Shining bright there little Star! You go girl!

I am sorry you are going through this. I can not imagine how scary it is to have this diagnosis while being so young and a mother to young children. I don't say that to depress you further... I say it because I am in awe of the strength you have in holding it together for them. I hope that makes sense.

I don't have MS, but I am a mother and my u2u is always open to you if you ever run out of other folks to talk to. I can listen to your good times, your b*@!hing, etc. I may not be able to give you good advice on how to deal with MS...but I am a good listener.

I am sending thoughts and prayers to you and yours. Hopefully things will improve soon enough so you can at least go home and gather your thoughts and have some moments of peace to contemplate.

Hugs to you as well. I don't give them often...but you need all you can get right now.

Originally posted by Night Star
Shining bright there little Star! You go girl!

Thank you for hanging in there with me and the positive support
(((((HUGS))))))

Im having good days and bad days. I find that I fatigue so easily. I practice my physical therapy every day. My arm and hand are coming back well, but not my thumb....But I know that will take some time. Sometimes I use a cane when I get tired, otherwise I am walking without it. My walk is strange, not like the way it used to be. I hope it goes back to normal. I still have parasthesias and spasms that come and go. MS is a weird disease......

It has been over 2 months since my symptoms started, sometimes it feels like it will never end. The bills are coming in now and are overwhelming. I have folders for records, bills and meds...I'm trying to stay organized. Sometimes my memory just doesn't work until I am reminded, then all the info floods into my mind like "oh yeah" duh.......

I was approved for my VA benefits...which is good news. I often wonder if I wasn't misdiagnosed while in the Army....I had similar symptoms then, and they discharged me with fibromyalgia, but it went away and would sometimes come back.....While in the Army I had SOOOO MANY vaccinations.....but that was 13 years ago.....BUT it is a coincidence that my FMS symptoms started then but it was so mild....I don't know, I'm just thinking out loud....

I have been told by many people to start a blog.....but really? Isn't writing here the same? Hmmmmmmm

Originally posted by Starwise. I often wonder if I wasn't misdiagnosed while in the Army....I had similar symptoms then, and they discharged me with fibromyalgia, but it went away and would sometimes come back.....While in the Army I had SOOOO MANY vaccinations.....but that was 13 years ago.....BUT it is a coincidence that my FMS symptoms started then but it was so mild....I don't know, I'm just thinking out loud....

Many people associate MS and other auto immune diseases with exposure to chemicals. Is it possible you were in a theater of war or around munitions of some sort? Also, the vaccines have chemicals in their ingredients...

This is also why many people suffering from auto immune diseases are very careful to limit their chemical load as much as possible. It's very difficult. There was a doctor out of NY who tested his blood and then worked hard to limit chemical exposure from either food or the environment. He was shocked at the end of the one year experiment to see just how much was still in his system.

You have to be vigilant.

I think you are doing just fine. You hang in there and keep us posted on your progress.

Today is Mabon and fall Equinox.....I am thankful for many things. Specifically my husband and children who have become my strength throughout this whole ordeal.

I have my days where I stay in bed all day. I run fevers of unknown origin, feel spongy and weak legged most of the time. Then other days I feel great physically, only to find that I cant even make it all the way through the grocery store without a cart to hold onto for dear life. People look at me as though I am on drugs or alcohol. I want to wear a sign that says my diagnosis so people wont stare at the strangeness of how I now walk.

My daily injections suck. They cause painful welts and destruction of adipose tissue. My physical therapy is ongoing. I have been forced to apply for SSDI My job is well, probably over. There is no way I could go back to work in my current position. It appears as though I have a disability that is permanent....So I must learn to live the way I am and work on not getting any weaker than I already am. Fatigue and heat really are bothersome.

I did go to the beach this week. I laid in the sand listening to the ocean waves lullaby my senses.......What a beautiful sound the waves make as they crash on shore.....growing up on the beach and now living so far away from it makes me miss the sound even more.

On a positive note: I am not depressed. Sure I get a little teary when I cant do some things, but it goes away quick enough to change my focus on to something more positive. Since I sit a lot during the day, I have changed the view out my window to beautiful wind chimes, bird feeders and I bought a big beautiful garden windmill that looks like a colorful rainbow dragonfly.....So when I have my moments of contemplation I just look out side and notice the beauty that surrounds me.........

My prayers go out to you and I hope you gain more strength, physically, spiritually and mentally.
I too have been living with a couple of crippling illnesses that have totally changed my life but in the end, I think we all get by.

Family and friends are a real strength.
Just try not let the illness take over you.

I myself use prescribed drugs but mainly alternative medication, diet and exercise.
Although, I have been looking at hemp should I get worse. It's one alternative to so many illnesses.

Again, my prayers are with you.