Originally posted by Wrabbit2000
she's had the tortu...err...nerve conduction tests 3 times to establish it so they couldn't tell her it didn't exist. Although, now? That IS what
she's all but been told. It's crazy.
I have also had a few of those.. They never told me just how bad that damn test is..
Regarding your "do something" statement to your doctors.. get this: My doctors have repeatedly asked me
what I thought we should do next.
They just wouldnt offer any sort of course of treatment! I go to the doctors for them to help me, because I did not go to medical school. How crazy
is this stuff?
A couple weeks ago she was transferred to a new Doctor and a new attitude that I believe borders on criminal indifference. This new one decided
it was a fine idea to take her off the opiate based pain killers. 100%. ....by simply saying 'no more and call us in 4 weeks.' I'm NOT kidding.
That was it. Just 'make an appointment on your way out and see us back in 4 weeks'. No referral for support. No help. No counseling. No weaning off.
Our stories are.. eerily similar rabbit. The same thing happened with me. At the time, I had two broken vertabrae, a ruptured disc, a herniated
disc, a broken hip, and severe neuropathy in one of my legs. They just kept repeating that "narcotic pain medication is not a good long term
solution." Out of curiosity, with your wife, did they specifically use the term "not a good solution for the long term?" That line has been fed to
Due to the stress of the pain (pretty much every day was just me laying in bed writhing for about eight months), I had a seizure which ended up
breaking my hip again
. They still refused to prescribe pain meds until I found a decent doctor, saying "it is not a good long term
(If I've been an ass at times in the last couple weeks on here, it's because I'm up all hours, day and night to be available in support of
someone I love living through a thing no one ever should have to)
Let me be blunt here, your wife is lucky. Up until my last hospitalization, I was trucking through all of this on my own essentially. I had moral
support from family, but was alone on a day to day basis. I had my two dogs, and they meant/mean the freaking world to me because of the support they
can somehow provide. Your wife is.. blessed. And you have my unmitigated respect.
Finally...I got my answer and so did she. January 1st brought new regulations and guidelines meant to curb the abuse and street availability of
what she's been prescribed for a decade. According to him, those "guidelines" have razor sharp teeth behind them for the Doctors and are as
unforgiving as they are brutal to the patients. Basically, *justify* every single case of chronic pain management, as if from scratch or risk
their license to practice medicine in the extreme cases......but that threat doesn't need to BE extreme case for a doctor to take it as serious as
she's suffering for it.
I saw something similar, but it was specific to Kaiser. I had apparently been black listed as a "drug seeker" with "no real cause for pain." Do you
have a link to anything regarding this? Havent been able to find much.
(Anything further in detail to the above I'll be happy to discuss in real time chat here or elsewhere ..or U2U, but indeed...there are issues
for getting any more detailed, as you note)
I really appreciate you speaking out about this rabbit. It has been a difficult time for me, and apparently, you and your wife. Just be happy you
have each other, seriously man. In all this same time period, my father has been diagnosed with osteosarcoma in his spine, my dog died while I was in
the hospital this last time, and.. that is just scratching the surface of the last few years. So much crap.. Sorry for ranting a bit, its been
difficult for me, and I dont want to further burden those around me with my emotional baggage. It felt good to get a bit of it out though, and also
know that I am not alone. It has been a tough five years (total).
Ill send a U2U in the next couple days, there are very, very few people who can truly understand this type of situation and the suffering it
edit on 5-2-2013 by Serdgiam because: (no reason given)
edit on 5-2-2013 by Serdgiam because: (no reason