I'm In the Hospital with a New Diagnosis: It’s my death sentence in a world where survival is my

I guess if you're a positive person, you could look at it this way... There are much more aggressive diseases you could have. I know someone who has MS FOR ABOUT 5 years now and even had a child 3 years ago (female and Dr said it isn't genetic) she also does MS bike races with her husband. Your story was terrifying, so please don't think I'm down playing it. There are some pretty impressive self injectable meds available, but the cost (hopefully to insurance) is stellar. As you probably know by now it's an auto immune disorder, reading up on what's not good for your immune system (flouride for one) is something I suggest. Best wishes! You seem like a tuff chick, kick its ass!

reply to post by Starwise


You have my prayers for you and your family Starwise. I am saddened by this news.

Im really sorry to here that your going through a tough time, try and keep your chin up and stay positive!

My thoughts are with you. Love sent over the water.

The only thing I'd say, and please take it or leave it, but I have to tell you that you must... MUST remain positive. The mind is very powerful, and you need to fix in your mind that you can live a long full life. Don't sucome to the negative thoughts that are festering with such shocking news. Talk is cheap, and I'm sure some will have a go at me for being naive. I assure you I am not. My Aunt has MS, and a friend of the family also has MS.

My Aunt is one of the most proactive people I know, and extremely positive. A fighter if you will. MS has probably driven her to live far in excess than she had prior to finding out.

To know with conviction in your mind that you must press on, and it isn't going to get you is vital. You can find strength you never knew you had. I'm not the only one who thinks so... read this...

Tackle MS With Positive Thought

MS supposedly lowers life expectancy by 5 - 10 years. It sounds like a lot, but I smoke quite a bit, so I'm pretty sure you'll outlive me Keep up the prepping!!!

All my love to you. Battle armour on and keep going!


Edit: Also, I just found this which might help. It's had a lot of very high reviews and positive feedback/results.

The MS diet

May the hands of the creator carry you softly under his care. May you be allowed to stay mobile and fight on.

My tiny black heart goes out to you and wishes you well.


All the best....

reply to post by Starwise


Someone's struggle with multiple sclerosis. (They used chelation amalgam removal and Gerson therapy.)
curezone.com...

There's also a support group. You could maybe phone them up and get some information about others
who have been through what you have.
Limbo

I've been following ATS for a short while, but your thread prompted me to become a member. I was diagnosed with MS 12 years ago. I also was in healthcare.(Respiratory Therapist) MS is not a death sentance. MS is a very individual disease. Progression is different for each individual and disabilities are also different for each individual. Some people have cognition problems, some have upper body issues, some have lower body issues. It all depends on where the lesions are in the CNS. There are also a few different kinds of MS. Relapsing Remitting MS, Secondary progressive MS, Primary Progressive MS. Most have therapies available that are proven to at least slow the progression or decrease the relapse rates. I was diagnosed with Primary Progressive, which they think is a horse of a different color, at least in the MS world. There are alot of drugs used to tx MS. Most are for relapsing remitting and secondary progressive.
My best advice to you is:
1. Find a good neurologist.Find out what type you have.
2. Get on some tx ASAP. They say the quicker the better.
3. Knowledge is power. Contact the MS society. They have tons of information for the newly diagnosed. Go online there's of info there.get to know the disease. Because of your medical background it won't totally foreign to you.
4.Don't give up hope.
Ms is not easy by any means, but it isn't the end. I double dug my garden this year by hand, sitting the whole time (My legs are very weak) Stop with the doom and gloom, it only makes it worse.
Vitamin D3 is a good idea. The thing about bee sting therapy is that it does appear to help in the short term, but it's due to the body's histamine response. It doesn't help the MS. There are all kinds of theories out there as to the cause of MS- could be environmental, could be viral. I personally feel it's a combination of things that triggers an immune response. But the main issue right now is for you to understand that yes, this is a tough break, but it's not a death sentance. Your kids will love you just the same. You may need their help and support a little more than the average family, but is this really a bad thing? Teaches compassion. You will be ok. Really

Sorry to hear your situation. I haven't read the thread, but want to mention you may want to watch "under our skin" it's a movie about Lyme disease.

What's interesting is they show how lyme can cause MS type symptoms for some people. They give one lady anti-biotics and follow her while she completely recovers. Something to watch for sure.

Good luck!

