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Permanent Headaches

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posted on Dec, 3 2010 @ 02:43 PM
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I have for the past 8 years been suffering from permanent headaches, not on and off headaches, permanent, and it's progressively getting more painful as time goes on. I have gone for all kinds of tests, including M.R.I.'s, Chiros, had bloodwork done, everything. Not one doctor, professor, health worker, alternative health worker, can figure out what is going on, what is causing it.

About a year ago, I've had to start taking blood pressure medication, it's not strong, but doc thought maybe that's why, although, I'd had my BP taken sufficient times in the past and it never showed a BP problem, only suddenly as of end of last year, when it was elevated for a week continuously.

In May this year, I suddenly lost vision in my left eye. It wasn't a gradual process, I woke up, and it was completely blind. My vision still has not returned. All I know what happened before hand, was I had a massive migraine the night before. So I went through new professors specializing in ophthalmology, and another M.R.I. and a neuro surgeon. And nobody can find anything wrong with my eye. So they reckoned it must be a viral or bacterial infection in my eye and put me on some meds, telling me it'll clear up in about a month, max. Together with the eye going blind, I had extreme nerve pain, around the eye and the eye itself. Anybody that knows nerve pain, will know, this is a different pain to normal pain, and nothing helps for it, except specific painkillers for nerve pain, which is very expensive. The Nerve pain eventually faded after a couple of weeks, but the vision, as I said, didn't return.

I don't know if the headaches and my eye is connected. And the doctors don't know what's wrong, technically, there's nothing wrong, but the doctors will tell you, this is not made up. Hubby tells me, they checked to see if I could be faking it, like a hypochondriac and brought a pin right up to my eye. Nothing, not even a flinch.

The eye itself can still feel, as I can feel if dust or something got into my eye. But that's about it. When there's a sudden loud noise near me, then I will see like a sudden flash of light, but nothing more.

All tips I've got, is apparently these headaches run in the family. We don't know what to do, there is no where else left to turn. So if you can't help, can you give some advise on some pain relief? As the idea of living with this pain for the rest of my life, I am 36 yo now. I can't see myself living with it for the rest of my life. I need help, so I thought, maybe posting it here, maybe on a site like this, somebody will have heard of something like this happen before? Or at least, help me deal with the pain if this is to be.




posted on Dec, 3 2010 @ 03:31 PM
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reply to post by Fenix777
 


Blindness in one eye sounds symptomatic of something severe. I couldn’t imagine what would cause that. However I do have some experience of neuro-vascular headaches. One of the problems with this type of headache is that painkillers are ineffective, and the pain is severe. Treatment for hypotension, in an ongoing basis, coupled with either…oral or nasal inhalers, or even nasal drops might help. Ergot or sumatriptan is commonly used in these forms, and are very effective. They work by constricting the smooth muscle that lines the arteries, which is really the source of the pain around the optic nerve. I have heard that inhaling pure oxygen can also help although over usage can scar the lungs. This works in a similar way, as the brain, receiving too much oxygen, constricts the arteries. Well that may not have been much help, as those medications may not be available, or even appropriate for you. Just thought it may be useful.



posted on Dec, 3 2010 @ 04:13 PM
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reply to post by midicon
 


Any type of help is much appreciated, thank you so much, I will look into those meds, ask doc about them, as well as the oxygen. Thanks again




posted on Dec, 3 2010 @ 05:16 PM
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reply to post by Fenix777
 

Ergot and Sumatryptan bring instant relief from this pain. I wouldn't waste a minute, get some from your doctor, although here in the uk it is only prescibed after a consultation with a neurologist. Don't be put off or side-tracked. I had my own battle with this pain and know how bad it can be.
Regards the oxygen, I don't know how effective it is, or if it is available or even a wise choice.
It was mentioned in something I read some years back.

edit on 3-12-2010 by midicon because: (no reason given)



posted on Dec, 3 2010 @ 05:22 PM
link   
If you haven't tried it, and if you live in the right state, have your doctor prescribe you "medicinal marijuana". I'm 100% serious. Try it. Close your eyes, and listen to some really cool music. Beyond the pain relief is the overall relaxing effects. Chronic pain can stress you out, and there is some evidence that stress and pain provide a negative feedback loop.

Marijuana kind of attacks both symptoms at the same time.

If it works, it's a lot better to be stoned (and a little hazed) WITHOUT pain, than it would be to be sober and it chronic pain.

