Starwise .. you aren't alone ...
Originally posted by Starwise
All my hopes and dreams of survival into a world where I can survive in a post apocalyptic world has faded
I, too, was a prepper. I was always stocked up and being ready because I know what is probably coming ... Now I just do so for my husband and
daughter. There are no medications in a post apocalyptic world. And I can't function without my medication now. (400MG Plaquinel )
I feel as though I have been given a death sentence.
Yup. I feel that. I understand that. Autoimmune diseases such as MS, Lupus and Sjogrens are systemic and progressive. People who don't have them
say the words, but they don't realize what it means. It's like being stuck between life and death ...
I HAVE MULTIPLE SCLEROSIS
I have Sjogrens. It's manifesting like MS. (which is something that Sjogrens does).
I have a lot of the same symptoms that you have.
I have cried and cried over the past few days…..
I cried for six months straight when I first got hit with this. It's part of the five stages of grief and is expected. You have to cry yourself out.
Burn through the five stages at your own pace. Don't let anyone tell you that you are taking too long in one stage or the other.
I am scared and even though I feel as though I have great support from my friends, nobody can ever really understand.
Been there. Still there. You will find your circle of friends will change somewhat. Let it happen. People come and people go. It's the way of
My life WILL NEVER BE THE SAME…………..I am in mourning……
The five stages of grief. You are mourning the loss of your health and the loss of the life you had. It's understandable. It's expected. I miss
the life I had.
People think that the five stages of grief
are just for when you have a family member
die. But it also works the same for when you are diagnosed with serious chronic illness. You don't have to go through the five stages in order.
You can bounce around in them going back and forth. You can think that you are in 'acceptance' only to find yourself angry the next day.
I have a sjogrens support group. At first it didn't help and I found the meetings to be more depressing than helpful. But the online group is
helpful because people talk about different medications and different things they can do to help ease the symptoms.
BTW .. I have had this disease for probably at least 4 years, the last 2 have been the serious flare up and diagnosis, but after all this time I still
get angry with God. The biggest hit to me with getting this disease is to my faith. It's really confused me in that department.
My suggestion .. find an online MS support group.
is the online sjogrens support group.
Many people with Sjogrens also have MS ... and the other way around.
They might be able to help you find an MS support group.
If you have any questions about autoimmune or meds or anything let me know.
I don't know if I can help .. but I'll try.
edit on 7/14/2012 by FlyersFan because: (no reason given)