My strange affliction, page 1

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Topic started on 5-2-2013 @ 03:13 PM by Glycon

The following is a brief summary of a medical issue that began at the age of 17. I am seeking answers and help with this as to this day, the doctors no nothing. I will post photo's and exerts of the issue and the medical records once I discover how.

When I was 17 I began to have issues with my hands, it started as swelling and discoloration moving to stiffness. Visiting doctor's I was sent to a range of specialists, arthritis was the theory. Proving it wrong they looked into other possible causes, that's when the necrosis started. Necrotic legions began appearing across my body, growing in severity the closer I grew to my 18th birthday, resulting in my spending it in quarantine in the local hospital and the loss of a finger. Running thousands of tests, blood, X-Rays, scans, cultures, they found found nothing. I'm a healthy person, strong bones, good hygiene, healthy diet, etc. The tests all said the same thing, I was fine. No underlying condition, no known gene mutations such as Factor V Leiden or Raynauds. No diabetes, nothing. Heart rate was strong, every organ functioning like they should, some even better. I don't smoke, drink rarely[snip] for the pain. The problem persists though, severely scarring my body and making my hands very gnarled in appearance.

That's all I can think of for now, but feel free to ask any questions you may have.

As always, thank you for your time.

edit on 5-2-2013 by elevatedone because: (no reason given)

edit on 2/5/2013 by Glycon because: added photos

reply posted on 5-2-2013 @ 03:23 PM by Gwampo

reply posted on 5-2-2013 @ 03:23 PM by inj3ct0r

Check this out
LINK.

I also suggest that you meditate. It can help you to treat many diseases even cancer.

edit on 5-2-2013 by inj3ct0r because: (no reason given)

reply posted on 5-2-2013 @ 03:29 PM by daryllyn

reply to post by Glycon

The first few lines sounded like Rheumatoid Arthritis. I was diagnosed a year ago with that and secondary Raynaud's. My fingers turn all kinds of colors and swell.

Thirty percent of RA patients have what's known as Sero-negative RA; it doesn't show up on any tests aside from imaging if the damage is extensive enough.

Do you still have the necrotic lesions? Or was that a one time/short lived thing?

I also have to wonder if the symptoms could be from more than one condition.

reply posted on 5-2-2013 @ 03:31 PM by Glycon

reply to post by inj3ct0r

That is where it is strange, the bone was fine. It was just the skin, muscle and soft-tissue that had been affected by the necrosis. They even debated attempting to graft new muscle and such to the bone it was in such good condition. I opted out of that though due to my worries about some modern medical methods.

reply posted on 5-2-2013 @ 03:36 PM by Glycon

reply to post by daryllyn

As I said, they did thousands of tests. I have 3 binders full of various results, a few hundred pages a piece. The legions have stopped but the discoloration and minor necrosis continues in my hands, usually taking the very tip of a finger (causing the nail to grow in a dome like fashion) and killing the nerves of that finger. The only one not affected are my thumbs and pointer fingers and the only pain comes from over-use and remains in the knuckles and palm. My family has no history of any blood related afflictions or the such.

reply posted on 5-2-2013 @ 03:37 PM by Dustytoad

reply to post by Glycon

This may sound way off topic, but do you practice magic?
Is Glycon a helper in the search for truth?
Don't work in a lab do you?

And do you have any guesses on what this could be. What does your intuition say? Did you always have it, or can you think of anything that happened around the same time it started?

I have skin issues that seemed related to my search for truth, so it's just a thought.. I don't really think that's what it is, but I have no medical explanation either.

It's not some form of mold? (quess they could have seen that with cultures taken)

edit on 2/5/2013 by Dustytoad because: (no reason given)

reply posted on 5-2-2013 @ 03:43 PM by Glycon

reply to post by Dustytoad

I have felt a draw to Shamanism upon reading while I was hospitalized about Sacred Sickness. I stumbled upon it by accident and felt drawn, couldn't get enough of the knowledge it led to. I've never actively practiced though due to not having a proper teacher and fearing I may accidentally do more bad than good. I have also throughout my life had many experiences with the paranormal but those will be covered in another thread as my story is a rather long one.

My intuition says it's more than I think, and as I child I was rarely sick a few high fevers here and there but nothing else. Now I don't get sick at all, even the flu outbreaks passed right by me even with repeated exposure. Never broken a bone even through my reckless youth. I've been told my body reacts strangely to wounds and I've noticed the same, almost instant scabbing no matter how deep the cut and no matter how small they all leave scars. It does seem to have happened around the time my circle of friends expanded to a few who believed and practiced magic. Though I'm positive they have no connection. I have also experimented with various substances since, nothing artificial, only plants used by traditional Shaman and if anything they seem to halt and sometimes even reverse whatever is causing this though I try to stay sober as much as possible due to work and interactions with society.

edit on 2/5/2013 by Glycon because: answering questions I overlooked

edit on 2/5/2013 by Glycon because: same as before

edit on 2/5/2013 by Glycon because: other details

reply posted on 5-2-2013 @ 03:49 PM by solve

reply to post by Glycon

oh, man. keep swimming,,,,
i have to say this, i have had many deadly spiders, as pets, and they cause soft tissue necrosis, is it even remotely possible, that in your area there could bee dangerous insects? the bite marks are impossible to see, from a small species,, if you think that this could be possible, mix lots of garlic an crhysantheum together with water and spray it literally everywhere, this also kills other small inscets that lives in all of our homes, mites and such... to improve your general health anyway.