If you don't live a state where this is legal, you might consider moving to a state that does, if it works for you.
edit on 3-12-2010 by harrytuttle because: (no reason given)

edit on 3-12-2010 by harrytuttle because: (no reason given)



posted on Dec, 3 2010 @ 05:28 PM
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A friend of mine had a brain anyerism which caused temporary blindness in his left eye. He has a permenant ringing of the ear also.

Have you gotten any MRI's? Got those done and keep trying different doctors until they find out what is wrong instead of failing. Because not finding the cause is a big failure on their part.



posted on Dec, 3 2010 @ 08:30 PM
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Don't take this the wrong way, but have you ever considered your problem might not be physical but psychological ?

Seriously it does happen and is just as real.

Also try and find medical universities and go there. The change that they are willing to go deep is a lot bigger as they are actually there to learn.



posted on Dec, 3 2010 @ 08:37 PM
link   
reply to post by Fenix777
 


I don't want to scare you but, that sounds like an aneurysm. Have you had a CAT scan or an MRI ? This is not something you should delay.



posted on Dec, 3 2010 @ 08:44 PM
link   
I am sorry to hear about your health problems. You are correct about nerve pain...there is nothing as severe. I had two back surgeries before I was forty years old. Lost my wife and house and was off work over two years. The nerve pain I experienced was sciatic. Started in my low back and ran down my leg to my foot. Felt like a hot knife slicing all the way down my lower body. I was taking eight 80mg Oxycontin a day until they went through my abdomen and fused my lower vertebrae together,

The Oxycontin helped the pain quite a bit but there is a danger of addiction and the issue of building a tolerance to the drug. If the pain is unbearable you may find relief from opioids like OC or percocet but be wary. Hope you find relief. Pain is exhausting.



posted on Dec, 3 2010 @ 08:48 PM
link   
Try an omega 3 rich diet. It's anti inflammatory and couldn't hurt. Most of us don't get near enough omega 3 oils, found in seafood, walnuts, flax seeds, olive oils. Avoid sugar as much as you can, NO aspartame or other sugar chemical substitutes. Avoid processed food as much as you can also, much of it's loaded with chemicals you might be sensitive to. Good luck....

en.wikipedia.org...

www.empowher.com...

The University of Maryland Medical Center stated that “omega-3 fatty acids are highly concentrated in the brain and appear to be important for cognitive (brain memory and performance) and behavioral function.” Not having enough omega-3 fatty acids can cause some health problems. For example, symptoms of omega-3 fatty acid deficiency include poor circulation, poor memory, fatigue, dry skin, mood swings and heart problems.


longevity.about.com...

All fats are not created equal. To function well, your brain needs a good supply of essential fatty acids. Since the body cannot produce these fatty acids, you need to get them from food. Researchers think that these fats not only help supply oxygen to the brain, but work to protect the membranes of brain cells, prevent damage that causes dementia, Alzheimer's and other illnesses.



posted on Dec, 3 2010 @ 08:53 PM
link   
i had headach for a year long every day.
my problem was my wisdom teeth where pushing my other teeth around and my dentist told me it could cause blindness.
not sure if it helps but just wanted to share it



posted on Dec, 3 2010 @ 09:10 PM
link   
Could you possibly have sleep apnea?

My neighbor is a pharmacist (chemist) and was getting frequent migraines (three to five a week). The doctors told him all sorts of things and he was on all sorts of different pain medications but nothing worked. It turned out that he had sleep apnea (he wasn’t getting enough oxygen to his brain during sleep).

He now sleeps with a machine that helps him breathe and he takes it wherever he goes.

That’s my best guess – good luck to you.



posted on Dec, 3 2010 @ 09:27 PM
link   
Just out of curiousity, do you drink diet sodas or use artificial sweetners? I was looking into aspartame for a thread here on ATS a while back and came across some really alarming studies that showed Aspartame can literally cause microscopic holes in mammalian brain tissue. My mother drank diet soda for a long time and was having severe chronic headaches, she quit the diet sodas and her headaches went away within about a week.
www.abovetopsecret.com...
www.abovetopsecret.com...
www.abovetopsecret.com...
www.abovetopsecret.com...



posted on Dec, 4 2010 @ 02:40 PM
link   
Are you supplementing with Vitamin D, Calcium or Magnesium?

I'd venture a guess that you're not on Magnesium.

Seeing how you're hypertensive AND you have chronic headaches...you could have a magnesium deficiencey. Or you could be taking other supplements (like Vitamin D and calcium) or medications that could be inhibiting intracellular magnesium uptake.