I just want to say, my mother has had MS for 16 years and is still here. This isn't a death sentence. Don't treat it as such.

My dear little sister, who is now 56 years old, has had MS for 20 years. Yes, it's debilitating. Yet somehow meaningful life goes on. Because she wants it to. It has for her. Actually, I think it's her love of pets that keeps her going. She's been keen on taking in dogs and cats that are in poor health, and somehow they manage a symbiotic relationship. She takes care of the beasties and they take care of her. Everybody improves, day-to-day.

Sorry if this has been posted not a big reader anymore

Link between MS & vitamin D

Relationship between 25OHD serum level and relapse rate in multiple sclerosis patients before and after vitamin D supplementation A study in which 156 RRMS patients were supplemented for 2,5 years with a moderate vitamin D dose (3000 IU/day) has reported a marked reduction of relapses (more than 50%).

The vitamin D3 supplementation increasing vitamin D serum levels, up to 110 nmol/L (44 ng/ml), with a plateau effect beyond this level. Suggesting, therefore, that it is particularly useful to correct vitamin D deficiency in MS patients when present. Vitamin D deficiency (< 100 nmol/L) is present in 90% of the MS patients. Furthermore, because of the plateau effect beyond 110-120 nmol/L, it may not be necessary to prescribe high, not physiological vitamin D doses (beyond 4000 IU/day).

www.vitamindandms.org...

Rare gene links vitamin D and multiple sclerosis

Researchers say this adds weight to suggestions of a link between vitamin D deficiency and MS.

www.bbc.co.uk...

Vitamin D and interferon-beta treatments in MS

There is a link between vitamin D and MS, with higher levels of vitamin D shown to guard against the development of MS in children and young adults. Three papers published this week in the same issue of the journal Neurology, have investigated this relationship further. The first paper confirmed that lower levels of vitamin D are also associated with a higher number of relapses in people with MS.

www.msra.org.au...

Link between MS, vitamin D to be trialled

"We want to investigate whether there is a correlation between a patient's vitamin D blood levels and the prevention of further disease activity, which we can monitor using MRI (magnetic resonance imaging) scans."

He said the link between vitamin D and the inflammatory disease appeared strong, with a 2008 study confirming a significantly higher incidence of MS in places further away from the equator, where there was less sunlight.

news.ninemsn.com.au... min-d-to-be-trialled
Hope this is some use to you, good luck

reply to post by Starwise


I too wish to offer you my sympathies, but also my positive thoughts. MS has also touched my family, as my brother in law was diagnosed last year or so. He too was going downhill. However, he has rebounded remarkably, possibly in part to all the positive energy he has been receiving from us all. Call it positive energy, call it prayer. Whatever you wish. Just know that you are receiving a flood of it from all of us on here!!!

I feel for you bigtime! This condition is serious and the "traditional" treatment is only to prolong you and eventually cut you open. I say this from my mothers experience and all of her friends who have pass or are basically a shadow of there former self . my mother has multiple sclerosis for over thirty years. The good news is in the last five years with gods help and my diligence she has fully stopped it for the last 4 years. Improved mental clarity, cognitive functioning, reasoning, energy, outlook on life, overall health and hormonal levels, vitamin levels, and she does everything on her own now. The bottom line is if I would have not got involved in her life she would be dead without a doubt and came close a few times. Not one attack since nor any degradation on mylan sheath or holes in her brain. want to know more? message me since I am a noob here and can't u2u. I only ask this because I do this all from phone and its difficult typing a lot. I am very knowledgeable in this area and can turn you on to a very good friend and mentor of mine who is a master and has reversed multiple sclerosis in a lady age 30. My mom is 60 this month and doing great!
God bless.

reply to post by Starwise


I hope you will get better soon!! Get a second opinion- they may be wrong. My gut instinct it was some kind of reaction from MEDS..see if you improve in 2 weeks..I will pray for you! I wish you happiness, health, and strength!

reply to post by Starwise

onlinetonegenerator.com...
these are the rife frequencies to use. it cannot hurt to try. It got rid of my ebv in one session! I had that for 20 years. just be careful as the die off and healing reaction is very hard the worse the condition. I would only use one set per day. then go to the next one that says multiple sclerosis.


