I consider it a trust issue, not just because of the HiPPA issues it presents, although HiPPA did make it a federal offense for ones PPI to be sold to
Pharma marketing agencies so that they could buy a target list of potential exploitation, or to be distributed to or discussed with anyone outside of
your health care team without a court order. But see I am a bit old fashioned about my health care in some ways, and a bit more progressive that many
in other ways.
I have had the same primary care physician for 31 years, he knows me we have established a mutually beneficial relationship, I can bring up any and I
mean any potential medical issue I have without feeling the least bit nervous about it, and because of that relationship we are both secure knowing
that he's got all the information he needs to effectively care for me. If I have a semi urgent medical issue during office hours I know I can just
show up and he will fit me in. There are also times when I know that I am in need of a specific medication and I can call him and he will call the
prescription into the pharmacy for me, saving me the cost of an office visit.
A number of years ago I developed a serious illness, I was pregnant at the time and he did not handle obstetrics, so he refereed me to someone he
trusted, so when I developed the symptoms of my illness I just expected the same type of trusted referral to a specialist to address that. Bad move,
the guy was an ass and eventually when I saw where things were heading, possible organ removal, debilitating medical treatments and potential death
laid out for me in the most absolute coldest manner you could imagine, no opportunities for questions or anything I fired him. Then I got a couple of
referrals from my primary physician and I made appointments with them specifically to interview them and see if we could work together as a team. I
was successful in finding one who I could talk to, who was compassionate, and who was up on the latest medical innovations. I have now been clear of
cancer for 21 years
That trust is extremely important to me. After working many years as an industrial analytical lab tech, one of the chemicals I worked with on a
daily basis was determined to cause occupational asthma and extreme sensitization to aromatic organic hydrocarbons, amines and a myriad of other low
molecular weight aromatic substances one year....literally one year before I developed the full range of symptoms. I nearly died, My doctor and I
determined through 3 attempts to reintegrate me back into my job trying various strengths of steroids attempting to prevent the reaction, that it
would be impossible for me to continue in that career. But that didn't end the damage that was done,
You know how heated conversations between smokers and non smokers can become.......the non-smokers angry over potential health effects they will
suffer simply from being near a smoker while they smoke due to the second hand smoke. Well I don't have an issue with smoke but....
Simply open a bottle of nail polish near me and within 15 minutes you'll be calling an ambulance for me, and you can't imagine how difficult it is
to impress that level of immediate health risk on someone who's never heard of it or as a medical profession has seldom seen it, it's an asthmatic
reaction that can take months for me to recover from, and any time I've ended up in the ER due to it they immediately want to blame it one the
typical asthma triggers...cats, dust, mold, second hand smoke, and although I know exactly what I need to get through the initial onset, they become
so intent on telling me it has to be one of the typical triggers they end up arguing with me and delaying the treatment I need.
I have to firmly advocate for myself, but I have to be careful not to piss people off with it....because they could literally kill me with a bucket of
paint, a bottle of nail polish, spraying pesticides and do so in a very short time.
I have a very trusted medical team that works with me, and (while I know at least my primary care team is not sending my records off to some stranger
in some foreign country) I would find it very disturbing if they did.
That's my life they're messing with.