How healthy are you? You wouldn't happen to be diabetic, would you?



posted on Dec, 4 2010 @ 06:18 PM
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I am going to reply to everybody in one post, this is my first time posting quotes, so I'm just hoping it will work. I want to thank each and every one of you for taking the time to try and help and reply to me. I honestly thought I was going to get no replies, so it means so much to me that you have all replied, you have no idea how much. I continue replying to all of you at the bottom.


Originally posted by harrytuttle
If you haven't tried it, and if you live in the right state, have your doctor prescribe you "medicinal marijuana". I'm 100% serious. Try it. Close your eyes, and listen to some really cool music. Beyond the pain relief is the overall relaxing effects. Chronic pain can stress you out, and there is some evidence that stress and pain provide a negative feedback loop.

Marijuana kind of attacks both symptoms at the same time.

If it works, it's a lot better to be stoned (and a little hazed) WITHOUT pain, than it would be to be sober and it chronic pain.

If you don't live a state where this is legal, you might consider moving to a state that does, if it works for you.
edit on 3-12-2010 by harrytuttle because: (no reason given)

edit on 3-12-2010 by harrytuttle because: (no reason given)


I've heard of this, unfortunately I don't live in any state that does or doesn't have it legalized, I live in SA, and there's only one set of laws for all the provinces. I don't know what they are though, but I will def. find out. thanks



Originally posted by v1rtu0s0
A friend of mine had a brain anyerism which caused temporary blindness in his left eye. He has a permenant ringing of the ear also.

Have you gotten any MRI's? Got those done and keep trying different doctors until they find out what is wrong instead of failing. Because not finding the cause is a big failure on their part.


Yes, I have had MRI's done, and they came out fine, neuro said I had a beautiful brain, whatever that means, I think only a neuro could find a brain beautiful
But I think he was just staying that there's nothing wrong with it. I've actually still got a disk they gave me with the images. Some of the things that we were all worried about at the time, was mini stroke, or tumor or MS. All three ideas scared the hell out of me, but nope, all came out clear.

I agree with you, on the failure of the doctors parts. These are supposed to be professional people, specialists and professors, yet first they can't figure out what's causing these headaches, and now they don't know why my left eye went blind? Useless. The problem is, we're not on any medical aid, and I've already been to the provincial hospital in my area. So from there on out we had to pay cash. When it started to have an effect on our survival on a month to month basis, I called a halt with all the testing. We're talking about going to the headache clinic, they specialize in headaches. We're going to have to plan it very carefully though, financially, when we're talking about the headache clinic, we're not talking cheap. But these people have all the equipment necessary and they keep going until they find the problem, they have an 80% success rate. We're hoping we can do it on an account basis and pay it off, we still have to find out though. Most medical places don't do accounts at all anymore, because the new laws regarding medications and medical care has restricted them to such an extent, most of them, especially the pharmacy's have had to close their doors, so we don't know if we're going to be able to do it on an account. If not, then it's not an option. So hold thumbs for us.



Originally posted by Sinter Klaas
Don't take this the wrong way, but have you ever considered your problem might not be physical but psychological ?

Seriously it does happen and is just as real.

Also try and find medical universities and go there. The change that they are willing to go deep is a lot bigger as they are actually there to learn.


Yes, I have actually considered that and asked doc about it. The doctors don't think so though, as the eye is very definitely blind.

And yes, I have a friend who is looking into that for me as well. She says she thinks there is a university in Johannesburg that might help. Thanks



Originally posted by piercebitchone
reply to post by Fenix777
 


I don't want to scare you but, that sounds like an aneurysm. Have you had a CAT scan or an MRI ? This is not something you should delay.


As I mentioned above, yes, and they found nothing wrong. Which I might add, was a relief that you wouldn't believe. I was scared to death after they started talking stroke/MS/tumor.


Originally posted by isitjustme
I am sorry to hear about your health problems. You are correct about nerve pain...there is nothing as severe. I had two back surgeries before I was forty years old. Lost my wife and house and was off work over two years. The nerve pain I experienced was sciatic. Started in my low back and ran down my leg to my foot. Felt like a hot knife slicing all the way down my lower body. I was taking eight 80mg Oxycontin a day until they went through my abdomen and fused my lower vertebrae together,

The Oxycontin helped the pain quite a bit but there is a danger of addiction and the issue of building a tolerance to the drug. If the pain is unbearable you may find relief from opioids like OC or percocet but be wary. Hope you find relief. Pain is exhausting.


