posted on Dec, 9 2010 @ 12:53 PM
Unfortunately, it is a $500,000 experimental surgery with only 60 cases so far. BUT it appears to have decent results so far with 58 of 60 children
surviving surgery. The doctor that pioneered the surgery was quoted as saying most states medicaid initially denied the treatment, then allowed it on
review. So I'm hoping that in review, Indiana changes their mind.
Most children with this birth defect do not live past 2 years old. When I read that one of the doctor's patients was now 17 and in high school, I
made a donation to Seth's fund. The link to the donation page is in the Huffington article.