posted on Aug, 12 2012 @ 12:28 AM
First off, thanks for taking the time to read this. It is appreciated,
and for those that respond, i welcome all ideas.
Let me start by a back story, i will try to make it short.
One year ago, i decided to change jobs, the job market around here is not great at all,
and the kids are getting older, and as kids get older they cost more. I have a son who
is 13 and daughter 10. So i looked at several ideas and areas, but most just were not
feesable, so i decided to go over the road as a truck driver. Not the most glamorous of jobs
but the pay is decent and the work is steady. So i got the training needed, got my cdl
and got a job with a major company. My last time out was a long 4 week run. I'm not a
fan of being away from home, but it was worth it knowing the needs of the family would
not be a problem. On my 3rd week i noticed that my feet were swollen,as well as my legs
but i did not put much into it, since i had a lot of drop's in big cities, i just chalked it
up to lots of shifting and clutching.
So i got home for a couple of days, and was glad for it, and my wife talked me into going to
now care to get the swelling checked out, i was not a fan of it, but the next day we ended up
going. Once there, it wasnt 10 min into the exam and now-care took me straight to the E.R.
they figured i was having heart problems, this turned out not to be the case, but they
did a lot of test and set me up with a local doctor. a few days later i went to the local
doctor who advised me my liver was having issues and she would have to set me up with a
So a week went by, stuck at home cant work going nuts, finally the appointment time came.
i get into the specialist office, the first thing she tells me is, "your not dead yet"
which was a total surprise to me, then she said "from what i am seeing of your test you
have around 2-3 years left depending, unless we can get you a transplant" which totally
surprised me, turns out some how some where years ago i had picked up hepatitis C, how is
unknown, and since then it has been destroying my liver. She diagnosed me with stage 4
cerosis of the liver with hepC. Needless to say this was a quiet ride home.
She told me to quit work and apply for disability that day and life as i knew it was over.
I though she was nuts then.. but now, a year later, she was right, life is no where near what
it was, and its a down hill battle.
I got approved for disability 10 months after i applied, and now am working on getting medicare,
which i have to have in order to get a transplant. Since i'm not rich and dont have $540,000 laying
Now to the great minds required.
Medicare will cover the surgery if i am lucky enough to get it, and lucky enough to survive it..
odds are not in my favor at all, but one has to hope, there are many mile stones to come for
the kids and i would like to be there to see them. simple thing as graduating high school is
a real thing i may not be around for.
But there is a LOT that medicare will not cover, the anti rejection medications that are required
for up to a year after a transplant will cost $60K, when you are piked for the transplant you
have to go to a transplant center, which for us is Seattle, you will be there for up to 4 months
so you need a place to live while you are there, plus before the transplant you have to go to
the center for test's and biopsies and other things, you can expect at least a dozen trips,
all of this on what little disability gives you a month is not possible.
So the option is to have a lot of fund raisers to build up enough to cover expenses before the
transplant. which is where i am, i need ideas for fund raisers, there are the normal, silent
auction, chilli feeds, etc, but when you are looking at raising $150K, most of those are a drop
in the bucket. I need a idea or a few that can be done on limited budget that will raise
Ya i know, if it was that easy to raise money everyone would be doing it, but i don't have a option
i either come up with the money to cover the cost of it all that medicare wont cover, (most centers
wont even take you as a paitent unless you have raised enough money to cover the meds and stuff
after transplant). or i will die in a couple of years.
so, anyone have some ideas to throw around? I am asking here because i know this is a group
that thinks outside the box, and has some great minds.
btw, thank you in advance for your input.