Yes, the pain is extremely exhausting and debilitating. And you still have to deal with every day life on top of it. Sometimes I have suicidal thoughts, because the pain becomes so unbearable. But I'd never do that, I have two kids, they keep me going. Although, I become rather ... agitated (for want of a better word). During those times I tend to close myself in my bedroom. I'll walk up and and down in my room then just sit and hold my head, I'd try to lie down, only to get up and go through the whole thing again. Sometimes I get lucky, and I'll pass out.

I will look into those medications, but I am very weary of taking something that's highly addictive.

The other day I have found a website that is all about healing with music. I found one audio that's extremely relaxing, I listen to that, and it helps me calm down. I find the more agitated I get, the worse the pain gets. What do you guys make of this music/sound therapy thing? I'm not sure whether it could actually work or not.


Originally posted by snowspirit
Try an omega 3 rich diet. It's anti inflammatory and couldn't hurt. Most of us don't get near enough omega 3 oils, found in seafood, walnuts, flax seeds, olive oils. Avoid sugar as much as you can, NO aspartame or other sugar chemical substitutes. Avoid processed food as much as you can also, much of it's loaded with chemicals you might be sensitive to. Good luck....

en.wikipedia.org...

www.empowher.com...

The University of Maryland Medical Center stated that “omega-3 fatty acids are highly concentrated in the brain and appear to be important for cognitive (brain memory and performance) and behavioral function.” Not having enough omega-3 fatty acids can cause some health problems. For example, symptoms of omega-3 fatty acid deficiency include poor circulation, poor memory, fatigue, dry skin, mood swings and heart problems.


longevity.about.com...

All fats are not created equal. To function well, your brain needs a good supply of essential fatty acids. Since the body cannot produce these fatty acids, you need to get them from food. Researchers think that these fats not only help supply oxygen to the brain, but work to protect the membranes of brain cells, prevent damage that causes dementia, Alzheimer's and other illnesses.


I am already on a omega 3 fatty acids diet, have been for about 3 years now. I'm sorry, I should have posted in my OP what I do take. I am only fat free milk, which I take in my coffee and tea only. I am on strictly decaf coffee, and rooibos tea. I get a shot once a week with all the vit B that I need. I take a magnesium and calcium supplement every day and have been since I was about 12, as per mom's instructions
when that time of the month first started for me *blush*. I don't take sugar at all, I can not stand sweet stuff, I don't take sweeteners either, I simply find it too sweet. So yes, my coffee and my tea is completely bitter, just the way I like it
As for processed foods, I try as much as I can, it's not always easy, as all of you would know, but I try to avoid it, much to hubby's disgust, lol. He is one of these that eat and drink whatever you want you only live once *sigh*. I have been teaching my kids about eating right, through example, rather than preaching, if this thing is hereditary, I want them to know how to live to avoid where I am now. Unfortunately as I was growing up, people didn't know about the bad stuff in processed foods, so I've had to re teach myself. But I'm not going to lie and say that I never eat the stuff. We do have our off nights, when nobody feels like cooking, then we'll have sandwiches with cold meat. We don't eat McDonalds though, EVER, they have a very bad rep here in SA. But you get what I mean with the off nights thing, it's few and far in-between. Also I don't eat eggs, I'm allergic to eggs, I wasn't always allergic to it, I am one of those few people who went for a flu shot, and ended up allergic to eggs because of it, it makes me very very sick, so that cuts out most cakes and tarts etc as well, not that I mind, the stuff's too sweet anyway
The only time it bugs me, is when we decide to have a big brunch thing on a weekend and I have to be happy with some toast while all the divine breakfast smells are hanging in the air. We started drinking filter only water about ... not sure about two, maybe three years ago. I even cook with it now, in case it was heavy metals in my bloodstream causing all these headaches, it has made no difference. Umm what else did I leave out? ... Oh yes, I'm really not very big on red meat, I would cut it out altogether if I could and live on fish or chicken. But this is SA, the men like their red meat, and cooking different dinners a day, is just too taxing, especially with a headache that's threatening to completely render you useless. So I just skip the meat part of the meal on those nights that we have it, in stead. Lastly, I don't think I'm leaving anything out, I hope, I don't drink. I mean I do drink, if you can count two drinks a year as drinking. So I'm not religiously a non drinker, I don't have a problem with it. I just don't like not being in control.

Thank you so much for your advise, and the links. It strengthens my resolve that eating right, and teaching my kids while they are still young enough, to eat right, is the best way.