Multiple_sclerosis_1 (use 5000 for 30min) - 5000, 4992, 23570.5, 3767, 3056.9, 2720,
2466.9, 2252.8, 2213, 2189, 2088.59, 1883, 1875, 1550, 1331, 880, 854, 840, 802,
787, 784, 728, 690, 660, 624, 620, 524, 470, 464, 430, 421, 317, 304.6, 275, 253,
241.68, 235, 224, 218, 166, 143, 80.9, 20
Multiple_sclerosis_2 - 5000, 23570.5, 3056.9, 2466.9, 2252.8, 2088.59, 880, 787, 728,
690, 660, 304.6, 241.68, 80.9, 20
Multiple_sclerosis_3 - 2253, 2467, 2357, 2358, 242, 305, 2089, 3057, 81, 5000, 1550,
802, 880, 787, 728, 690, 660, 20
Multiple_sclerosis_4 - 3040, 5000, 2720, 10000, 470, 120, 240, 300, 328, 728, 880,
2005, 2006, 2007, 2008, 2009, 2010, 2011, 20
Multiple_sclerosis_5 (use 5000 for 30 min) - 5000, 728, 166, 224, 317, 727, 787, 880,
218
Multiple_sclerosis_6 (use 5000 for 10 min) - 10000, 6000, 5000, 3176, 2489, 3057,
2008, 2358, 1488, 2467, 3040, 880, 787, 800, 728, 665, 464, 242, 224, 304, 166, 120,
20
Multiple_sclerosis_brain – 0.3, 140, 158, 166, 169, 190, 199
Multiple_sclerosis_brain_infection – 2.6, 2.8, 5.1, 6.7, 7.2, 7.5, 11.3
Multiple_sclerosis_myelin_sheath_repair – 4.4, 8, 9.4, 9.5, 9.8, 12.6, 13.3, 14.2, 14.4,
14.8, 225, 259, 280
Multiple_sclerosis_secondary - 20, 143, 275, 430, 470, 524, 620, 624, 802, 840, 854,
1550, 2213, 5000, 728, 784, 880, 464
Multiple_sclerosis_stiff_legs - 315.77
Multiple_sclerosis_tremor_or_twitch - 470
Multiple_sclerosis_v (aspertame, mercury, benzene, lead, and toluene can cause same
symptoms. Also use Chlamydia General and Herpes type 6 and see ALS sets, Herpes
general, Blastocystis hominus, Parasites flukes, Shigella, Nocardia, and Herpes zoster) -
2145, 938, 862, 841, 741, 739, 682,


www.ebay.com...
this for sure will not hurt one bit to try. if it helps then all the better.


www.encognitive.com...

READ ANYTHING BY DR MICHAEL NEWTON I PROMISE IT WILL MAKE YOU FEEL 100 TIMES BETTER...PROMISE

reply to post by warriorsbond


Where do you get the frequency hz numbers from? For example how would you treat other conditions?

Ok I looked for Rife frequencies and found this:

altered-states.net...

Originally posted by jiggerj
reply to post by Starwise

 

I am scared and even though I feel as though I have great support from my friends, nobody can ever really understand.

A couple of suggestions:

1. First thing to do before you get too depressed is join an online forum for MS. Obvious reasons are that maybe you won't feel so alone, and maybe others with MS can offer SOMETHING to help you.

edit on 7/14/2012 by jiggerj because: (no reason given)

NOOOOOOO- Do Not Join Support Groups. Continuously talking about the problem, any problem only reinforces your conviction that you have a problem. It is in effect a Negative Affirmation.

Do you watch what you eat?
Here I go again, pointing fingers at MSG and Aspartame....They are Neurotoxins.
You might find a reccomended diet for MS.

you just solidified your diagnoses by announcing it to the world..? why would you do that?

reply to post by Starwise


Dear Starwise,

I believe you said you were a nurse, so you know what the path is that the disease will take. I am sorry for you and your family. Follow the advice that you would give to another, focus on what you can do and not what is taken away. Use the time you have rather than worry about the time you do not. I have told this story before and will repeat it for the rest of my life. There was a woman in Bakersfield California and she was bit by a brown recluse spider. She lost her nose, her arms and her legs. A reporter asked her why she bothered living and the woman said she could still have her grandchildren in her lap and talk to them. That woman has been and always will be an inspiration to me. Be an inspiration to those around you, you can still change lives, the woman I mentioned changed mine. When I lost everything and my wife left for another, what I learned from that woman was still in my heart, what can you do. Not a great answer, the greatest. Peace.