to get free care? That's gotta be cheaper that the $1800 / month it costs for the drugs!
I have sympathy for anyone that has this. But those that choose it? They are real losers, damn stupid, or life has to be really really bad already.
FYI (in U.S.) before Obamacare, if they are NOT already in the system, they had to wait two years after the diagnosis with T-cell counts equal / less
than 200. And dump all their assets if they have any left. T-cells=200 is usually the 6-month mark from death without treatment. Other option is state
ADAP programs, but the waiting lists are so long, people are dying on the list.
When I thought I was losing my job at that 'countdown to death' I looked at my options, and decided my only choice was to fight my employer to keep
my job. Glad I did. My fight...and help from great co-workers who covered for me when I was too sick to cover for myself, got me thru the hard years.
YEARS. Takes that long before you pull out and get where you begin to feel like you have another shot at life.
FYI for Openeye noting the 'shortening of lifespan', that was the accepted wisdom 10 years ago. I think you need to open TWO eyes cause you missed
some new facts. New consensus is a normal lifespan (with the drugs).
I don't need to provide evidence. I AM EVIDENCE (along with thousands of others). I am specifically, documented evidence in the form of NIH A5095
ALLERT study determining expected lifespans for the 2nd-gen treatments. After 25 years of infection, with counts above 1300, and making it way past
the big 50, I plan on another 25 years at least, unless I get hit by the proverbial bus tomorrow. FYI this clinical trail program has ended after
expected to run only 5 years (because most patients were expected to die at that time), then extended to 10 years, then 12, then finally ending this
year with the declaration that a normal lifespan could be expected, after no patients died and all remained healthy. Kinda glad to be a part of that
These people trying this death train for money...I still go with my statements above - stupid, idiots. And I'll play Red (foreman) and add DUMBASS.