reply to post by riley
I will not say that any of this was directed at you, I don't know you. It is the issues that I am interested in and one of the issues is that people
want to eliminate autism, many of us who are autistic don't all agree with that. If there were a test that could be conducted in vitro to determine if
a baby would be born autistic, many would recommend that we be aborted, killed. They have these tests for other things and have spent a lot of money
to have one to detect autism. Assisting blind people by restoring their site or deaf people by restoring their hearing does not prevent them from
being, what sense would we have restored? Autism is not a disease, it is a way of experiencing the world and we can learn to control some of its
I do hope you understand that hearing that we need to be cured presumes that we are damaged, we are not. I cannot speak for low functioning autistics
and neither can you. There are many low functioning people, we are not seeking to eliminate all low functioning people. The germans tried that, they
said they were genetically unfit. I do not mean to imply that you believe such things, I do mean to say that it has been done. The history of the
birth control movement in America used to sterilize low functioning people. In most of the world the number one reason for abortion is to select the
sex of the child.
You rightly differentiate between high and low functioning autistics; however, recently there was a move to just group them all together as autistic.
This appears ominous to some of us. We read history books too. The purpose of this thread was to get others with Aspergers to discuss it, I failed at
that, oh well. It began because of what someone said on a seperate thread. I did read somethings from parents of low functioning and high functioning
autistics. It can be challenging to raise them; but, the parents love them and the children do learn, just socially at a different rate.
Rather than having others choose for us, we should be allowed to choose for ourselves. I do not see large groups of autistic people asking to be
cured, in fact many despise these groups that want to cure us. The blind may want sight and the deaf might like to hear, they get to choose shouldn't
we be allowed the same? I do not doubt the sincerity of those who would "help" us, not a bit. Help when asked and most of us do not wish to be
"cured". It is challenging when you are young, everything is challenging when you are young.
The dangerous comment was not about harm, it is about effectiveness. Think of the English hacker that broke into NASA and other very secure sites, he
has Aspergers. Any group will respond if they feel threatened and that is a concern. When I read about some kid being jailed or otherwise abused
because he is "not normal", it is upsetting. I worry that some in the community may take punitive actions. I would never condone such things; but, I
have read from those who would.
Nobody has been able to prove definitively why the rates of autism are increasing. 1 in 10,000 when I was born and 1 in a 100 now. It is a little late
to "cure" us, we are too numerous now. My children do not have autism, it doesn't seem to work that way. We don't know what causes us to be the way we
are; but, we are. There is a movie out about a man who takes a pill that lets him be brilliant, if such a pill existed most people would want it.
People with Aspergers don't need the pill, they learn to deal with it. Knowledge without wisdom is a bad thing and wisdom is acquired by having to
deal with challenges.
This is not a question of high functioning versus low functioning. It is a question of how much variation we will allow in society. My heart goes out
when I see a low functioning autistic person get frustrated, they don't handle it well when they are young. I do not know what it is like to a parent
of one of them other than what they have said to me and the one's I have met have a lot of patience.
I don't want you to feel attacked and if you did I apologize, we do that a lot, it is part of who we are often. One of the traits is a type of
bluntness, I work on that and sometimes I fail. Most of us do not ask for any cure, we ask to be allowed to be us. We ask to not be vilified or
grouped into one giant basket. The examples given on television and in the media are usually of nerds or uncontollable low functioning people who seek
to injure themselves. That is a pretty narrow description and does not accurately reflect the community (I am not accusing you of using that
description), both exist; but, there is a lot of variationThe genome that is found in autistics is never in the same place, each has it in a unique
spot according to recent discoveries.
My problem with the attempts to cure autism is that people who are not autistic believe they have a right to decide for us the solution. I don't
recall having anyone ask our opinion. "Autism Speaks" the largest "advocacy" group was founded by the grandparents of autistic kids, not by autistic
people. Why should that group get more attention and be listened to more that the groups that are comprised of autistic people? Autism is not a
disease, it is a way of viewing the world and others. While I may not be able to speak for the community, why can people who don't have it speak for
us? I don't need them to speak for me and they don't have a right to. In fact, I find it offensive and so do others in the community.
I have poor eyesight, I choose not to get laser surgery to "cure" it. I have that right. This is no different. You stated that you thought I was
speaking "presidential", this is how we talk sometimes. Perhaps in dealing with us, you can focus on the message rather than the delivery. I think
that is what I want, people to understand that we do have certain traits and that is okay. We don't think like "normal" people and we don't socialize
the same, is it really that bad that we need to be cured? I am not a proponent of curing everyone with an IQ under 135. I like variation.
I have a triglycerides rate if over 900, over 150 is considered dangerous. They put me on pills that proceeded to destroy my liver, I stopped taking
them when they did. Sometimes the cure is worse than the disease. I will probably die, according to my doctors, from a heart attack or a stroke; but,
I am here today and that is enough for today. It killed my mother (she also had the same level) and it may very well kill me. I won't go back on the
pills. In America we attempt to cure hyperactivity with Ridalin (I may have misspelt it), basically meth. We are not helping those children either. We
used to say boys will be boys, now it is a syndrome. We have pills for depression, for anxiety, for twitchy legs (my favorite). Society is constantly
seeking to normalize everyone because that is easier to control.
After World War II, America was given a protecting role over many Polynesian islands. We wanted to help them so we gave them corrugated steel to build
houses and food and water and booze. By helping them to "Advance" we destroyed their societies and alcoholism became the biggest problem, that was
very helpful. We saw them as not as advanced as modern society, they were happy till we helped them. While Europe still believed the world was flat
and Columbus was not to be born for 100s of years, the Polynesians managed to navigate 1/3 or the earth with no compass in canoes that were paddled.
They were not less advanced, they were very advanced in their way.
Being "normal" means to seek to be the same, it means we want the same things. We don't all want the same things and a society of "normal" people is
doomed to failure. Arnold Toynbee is one of the most famous historians and he surveyed what caused societies to flourish and fail, just like Darwin
said, you need variation or you cannot survive great changes and great change are coming, they have already begun. I do not know why my triglycerides
are as high as they are; however, I do know that some genetic abnormality allows 5% of the population to be immune to eboli, that is a good thing. Not
all anomalies have a place at all times; but, you better have some outliers when they are needed or we fail the survival test.
I may not speak for the community, let it speak for itself; but, I am entitled to speak for me and I am autistic. I have gone out of my way to talk
others who are the same and ask them to be understanding of those who are not. I have asked them to not look down on normal people. I ask the same of
those who do not have autism, be understanding of us not dismissive. You posted a nice little icon of someone rolling their eyes and attacked my
writing style, we take some getting used to and have to allow for misunderstanding; but, once you get past that we are just people to and we have a
right to exist even if you find us challenging at times, it is just the way we are; but, we learn to. Be well.
Sorry one last thing. You mentioned that you wanted low functioning ones to be cured so that they could be who they really are, autistic is who they
really are just like me. It is not a disability, it is who we are and how we view the world, we just don't like this place much, it is painful to be
here that is why they get frustrated. The repitition exhibited by many of us is a form of meditation in a way, it is calming and creates a focus
point. Someone mentioned how they used to like staring a ceiling fans, other people have other forms. I myself used to like drawing cirlces endlessly,
it may seem silly; but, it is harmless and is calming. We are not illogical, we are just responding to stimuli in our own way.
27-4-2011 by AQuestion because: Clarification