edit on 5-2-2013 by solve because: (no reason given)

reply posted on 5-2-2013 @ 03:56 PM by Glycon

reply to post by solve

There are Brown Recluse, Black Widow and some venomous Centipede in my area but the tests showed no sign of any venom's. It was one of the first things that was tested for due to my fondness of exploring wooded areas.

reply posted on 5-2-2013 @ 03:57 PM by daryllyn

RV has many potential signs and symptoms. The manifestations of RV can involve many of the body’s different organ systems, including but not limited to the skin, peripheral nervous system (nerves to the hands and feet) , arteries of the fingers and toes causing digital ischemia, and eyes with scleritis.

Rheumatoid Vasculitis

edit on 5-2-2013 by daryllyn because: (no reason given)

reply posted on 5-2-2013 @ 03:59 PM by Dustytoad

reply to post by Glycon

Ok well, I think your response was interesting..

I also don't ever get sick. I think it's related to my meditation and energy flow. That same meditation and energy flow seems to have fried my nervous system, something like 'kundalini sickness' Now my skin is way too sensitive and instant full body rashes can spark up right at the point of connection between wake and sleep. It causes me to use "medication" (usually alcohol) to keep my nerves from tweaking out.

I'd like to see those pictures.

I can't wait to read your other threads.

reply posted on 5-2-2013 @ 03:59 PM by Glycon

reply to post by daryllyn

If you would be so kind as to share with me how to post photo's I will happily post the ones I have from all stages of this affliction.

reply posted on 5-2-2013 @ 04:02 PM by Dustytoad

Originally posted by solve
reply to post by Glycon

mix lots of garlic an crhysantheum together with water and spray it literally everywhere, this also kills other small inscets that lives in all of our homes, mites and such... to improve your general health anyway.
edit on 5-2-2013 by solve because: (no reason given)

Where does one find chrysantheum ? Is it safe to spray it where a cat could lick it up? Any links or anything? It sounds like something I would like to try.. I hate being bugged.. I wonder sometimes how to clean a bed to get the mites out or whatever else.. Steam?

reply posted on 5-2-2013 @ 04:04 PM by XLR8R

reply to post by Glycon

My work partner had some medical issues she wanted to address. Nothing like what you have but a friend of hers recommended her to an osteopath after the doctors couldn't do anything. She went through a plethora of blood tests. They found she was missing certain ...nutrients or vitamins...what ever it was. They gave her supplements and it helped her greatly. We went for my fathers seasonal depression and they ran similar tests and he's fine now. Check 'em out for yourself. Might do you some good.

edit on 5-2-2013 by XLR8R because: (no reason given)

reply posted on 5-2-2013 @ 04:04 PM by Dustytoad

Originally posted by Glycon
reply to post by daryllyn

If you would be so kind as to share with me how to post photo's I will happily post the ones I have from all stages of this affliction.

Top right of the page click "Tools+" --> "ATS Uploads" --> "select image file" --> Browse computer for file and click it.. Then the photo will appear on the screen uploaded to ATS.. Click on it and it will give you a screen that has codes.. for a picture to show up in thread copy paste the top code there.

Like This:

edit on 2/5/2013 by Dustytoad because: (no reason given)

reply posted on 5-2-2013 @ 04:05 PM by daryllyn

reply to post by Glycon

Do you know how to upload files to ATS?

Click he 'tools' menu, then click 'ATS uploads' which is directly below the 'tools' after you click it, then you will see a button that says 'select image file'. Click that and select the picture you want uploaded.

After you have finished uploading, the picture appears on the page. Click it. After clicking it you will see some codes below it. Copy the one that says to use in a post and paste it into a reply box.

You could edit your OP and add them there so they are at the top of the page.

edit on 5-2-2013 by daryllyn because: (no reason given)

reply posted on 5-2-2013 @ 04:17 PM by Dustytoad

reply to post by daryllyn

I notice the OP said that he doesn't ever really get sick.. reading your link it's proposed that the disease is an over reactive immune system.. These 2 things could be related in this way..

reply posted on 5-2-2013 @ 04:23 PM by Glycon

The photo's have been posted. The first is what happen directly after the swelling begins, followed by shriveling around the bone into a leathery black remnant, like the second picture. They also tested the immune system theory and it came back negative, my immune system reacted normally in the tests they ran which included infecting blood samples with various illness' and such. They said the sickness just wouldn't take. My white blood cells would fight it off normally for a bit, not overly aggressive or anything. The sickness' just didn;t seem to be able to survive in my body. The doctor's even said if it wasn't for the obvious down-sides, they would have requested to run other tests with my blood for potential medicines.

reply posted on 5-2-2013 @ 04:26 PM by solve

reply to post by Dustytoad

you can buy them from your florist,, the oils make the little creatures to suffocate, i dont think its harmfull to mammals because we have lungs, but check it first, this is a good basic remedy.