posted on Sep, 25 2013 @ 01:09 PM
reply to post by Serdgiam
Great post. Pity is a four letter word, you know? I totally agree. I used to be an extreme workaholic before I got slapped into submission by
chronic illness and put on chemo. I was go go go before that. I worked 90 hours a week, Monday-Sat, 9 am to 1 am, and worked even through lunch.
Used to go to the same place where they knew that I'd pay a great tip if I was given a big table so that I could spread out all the books filled with
computer print outs. Then came the day that life slapped me in the face. It was tough. Was told that I had to make so many changes including
dropping my work week down to manageable levels or else my employer would receive a notice to drop me down to a mere 20 hours a week. No more 3 inch
heels. That one stung, too (I bought Keds with a reclining Bugs Bunny on the side to wear to my appointments--doc was NOT impressed, lol). No babies
(broke that rule X2, still suffer the consequences but I'd do it again in a heartbeat. I chose it and own that responsibility to damaging myself.).
No more sunlight, tomatoes, potatoes (I will be buried with a pile of french fries--they won't even take those from me from my cold dead hands),
alfalfa sprouts, and more. Three words--"chronic, progressive and incurable" and a wheelchair within 10 years were my future according to my
What I learned? Life is short. To cherish my time, my loved ones, my days of good health. When things get bad, I know it'll pass and I will feel
better even if it takes 6 months. At the 10 year mark, I celebrated my not being nearly as bad as it would seem by climbing a butte. I felt like
crap afterwards but it was so worth it. I hope that "wheelchair" doctor felt the big middle finger I stuck up into the sky once I reached the top.
I felt like such a bad a$$. lol There are days where things go terribly wrong and I get so scared. Words can't even express what it's like to be
lying there, so incredibly weak, brain disrupting like mad so that your speech is coming out like gibberish and just watching your kids rough house.
My god I love them. In that moment, I realized that, even if I died right then and there, they made my life perfect. I'd be content.
There are so many things that I would love to express to people that I learned from my experiences. Instead, I keep people online at arm's length.
Most have no clue and when I do talk, most of my friends who have complained have done so with the complaint that I don't take anything seriously.
They get mad at me for it. If I was serious, then they'd just focus on what was wrong and all the negativity. Pass. Biggest thing I've learned
from being chronically ill? You absolutely have to laugh. I take each experience as a learning experience. I learn about the way the body works and
I learn a little about life and what's important. Not such a bad deal.