Originally posted by hasjie
i had headach for a year long every day.
my problem was my wisdom teeth where pushing my other teeth around and my dentist told me it could cause blindness.
not sure if it helps but just wanted to share it


Thank you, hasjie, but my wisdom teeth were removed many years ago. If only that were the problem, then I would pull them out myself. Yes, the pain, makes you want to do insane things like that. Anything to make it stop.


Originally posted by bowlbyville
Could you possibly have sleep apnea?

My neighbor is a pharmacist (chemist) and was getting frequent migraines (three to five a week). The doctors told him all sorts of things and he was on all sorts of different pain medications but nothing worked. It turned out that he had sleep apnea (he wasn’t getting enough oxygen to his brain during sleep).

He now sleeps with a machine that helps him breathe and he takes it wherever he goes.

That’s my best guess – good luck to you.



Thanks for your reply bowlbyville, I first had to go and look up sleep apnea, before I could reply to you
I honestly have no idea whether I'm suffering from this or not. But the headache clinic, apparently tests for this as well, so once again, it brings me back to the headache clinic. I so hope that we could work on an account with them. Thank you for the tip, I will ask the doc about this as well.
Much appreciated.


Originally posted by twitchy
Just out of curiousity, do you drink diet sodas or use artificial sweetners? I was looking into aspartame for a thread here on ATS a while back and came across some really alarming studies that showed Aspartame can literally cause microscopic holes in mammalian brain tissue. My mother drank diet soda for a long time and was having severe chronic headaches, she quit the diet sodas and her headaches went away within about a week.
www.abovetopsecret.com...
www.abovetopsecret.com...
www.abovetopsecret.com...
www.abovetopsecret.com...


Hi Twitchy. No, very definitely don't drink sodas. I think the last time I drank a soda, I was 22 I went on a sugar high and decided I don't like it anymore. My dislike of sweet things was gradual, I was a kid that liked sweets just like the next, in high school it started, and I would from time to time go through a week and avoid sweet stuff, then I'd be fine with it again. Then a couple of years ago, this dislike for sweet stuff started getting more frequent. I tried sweetener once as I was hoping it wouldn't be as sweet as sugar, it was in my coffee that I tried it, but it changed the taste of my coffee completely, I found it disgusting and still too sweet. Now I can not stand sweet stuff, and soda, in regards to sweet level, is just way way over what I can handle. Thank you so much for taking the time to reply, I appreciate your input very much so.


Originally posted by DevolutionEvolvd
Are you supplementing with Vitamin D, Calcium or Magnesium?

I'd venture a guess that you're not on Magnesium.

Seeing how you're hypertensive AND you have chronic headaches...you could have a magnesium deficiencey. Or you could be taking other supplements (like Vitamin D and calcium) or medications that could be inhibiting intracellular magnesium uptake.

How healthy are you? You wouldn't happen to be diabetic, would you?


Other than in a normal diet, no not vit D, but as I said above, have been on Magnesium and Calcium from about 12 yo already
Health wise ... up until about a year ago, when my BP spiked, I was healthy, hardly ever got sick. But the last year since the BP, has been rough. Nothing specific though, I get tummy bugs easily, if it's in the air, I'll catch it. I even went on this whole health binge a couple of months ago, I did a detox you name it, btw, I don't care how they say you can make green tea nice, or it depends on the brand, or whatever, the stuff is horrible
but I kept at it, for 3 months. The alternative health person that I went to go see, put me on some strange stuff that I had never heard of, including some shells stuff. I don't have the names for all the stuff here in front of me, and I finished it. I will tell you this, after the whole detox expedition, I felt like a pill popper with all the vitamins and minerals she had me on, and so many per day at a time! At least the colloidal silver wasn't in pill form! I'm HIV negative, in case you're wondering


I don't know what's going on with my body, it's like it recons it's way older than what it really is, or it's under attack from some bug that nobody can figure out. I have had so much blood drawn for tests it's just not funny and every time the decide to draw blood, it's an issue, I have very deep lying vains, so to find one that actually gives enough blood for their viles, is a shlep. They're always complaining they can't find my veins and when they're done, I look like a black and blue pin cushion. As for diabetes, no, luckily not. I have my blood sugar tested every six months, not just the pin prick on the finger test. See I have diabetes in my family on both sides, so I am always watching out for it. So far, my sugar is the one thing that's always at a constant perfect. They've tested a whole bunch of things, including thyroid, and a whole bunch of long named stuff that I would never be able to remember off the top of my head. Nothing ever comes out significantly out of the ordinary. I have a little bit of a cholesterol problem, which is new too, but nothing too heavy and so far sticking to my cut out bad fat, keep the good fat diet, it's been sufficient to keep it under control. That one also gets tested every six months, just to keep an eye on it.

