Evidence Grows; H1N1 shot linked narcolepsy & night terrors, page 1


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Topic started on 22-1-2013 @ 01:42 PM by XxNightAngelusxX
Found an interesting article on Yahoo.



Emelie is plagued by hallucinations and nightmares. When she wakes up, she's often paralyzed, unable to breathe properly or call for help. During the day she can barely stay awake, and often misses school or having fun with friends. She is only 14, but at times she has wondered if her life is worth living.

Emelie is one of around 800 children in Sweden and elsewhere in Europe who developed narcolepsy, an incurable sleep disorder, after being immunized with the Pandemrix H1N1 swine flu vaccine made by British drugmaker GlaxoSmithKline in 2009.

Finland, Norway, Ireland and France have seen spikes in narcolepsy cases, too, and people familiar with the results of a soon-to-be-published study in Britain have told Reuters it will show a similar pattern in children there.

Their fate, coping with an illness that all but destroys normal life, is developing into what the health official who coordinated Sweden's vaccination campaign calls a "medical tragedy" that will demand rising scientific and medical attention.

Europe's drugs regulator has ruled Pandemrix should no longer be used in people aged under 20. The chief medical officer at GSK's vaccines division, Norman Begg, says his firm views the issue extremely seriously and is "absolutely committed to getting to the bottom of this", but adds there is not yet enough data or evidence to suggest a causal link.

Others - including Emmanuel Mignot, one of the world's leading experts on narcolepsy, who is being funded by GSK to investigate further - agree more research is needed but say the evidence is already clearly pointing in one direction

There's no doubt in my mind whatsoever that Pandemrix increased the occurrence of narcolepsy onset in children in some countries - and probably in most countries," says Mignot, a specialist in the sleep disorder at Stanford University in the United States.

30 MILLION RECEIVED PANDEMRIX



Interesting, isn't it?

Here's the link to the article on Yahoo.

The Narcolepsy Shot


reply posted on 22-1-2013 @ 03:15 PM by dollukka
reply to post by burntheships



Thats an old news not a hidden one.. 2010-2011 this was in the news here, so OP happens to find this old news in 2013.


reply posted on 22-1-2013 @ 03:23 PM by burntheships
reply to post by dollukka



Ummm....no the article is actually dated today.


By Kate Kelland, Health and Science Correspondent, Reuters
Jan. 22, 2013 12:03AM PST

Thats hot off the press.


reply posted on 22-1-2013 @ 03:48 PM by SonoftheSun
reply to post by XxNightAngelusxX



I just stumbled across that yahoo article and came back here to see if a thread was already done about it, and found yours. I am glad someone did.

This is troubling, and troubling, in my opinion, being a soft word.

Emelie, the girl from the article is only fourteen and she's on meds for quite a while to fight narcolepsy which was caused by the vaccine.

She reluctantly accepts that to do so, she needs a cocktail of drugs to try to control the narcolepsy symptoms. The stimulant Ritalin and the sleeping pill Sobril are prescribed for Emelie's daytime sleepiness and night terrors. Then there's Prozac to try to stabilize her and limit her cataplexies.


Now if that is not absolutely disgusting enough, I don't know what is. Maybe what some doctors think of the results of mass vaccinations of the H1N1, after the facts.

In his glass-topped office building overlooking the Maria Magdalena church in Stockholm, Goran Stiernstedt, a doctor turned public health official, has spent many difficult hours going over what happened in his country during the swine flu pandemic, wondering if things should have been different.

"The big question is was it worth it? And retrospectively I have to say it was not," he told Reuters in an interview.


Emphasis is mine. I'll say it again. Disgusting !!

S&F OP for bringing this up.


reply posted on 22-1-2013 @ 11:52 PM by NarcolepticBuddha
It is generally accepted that narcolepsy is inherited, but it is also closely linked with autoimmune disorders (go figure, I have the autoimmune component as well.) Perhaps these vaccines are triggering the autoimmune response that is believed to cause narcolepsy. For the record, I have only had one flu shot in my life (which resulted in the flu,) but I had the sleep disorder beforehand.

Narcolepsy is one of the most debilitating disorders I can imagine..and I don't even have to imagine it..I can attest to it. Just imagine feeling severely sleep deprived every waking moment with no hope of relief. And be prepared to be mocked and ridiculed because so few understand the nature of this neurological sleep disorder. My grandmother still thinks of me as a useless, lazy heap and refuses to acknowledge the fact that I was diagnosed with narcolepsy twice--by two different doctors and polysomnography/ MSLTs! Be prepared for your boss to be indifferent when you explain to them why working til 10PM one night and 5AM the next morning plays havoc with your sleep cycles. Be prepared to reevaluate your entire self-worth and role in society.

