I'm 24 and I feel Doomed- A rare Case - 28 reported Worldwide

reply to post by Tripple_Helix



I am sorry to hear what has happened to you. I hope you recover real soon and things sort themselves out....

reply to post by Tripple_Helix


Go get those medical records, pay for it if you have to and then take them to a lawyer

Take down notes of everything you remember the doctors told you, dates etc.

Oh sweetheart, I'm sorry to hear the hard time you're experiencing.
I don't know anything about your disease, but I'm so happy that you are keeping a positive attitude.
And its worked so far! To know its not cancer is wonderful.
Keep doing what you're doing, & you'll find the strength & courage to face the unknowns.
Sending you lots of hugs & love, & hope you find all the help you need,& answers you seek.

jewells

reply to post by Tripple_Helix


I agree with the post right below your initial post, get a second opinion.

Don't know what else to add.

Sending healing thoughts your way.

If enough of us keep Tripple_Helix in our thoughts and prayers maybe that might help.

Take care, you're posts are always very insightful.

I could hardly believe it when I read they'd "accidentally" incised into the mass....here in the US that's NEGLIGENCE!! Every doctor I ever scrubbed with takes almost ridiculous care NOT to cut into the mass
for fear of spreading any malignancy working very carefully a good 1/4" AROUND the mass!
But I agree with GoGo....we have no idea how much was removed, the extent of damage, your age & general
health to really advise you!
So sorry you must suffer this ordeal but it's NOT the end of the world! Much love! ♥

Hi,

I have spent a while reading up on cancer and similar diseases in the recent years, as I have witnessed an epicemic of it in my country. I rarely hear about anyone dying these days from causes other than cancer. My only certan conclusion after a lot of material studied is that cancer is fuly curable, but not by chemo or operating.

The body has perfect mechanisms to remove the cancerous/malignant tissues alltogether, without operation, once the conditions for it are provided. Most of the time, those conditions are:

- a change of diet to a fruti&veggie based diet, with as much organicaly produced foods as possible, and as much raw as possible
- no alcohol, sugar, aditives or proccessed foods
- low stress environment
- positive atitude

Also, if I were you, I would read up on "the China study", would not let the doctors cut any part of my body, as that is the only thing that cannot be cured afterwards. If the doctor doesn't understand the cause of a disease, why do we expect him to cure it?

You can see some more examples/information in documentaries like these:













Good luck with your recovery!

Have you had any previous problems throughout your teen years? Were you ever diagnosed with endometriosis? I have had that my whole life and it has caused havoc with my body. However, once told all those long years ago, i may never get pregnant because of it, i went on to have 4 healthy children. I wish you much luck. Never give up, and get a second opinion! Please keep us updated
on a side note, i did put myself on vitamin D & B12 & i feel its helped me some, especially giving me a boost in energy..

wa... wait a minute. I KNOW there's a way of getting ride of those cysts without surgery and being able to have children after that. I knwo it exists because if it wasn't because of that, i wouldn't be here.
My mom was pregnant, and when she went to her first ultrasound (it was at the start of the '80s, so there was "safe" just 3 ultrasounds per pregnancy) and there i was... and my mom says that there was a big cyst that looked like pac-man just going to eat me.

Her doctor said that she'll need to get that cyst removed by surgery, and by this, losing the baby. She said NO, walked away and searched more answers.
I know that what she did involved herbs and mud, also a home made sauna, besides turning her diet fully vegan.

3 months later, she went to the hospital for her last ultrasound. And guess what, the cyst was GONE. And here I am, alive and kicking, 27 years later

I know I don't know you but I feel your pain and I am so sorry for what you are going through. I wish you and your family the best.

i feel really bad for you, but the dude who said the chemo can make you infertile is 100% correct. My aunt had to have chemo and it made her infertile when she was 30 years old. She adopted an irish baby and we love her all the same to this day

I have already supplied the christ casing to the church.
they are the healing capacitors on earthfiles.com
they will be special bandages as well.
and the casing ARE the new military supersupplement.
I healed my Aunt's tumor with my amwand #AX139472.
however there is the molecular JESUS that I have
donated to the vatican and that casing can upgrade your amwands if you choose that .

I have seen a testemonial of the same concern as with a disappearing tumor
from this website.

