posted on Apr, 15 2013 @ 08:44 PM
I don't know everything you've already done but here's my personal opinions along with any advice I could think of right off the bat;
To me, the 5pm thing changes the whole thing IMO. When something is not as constant or completely randomized, it really narrows the possibilities..
which might be a good thing actually because it rules stuff out leaving less things it could be. I mean, things like infections, disorders, and
diseases, typically don't appear to work on a "schedule," you know?
The whole symptoms in the afternoon thing just really makes it sound like it could possibly be environmental...
Meaning something you're touching, breathing in, eating..etc something that youre getting exposed to or have levels building up throughout the day,
where your body reacts to with.
But bodies can be strange and really surprise you, so I won't rule anything out just in case.
Here's what I would personally do if it were me and I had already gotten some tests done like what you said you have;
1. Make a list of all the physical and mental symptoms and keep it updated if any new ones appear. Then type it up twice.... One with them all written
in order, from most prominent to the least. Another in chronological order from when they first appeared to later appearing.
The lists will help you get the big picture, recognize any trends or patterns (so for a hypothetical example; maybe you realize that all the main
symptoms happen to be somehow related to the nervous system which helps narrow the field significantly). It will document changes that you might need
to look back on for help when playing diagnoses detective online, can be used as a basis for researching the web, and then of course, should be given
to any doctors seen regarding it to increase chances of getting diagnosed & documentation.
2. Keep a daily log with details (times, symptoms, intensities, changes, anything that intensified/alleviated symptoms, things tried in attempt to
help & the effect such as took tylenol). The log can help look and recognize any trends or patterns, and should be printed then given to any doctors
seen to help them understand the situation as a whole better, document it, and help rule out or even inspire to think of possible diagnoses.
3. Think and write down for yourself and again- doctors, anything that had possibly changed right before the episodes started... No matter how
seemingly insignificant or unrelated they may seem to be. You'd be amazed at how some people's bodies have freak reactions to small things. Use
anything that has chemicals in it or anything that could lead to an allergy...nothing is to small (moved, used a cleaning supply in your house or car,
environment change at work, change in drinking water, something very stressful, new laundry detergent, change in diet, change in season/pollen
amounts, painted walls, new lotion, new pet, new medication, new pain in a body part..etc). This could help rule things in or out & maybe lead to
figuring something out.
4. 'If you haven't already, I personally would most definitely some how start a round of broad spectrum antibiotics just in case.. I don't care if
some test results claimed I didn't have any active infection... It won't hurt so the worst case scenario, you do it for nothing... This is in case
you have some type of bacteria, somewhere, any where, (like in a tooth or something), that's levels fluctuate as your body battles continually with
it and then in turn causes things like fever, swollen lymphnodes, fatigue, headache..etc.
Ask the doctor for a script for "better safe than sorry," even lie if you have to and say you have an inner ear infection or something, use old ones
left over from the past that you never took or finished (even if expired or not a full round), or ask friends/family if they have any old bottles of
them laying around.
5. It could be a mold or mildew or something you can't see that just appeared or that you developed an allergy to that you didn't have before (which
happens often). Headache, swollen glands..etc can be possible allergy symptoms.
So to rule out, just try keeping high, constant levels of Benadryl in your system for a few days and see if there's any change at all.
If so, that means it's allergies and you can get your blood taken (not skin test, those failed me in the past showing very different results from my
blood test) and if you find out it's something like dust mites that you developed a severe allergy to, you can get a personalized cocktail of all the
allergies you are positive for and get allergy immunization shots, which will eventually make you not allergic for the rest of your life.
6. Then also try things like- during a symptom episode, eat something sweet with carbs (like cookies or donuts) and drink a whole bottle of Gatorade
then see if it makes any difference.
Body needs change.... So this rules out the chance that you're need for something has increased and so you get a buildup of deficiency throughout
the day. The Gatorade and sweets rules out symptoms related to fluids, electrolytes, and/or sugar.
7. Consider any medications (prescription or not) or anything else your taking... Make sure you're not having side effects or even symptoms from it
crashing out of your system. (For example; you could be drinking alcohol or caffeine and afternoon is when the levels drop in your blood stream
significantly and your body is currently overly sensitive to it, so gets strange symptoms when this happens.. almost like a tiny withdrawal)
8. Make some lifestyle changes to see if it helps them disappeare or even minimize a little.... Worst case scenario, they don't but you'll be
healthier bc the changes are good ones you should do regardless (only you have an excuse to make yourself do it).
Eat better foods, smaller portions, more often, and not past 6:30pm.
Don't smoke tobacco.
Don't drink alcohol or caffeine.
Exercise at least 30 mins a day, (even if it's at home walking fast in place while lifting soda cans in front of the TV during your fav show).
Get at least 6 hours of sleep a night.
Minimize stress & try 5-30 min of meditation a day.
Take a daily multivitamin every day.
Drink lots of water.
Clean often & don't use harsh chemicals for it (wipe dust, vacuum, wash bedding, clean air vents, wipe bathroom mildews, spray basement
You get the point... Anything towards a healthier body & mind to increase strength to beat this thing you have.
9. Use the net! Go and play detective & don't give up! There are many sites with "symptom checkers" where you type in like the top 1-10 symptoms
and it will list possible causes. Use google to find the type of doc you need specialist wise (internal medicine, rheumatologist, hematologist...et).
Go to rateMDs and pick out the best of the best! Post on many forums in case someone else thinks of what it possibly is, relates to it, or even
already solved & beat it themselves. Never give up!
10. If you haven't already, get blood taken beyond just a CBC... Things like toxicology, like for heavy metals and stuff, even hormones (not just sex
hormones but also endocrine hormones like thyroid and adrenal ones). it might take you being the aggressive one and literally telling the doctor what
you want...it's your body. They rarely say no bc there's no harm in being overly cautious and testing everything so they make $ and you get either
diagnosed or peace of mind trying. Give a list to the doc of stuff you want tested and ask them to add anything else they think may help that's not
on it. Ask for one big blood test to look for levels of for things like Ph, ferritin, lead, iron, lactate, calcium, sodium, potassium, magnesium,
BUN, chloride, folate, creatinine, glucagon, phosphate, zinc, TSH, PTT, pyruvic acid, vitamin A..etc.
Please DON'T skip the daily multivitamin thing if you aren't taking one already. It will strengthen all systems like immune to maybe beat this...
Or it could even solve the problem itself (like if you were deficient in a something that was needed as a precursor to make something your body
needed, like a hormone in your blood or neurotransmitter for your nervous system).
Hope even a little bit of this helps in some way and good luck.