I do not say this lightly about narcolepsy. I am a cancer survivor and had a 3 year bout involving half a dozen major surgeries and 8 high-dose chemotherapy regimens. I have an autoimmune disorder that attacks the neuromusculature. Left untreated, I will be totally, permanently paralyzed head to toe. I have had attacks where I have been unable to even lift myself out of a chair. I donate a unit of blood (which is not viable for transplant) every 2 weeks to reduce the dangerously high level of iron in my blood (hemochromatosis.) I have had to have hip surgery because steroid treatments (prednisone) have completely deteriorated my femoral hip joints.

After all I've been through--none of that compares to the daily anguish of being hopelessly, incurably drowsy. Oh, and if you're wondering...I've tried just about every med used to "treat" narcolepsy. They are hardly effective at treating symptoms and usually have intolerable side-effects.
edit on 23-1-2013 by NarcolepticBuddha because: (no reason given)



reply posted on 23-1-2013 @ 12:22 AM by XxNightAngelusxX
Originally posted by NarcolepticBuddha
It is generally accepted that narcolepsy is inherited, but it is also closely linked with autoimmune disorders (go figure, I have the autoimmune component as well.) Perhaps these vaccines are triggering the autoimmune response that is believed to cause narcolepsy. For the record, I have only had one flu shot in my life (which resulted in the flu,) but I had the sleep disorder beforehand.

Narcolepsy is one of the most debilitating disorders I can imagine..and I don't even have to imagine it..I can attest to it. Just imagine feeling severely sleep deprived every waking moment with no hope of relief. And be prepared to be mocked and ridiculed because so few understand the nature of this neurological sleep disorder. My grandmother still thinks of me as a useless, lazy heap and refuses to acknowledge the fact that I was diagnosed with narcolepsy twice--by two different doctors and polysomnography/ MSLTs! Be prepared for your boss to be indifferent when you explain to them why working til 10PM one night and 5AM the next morning plays havoc with your sleep cycles. Be prepared to reevaluate your entire self-worth and role in society.

I do not say this lightly about narcolepsy. I am a cancer survivor and had a 3 year bout involving half a dozen major surgeries and 8 high-dose chemotherapy regimens. I have an autoimmune disorder that attacks the neuromusculature. Left untreated, I will be totally, permanently paralyzed head to toe. I have had attacks where I have been unable to even lift myself out of a chair. I donate a unit of blood (which is not viable for transplant) every 2 weeks to reduce the dangerously high level of iron in my blood (hemochromatosis.) I have had to have hip surgery because steroid treatments (prednisone) have completely deteriorated my femoral hip joints.

After all I've been through--none of that compares to the daily anguish of being hopelessly, incurably drowsy. Oh, and if you're wondering...I've tried just about every med used to "treat" narcolepsy. They are hardly effective at treating symptoms and usually have intolerable side-effects.
edit on 23-1-2013 by NarcolepticBuddha because: (no reason given)


I know this isn't going to wound like aserious response, but... have you ever tried taking lthe little black STOK caffiene shots that you get at gas stations? You aren't supposed to take more than two a day, but if you take two at the same time with a cappachino (or three, if you're me, and you need a lethal dose of everything) it really wires you.

I can't imagine what you go through, and I'm not sure how much that could help, but my routine changes fairly often, and I find myself going two or three days without sleep sometimes. Those little shots really help.



reply posted on 23-1-2013 @ 12:36 AM by NarcolepticBuddha
reply to post by XxNightAngelusxX



No, I don't take your suggestion seriously, but it's not your fault. You, and many others, simply do not understand that there is NO relief for this disorder. Treatment pretty much includes amphetamines and other stimulants. They are in reality not very effective at eradicating the drowsiness--no matter what any expert says

Ask any narcoleptic. They will tell you the effectiveness of their meds are dubious at best. That is why this disorder is still called "incurable." Treatment is horribly ineffective in my opinion. Might as well give us all placebos.

When taking stimulants such as caffeine, it does indeed get me jittery and wired, BUT it does nothing for the drowsiness. Imagine that! Instead, it just creates this horrible state of still being incredibly drowsy, but very anxious and jittery. This feeling of drowsy + wired is far less preferable than to just being drowsy.

You know the feeling of being very tired but unable to sleep? That's all you get out of what you're suggesting.


reply posted on 23-1-2013 @ 03:59 PM by XxNightAngelusxX
reply to post by NarcolepticBuddha



I've felt that way before. Probrably not to the extent that you have, but I understand.

A caffeine overdose will do that to you as well. I've experienced it, and I know what you mean.
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