Fibromyalgia ???

reply to post by Rhino5


You are giving a medical diagnosis to someone over the internet because of a blog?

Seriously?

reply to post by lilowl53


The disease was labeled in the 80s, long before sylvia brown was going on Montel.

reply to post by watcher3339


Many women reported having the worst flares a week before their cycle, myself included.

reply to post by SeesFar


thankyou so much for ur post SeesFar ..

ive decided the best option for me exercise wise is to buy an Nintendo Wii... along with a WiiFit + a few other programes such as yoga + tai chi.. this way i can fit these exercise programmes into my daily life..

thankyou so much for ur input + advice.

can i just ask the people with Fibro... how have you managed work wise...?? have you managed to keep working...?? or have you had to lessen your hours...?? find a more sutiable job...?? or stopped working altogether...??

i also have another question for the ladies which is a bit personal.. but im trying to figure out how to word it first before i ask it..

I take Savella, which has been touted as the latest advancement for fibro, and doctors are hearing good things. It has only been out in the states for 3 years. It hasn't eliminated it but has reduced a lot of the pain for me. It can cause insomnia, so you might need help with sleep.

It is in the AD family but it doesn't quite work like most AD, it is not prescribed as an AD at all. Strictly fibro. And I have reactions to AD. Lyrica was horrible, not to mention its a nasty drug. But they don't tell you that.


But I can stand on the floor in the morning without feeling like I am walking on a bed of nails.

The elbow and hip pain are the worst for me and they still persist. Sometimes the hands.

Stress makes it worse.

There is a supplement called D-ribose that helps ease muscle pain and gives you a little energy. I have been extremely exhausted the past few days and I can be found taking some ribose with some energy drinks. You find ribose in Vitaminn shop or online.

reply to post by Rhino5


Because AD raise seritonen and norepinephrine which blocks pain messages you moron.

reply to post by Vamp333


I used to work physical labor, I switched to a desk job. I also work for the government so I can get flexibility and leave and non discriminatory health insurance.

reply to post by Vamp333


I work in a way I take care of 2 kids while my wife has a steady job I try do what I love but it ends up I just wrench on cars when i can and i fix up dirt bikes and threewheelers that i buy cheap and sell them...

really I think you need a flexible job I need to keep moving otherwise my body starts freaking out.

starting your own business is good I am writing a business plan now and its taking most of my time and mind keeping your mind busy is a great way to not focus on your pain.


find what you love to do writing, talking weaving just pace yourself.

I find that when I work too hard one day the next day is for recovering

reply to post by -W1LL


im studying online + working a few days a week in a school canteen at present which involves making sandwiches + serving.. so im on my feet for the whole day on concrete floors .. ive asked this question about work because at present the day after working i am finding the pain is incredibly worse.. i have been considering starting an online handmade childrens wear business tho.. which if i am diagnoised with Fibro might be easier for me + it also means i am still working with my hands.

reply to post by Vamp333


thats a good idea you can also set your own hours, and kids always need clothes I know that one.

Originally posted by Vamp333
reply to post by DevolutionEvolvd

 

i eat alot of fruit + i drink mostly fresh fruit juice.. occassionally pepsi

That's why you have hyperuricemia (high uric acid). Fructose, found in fruits, fruit juice and pepsi, leads to a byproduct of uric acid. The real problem, however, is that you're probably just retaining uric acid, which fructose/glucose can indirectly affect secretion/retention of uric acid.

i eat alot of fruit + i drink mostly fresh fruit juice.. occassionally pepsi

One of my best friends has fibro. She didn't drink much water until I started riding her case constantly. The last couple of months she has been drinking lots of water and says she feels a lot better.

Most of us a chronically dehydrated. We drink sodas, tea, juices, sports drinks, alcoholic beverages. and none of those hydrate us. The body needs to be properly hydrated. I think I would leave off the fruit juices and start drinking lots and lots of water.

Hope you get a diagnosis soon. It's kinda hard to treat something if you don't know what's wrong. Hope you start feeling better soon.

Originally posted by Rhino5
Fibromyalgia is just another name for hypochondria. All the pain is in your head and the doctor (instead of telling you the truth) will take advantage of you by telling you should have check ups, buy pain killers, etc.

