So this may sound a bit like a pity fest of one but I'm super bummed out after having to cut my Christmas dinner short with family after swelling up
like a balloon. I want to sleep, exhausted but I'm in too much pain at the moment.
I'm a complicated case. I have a rare blood clotting disorder and am suffering from Chronic Clot at the moment (bad veins, the vein walls are
thickening, constantly and causing clotting). If you have ever had a charlie horse, or pins and needles in your legs, this is what I'm feeling all
the time. ALL the time. My doc put me on XXX name here but all it did was make me stoned. Hot baths don't help with the pain - it seems nothing
I also have osteoarthritis which is painful at best of times.
So - my question is - for those with chronic pain how the 'eff do you deal with it on bad days?
Do you take herbs? (please don't mention the use of medications or drugs)
Do you find movement and exercise helps?
Seriously, what do you folks do to help with chronic pain?
Edited not to break ats rules
edit on 26-12-2012 by Charmeine because: (no reason given)
Edit per OP request:
I have Factor V Leiden. It's a rare blood clotting disorder that I've had from birth. It is not from an infection. It is not anything except - a
mutation of a gene inherited from my mother. FVL is an inherited disorder - there is no cure for it. It means that your blood is prone to clotting
and most who have FVL wind up on blood thinners for life. Most will eventually die of a blood clot or what we're all fearful of - PE - in the
So really I need to be inventive in finding ways to cope with the pain from multiple symptoms of the disorder. The disorder was discovered in 1991 by
Leiden and there is a family of genes that can mutate and all cause clotting disorders. The only way this disorder can be managed is through the use
of blood thinners. My chronic clotting started up again this summer - my physician figures from my bus trips I took to the mountains, sitting on a
bus for hours on end that did it.
So please - I don't need a diagnosis or tips on diet...just suggestions on how to deal with daily pain - part of living with the disorder.
Thank you all for your responses thus far.
edit on Thu Dec 27 2012 by DontTreadOnMe because: add content