a reply to: Jennyfrenzy
My apologies for leaving the thread hanging. Life jumped out at me when I was least expecting it and took me down for a while.
Before I go further down this rabbit hole I wanted to let you guys now that I have spoken with my husband about posting here and he has given
permission to speak openly. I also wanted to thank you for sharing Jenny and Flyersfan.
When he and I met it had been 14 years since his diagnoses. Interestingly his first institutionalization was 4 or 5 years later at age 18/19. At that
time no mention or possible connection to the complexities of Addisons was made and even now only one doctor has mentioned the risks of long term
steroid use and Only
in reference to Prednisone. Much like your Aunt he has now been taking hydrocortisone and florinef (essentially
Prednisone) every day for thirty years.
Even now the connection touched upon in your link above is dismissed out of hand, even though we do know that there is a connection between physical
trauma, by this I speak of the illnesses that often times brings about endocrine system failures, and mental health. I can't help but think that if
we could begin to take a more holistic look at treatments early on
, the effects of these stresses long term might be lessened.
To be clear here I realize that my husbands particular mental state cannot be attributed to Addisons alone. The first diagnoses of Bi-polar with
severe psychosis does mirror many of the symptoms that come with long term Addisonian crisis, as you already know. His endo says no they are not at
all related but, this Bi-polar diagnoses came after psychiatric observation and repeated behaviors that we know are also experienced in crisis. As you
know behavioral changes, severe depression, mania, hallucinations just to name a few are known.
The second diagnoses of Narcissistic personality disorder is often times attributed to early childhood traumas. Which as we know also can be the cause
of Addisons. In my husbands case he became ill with an unknown wasting disease that went untreated for almost two years. His parents, to this day say
that they didn't know and thought he was just being dramatic. They still joke that they used make fun, telling people he had a rare tropical disease.
He was left alone and his mother has said to me, more than once, that they just thought he was a weak child and was left alone for days. By the time
he was diagnosed at 14, he weighed 45 pounds.
I try so hard not to be an angry person but typing this even now I feel it wash over me. His doctors now say that I need to run and leave him to his
delusions as it is not healthy for me to engage to deeply with him. That he cannot be helped. It's this very thing that I cannot seem to do, to leave
him again alone. Perhaps I am misguided in that I'm having a very hard time just turning away, although it's likely he will never return home.
My thoughts here turn to others who struggle and my hope is that someone can start to take a good hard look and perhaps immediate neurological support
should be an equal part of any treatment plan early on.