I know amwands will work.

i've heard these are doing great as well.

this man IS the living buddha maitreya.
I am the dying manchild GOD EHYEH ASHER AHYEH.


www.shambhalahealingtools.com...

reply to post by Tripple_Helix


Hi Triple_Helix,

Very sorry to hear about your situation but I'm sure it will all be OK. The most important thing at the moment is that you stay positive and avoid the feelings of doom. Next, without doubt you need to get a second opinion and if your not happy with that get a third and even fourth opinion.

Differential diagnosis includes both benign and malignant abdominal lesions including cystic lymphangioma, endosalpingiosis, adenomatoid tumors, mesonephric duct remnants, malignant mesothelioma, sarcoma, and non-Hodgkin’s lymphoma.8,11 Clinically, the differential diagnosis of BMCM from other ovarian tumors is important, since BMCM can be treated with ovarian preservation techniques.11

Multicystic mesothelioma is not chemo- or radiosensitive. No correlation exists between the extent of the tumor and the patient’s survival.Treatment for localized lesions is total surgical excision, and for more extensive lesions,debulking procedures are performed

Find a doctor that understands that treatment for BMCM does not automatically mean the patient will no longer be able to have children.

Chin up and stay positive.

www.pagepress.org...

www.ajronline.org...

reply to post by Tripple_Helix
My heart sunk into my stomach when read what you've had to deal with Helix....I'm Extremely Glad to hear you are going to be okay!....Thank you for knowing you can count on your friends on ATS for support.
Keep an opened mind to adopting as an option. There are Lots of children in need of a loving parent..
Be Strong and Don't underestimate the power of your mind...will pray for you....

Definetly get a second opinion, 1 doctor, is just not enough experience to know and diagnose everything, especially being a rare case, you need to get a specialist of some sort, Never give up, Never let the pain and desease get to your inner soul and beauty, anything can happen and miracles happen all the time. My wife and nephew both had to undergo Chemo, we too felt the world crash beneath our feet, with both cases being cancers, both watched there diet, became extremely informative on the conditions they had, and fought to get there lives back to normal existence, Both have been cancer free for over 5 years. Please keep your head up, keep your loved ones close to you, and Never Give up in your fight.

I am very sorry to hear about your bad luck.

On another note, shark liver oil is proven to shrink tumors and so forth. I would push for my doctor to try the shark liver oil treatment. Others have posted very valuable information. I'd jot them down and take them to your Dr. to find what the best road to travel is. Good luck and keep your head up.

Wow! really sorry to hear about this. i hope everything works out for you in the end. never give up!

I am sorry that you are going through all this. Seek out all the second opinions you can. From traditional to alternative and do research on this yourself. So that you know what is happening with your body and what the alternatives are. The research is the key to being able to communicate with your dr. and make the right decisions for you. Since this is so rare it will be hard to find someone with experience so your best chance is to lear along with your medical provider.

I would also check out the asbestos link a little closer. There is a lot of hidden asbestos out there that you could have run into with out knowing about it.

Coincidence or Synchronicty was at work and I just run accross a article on natural healing that said the lycopene in tomatoes was good for reducing uterine fibroids. It suggested drinking 1/2 glass of tomato juice a day. Which unless you have an allergy to tomatoes or something seems to fall under the catagory of "it can't hurt to try"

Best of luck to you. I will light a candle for you.

I'm sorry to hear about your ordeal, stay strong and positive! I have read the most recent journal on your condition and it seems your doctor is taking the proper steps on your treatment. Some people on the thread are telling you to get a second opinion, but they don't understand that there is a team of physicians looking after you, not just one. After your surgery the pathologist have seen your tumors, the surgeons have seen your tumors and your primary doctor has already consulted with the oncologist, pathologist, gastroenterologist and the surgeon.

The good news is that the prognosis for BMCM is very good, but recurrance is common. The problem is where it grows, especially if you want a child. Since the best treatment is total removal of the tumor. Aggressive measures are also recommended such as chemotherapy, attack it strong and fast.

Unfortunately BMCM is a rare disease, and the cause of it is still controversial. But at least the treatment has been successful in most patients.

Personally, I would choose not to birth a child into this world, but then again I'm a guy so I don't really have a say on the topic. I just think it is a terrible time to raise children, wait until things change.