a reply to: Bedlam
I was sent for a test for asthma. I flunked it miserably. When talking to the doctor giving the test I asked him if the Pneumonia I was diagnosed
with the day before by the same doctor who ordered the test would be relevent. He closed his folder and mumbled something about wasting his time.
The pneumonia was verified by a test too, I wasn't aware till then that a test could show this within eight hours.
I had chronic bronchitis, but that has gone away now after I quit taking beta blockers. The asthma medicines brought my heart rate up to about one
forty, but that is not a problem. When I sit or stand my rate is usually between one ten and one twenty. When I lay down it is around 95 to a
hundred. When on the treadmill stress test my heart rate goes to over two hundred and that is when I start feeling good. When working my heart rate
is between one sixty and two hundred, and I can work hard for hours on end.
Tachychardia is an inconvenience to me. You learn to live with it. Doctors always want to take blood to test it and I am always leery about that
because I have been told many times by different doctors that I don't make blood well. But the doctors retire and the new doctors don't even look
at the old doctors information much. They can't seem to understand that a problem that has gone on for three generations that I know of is
My Temporal lobe epilepsy is a bigger inconvenience because I have to eat foods that interfere with my bloodmaking and they work better than those
that don't interfere. Since I can not take the seizure medications that is about my only option. It is not like full blown epilepsy, I do not get
Everything they tried to control my heart rate and the raised normal BP because of the higher rate, has severe side effects after six months. I have
learned now not to eat a lot of food that raises heart rate, like high niacin foods. I have learned I need to consume potatoes a few times a week to
make sure I get enough potassium so the beat stays regular. I have learned that I need adequate salt in the diet because my levels drop too low.
There are a lot of ways to control things by diet. I want to go talk to a specialist about my hypoglycemia and hyponatremia and my low blood volume.
I need to find out more about it by discussing optional ways of controling them while still eating foods to control my epilepsy. But what kind of
specialist would I see, an endocrinologist or a specialist in hereditary blood diseases? A specialist on Diabetis I saw was not knowledgeable about
hypoglycemia. The pharmacist told me the best info on it. Eat more proteins and less carbs. But I don't like eating that much protein because it
I have good insurance, but I don't want to waste my time going to the wrong specialist anymore. I have many nightmares of being sent to the wrong
specialist by the doctor. I need to get a new doctor instead of avoiding her. One that can get things right. She sent me to the wrong specialist
for my stomach problems. I had stuff stuck up my butt and down my throat and it was a hernia behind my bellybutton, which the hernia doctor I went to
on my own saw just by looking at my bellybutton and feeling there. She sent me to a prostate specialist because of my pink pee, if it had been put in
a glass in the sun it would have turned purplish, which I use to test my state of one of my problems now. The meds for the epilepsy triggered my
genetic AIP to give me problems. The pills did nothing for the problem.
When you have conditions that are rare, the doctors do not want to look at them. until of course they almost kill you and tell you they do not know
why it is happening and tell you never to take the class of meds again.
Looking around, I see lots of people being negatively effected by medicines and tell them they should go see another specialist to evaluate the meds
they are taking. I know many people who take ten or more meds, twenty five to thirty pills a day. They have to take pills because of new terrible
symptoms, symptoms listed on their handouts.
There are some good doctors out there, I knew some over the years.