I think you have been put straight on this already, but I have just been diagnosed with fibro, also due to service in the 1st Gulf War, also will be service connected for it, you have no idea what you are talking about.

Actually what you said is pretty insulting after all the years vets have been told it's all in our heads.

Originally posted by lilowl53
I personally think it is something else and this Fibromyalgia is condition made up souly to make money and nothing more.

How is it making anyone any money?

People have the condition no matter what they call it. People with it will seek medical help, no matter what they call it.

The VA makes no money from me, not one cent, in fact they will be paying me for it, so why do they recognize the condition?

Sylvia Brown had nothing to do with it either lol

This mysterious illness has been studied since the 1800’s and has been identified by a variety of names, including hysterical paroxysm, muscular rheumatism and fibrositis. The term fibromyalgia was first coined in 1976 in an effort to describe its primary symptom. (Fibro – meaning fibrous tissue, my – meaning muscle, and algia – meaning pain)

History of Fibromyalgia

reply to post by ANOK


thanks for the great reply ANOK.

I hope you get a grip on Fibro. I have suffered for 6 years with this pain and only dream of not being in pain. there are things that help and things that make the pain worse you have to pay close attention to your body, the antidepressants and pills they had me on only made things worse and clouded my mind even more than the pain so be careful with taking them.

Originally posted by -W1LL
...the antidepressants and pills they had me on only made things worse and clouded my mind even more than the pain so be careful with taking them.

I used to be on anti-depressents, but the problem with Fibro is also the fatigue, and AD's just make that worse so I stopped. I find the fatigue more disabling than the pain because it's constant.

Are you taking Lyrica or anything? Does it help?

The specialist told me I was in bad shape. I have no thyroid hormone produced and chronic fatigue with heart problems. Had my system collapse and needed surgery with latex inside sort of like walls, a year ago last July. Now fibromayalgia is related to chronic fatigue, some consider it the same, some consider a possible worsening of it, and some consider it a related disorder. Then I have liver problems, 2 types of arthritis, and a secondary type, gout due to my liver. And then he said on monday that I had fibromalgia, because all my joints and bones hurt all the time and I can barely push down on the gas peddle at times, and have some mobility issues, and both knees are bad, one is worse, my ribs hurt, and my back. And I have a hard time sleeping at night due to all of this, and often have to take a hot bath. But I can't take alot of pain kllers due to my liver. They xrayed one knee and plan on doing an MRI, because it showed narrowing and deformity, so perhaps surgery in many many many months. I have this weird feeling they would like to take each joint, and do a year long procedure on each and only label it the right thing, years from now. Suppose they make more money doing it that way, but its a little lame to me.

Some of this was previous to last winter but this other stuff is a year now.

I am watching very carefully the symptoms, and will see if he is right or not, over time. Because my grandmother and aunt had/have rheumatoid arthritis, and it runs in families. And I did research online and the symptoms I have are 80-90% in that category.

I've been taking grapefruit and even sauerkraut a bit naturally fermented and will look into other fermented foods. Thinking of getting some more apple cider vinegar from the health food store. Sea salt. The grapefruit made a difference immediately with my system, seems to help my liver process things.

Vitamin D, 10 000 iu's and I got some powdered magnesium that is specially made for fibromalgia.

Cut way back on normal fats. Take A, E, cod liver oil as well.

And milk thistle.

There are things Im going to try in a while when I can afford to try them for rhemuatoid arthritis from the health food store.

I'm 49, and a little alarmed.

Since we had 2 years of solid rain on the west coast I have wondered if Fukushima could cause this and reach up into my Higher Self or higher frequency self and try to live in that wellness as much as possible.

reply to post by Unity_99


I notice you say your ribs hurt, mine have just started hurting also, worsening pretty fast. It's even uncomfortable to have blankets on my chest if I lie on my back. I also have trouble lying on my side, because it feels like I am crushing my arm and shoulder.

Other symptoms of Fibro are restless leg, IBS and other gastro issues, stiff joints and muscles, memory problems, sensitivity to sound, smells, light, cold and heat.