I am on medication for depression though, for the last 5 years, but the depression could very well be because of the headaches, as I wasn't a generally depressed person before they started. The depression came after, it's like I said, the thought of living with this pain, for the rest of my life ... it's just not something I can foresee myself being able to cope with indefinitely. I went off the medication at the beginning of this year, and stayed off it, for about 8 months. I wanted to go off, in case the medication was making the headaches worse. But I couldn't cope, I tried, but every day it just got worse. So we talked about it, with doc, and decided I should go back on, as it was making no difference in the headaches and that feeling of total hopelessness, was just too hard to fight any longer. In this regard the psychological aspect of all of this, played heavily on my mind when I lost the vision in my eye. But doc recons they eye, is not psychological.

After the first reply on migrains and cluster headaches, I did some more research on it. The first time I tried to do a search on headaches, the only answers I came up with, was tension headaches. Which we have now ruled out. Last night's search was on specifically cluster headaches and migraines. Sincerely it seems like a combination of the two. If I look at the images here:

adam.about.com...

And read the information on it here:

adam.about.com...

This honestly seems to be the case. The only problem is, that for the cluster headaches, I'm about 30 years too young. According to the article, it only happens to women over 60. But I swear, in the images, that's exactly where the pain is. And on the other page, their description and symptoms fit perfectly, halo and all. Another problem with this is the fact that mine has been continuous every day all day for the last 8 years and it's not supposed to be that way I am going to reply to everybody in one post, this is my first time posting quotes, so I'm just hoping it will work. I want to thank each and every one of you for taking the time to try and help and reply to me. I honestly thought I was going to get no replies, so it means so much to me that you have all replied, you have no idea how much. I continue replying to all of you at the bottom.


Originally posted by harrytuttle
If you haven't tried it, and if you live in the right state, have your doctor prescribe you "medicinal marijuana". I'm 100% serious. Try it. Close your eyes, and listen to some really cool music. Beyond the pain relief is the overall relaxing effects. Chronic pain can stress you out, and there is some evidence that stress and pain provide a negative feedback loop.

Marijuana kind of attacks both symptoms at the same time.

If it works, it's a lot better to be stoned (and a little hazed) WITHOUT pain, than it would be to be sober and it chronic pain.

If you don't live a state where this is legal, you might consider moving to a state that does, if it works for you.
edit on 3-12-2010 by harrytuttle because: (no reason given)

edit on 3-12-2010 by harrytuttle because: (no reason given)


I've heard of this, unfortunately I don't live in any state that does or doesn't have it legalized, I live in SA, and there's only one set of laws for all the provinces. I don't know what they are though, but I will def. find out. thanks



Originally posted by v1rtu0s0
A friend of mine had a brain anyerism which caused temporary blindness in his left eye. He has a permenant ringing of the ear also.

Have you gotten any MRI's? Got those done and keep trying different doctors until they find out what is wrong instead of failing. Because not finding the cause is a big failure on their part.


Yes, I have had MRI's done, and they came out fine, neuro said I had a beautiful brain, whatever that means, I think only a neuro could find a brain beautiful
But I think he was just staying that there's nothing wrong with it. I've actually still got a disk they gave me with the images. Some of the things that we were all worried about at the time, was mini stroke, or tumor or MS. All three ideas scared the hell out of me, but nope, all came out clear.

I agree with you, on the failure of the doctors parts. These are supposed to be professional people, specialists and professors, yet first they can't figure out what's causing these headaches, and now they don't know why my left eye went blind? Useless. The problem is, we're not on any medical aid, and I've already been to the provincial hospital in my area. So from there on out we had to pay cash. When it started to have an effect on our survival on a month to month basis, I called a halt with all the testing. We're talking about going to the headache clinic, they specialize in headaches. We're going to have to plan it very carefully though, financially, when we're talking about the headache clinic, we're not talking cheap. But these people have all the equipment necessary and they keep going until they find the problem, they have an 80% success rate. We're hoping we can do it on an account basis and pay it off, we still have to find out though. Most medical places don't do accounts at all anymore, because the new laws regarding medications and medical care has restricted them to such an extent, most of them, especially the pharmacy's have had to close their doors, so we don't know if we're going to be able to do it on an account. If not, then it's not an option. So hold thumbs for us.



Originally posted by Sinter Klaas
Don't take this the wrong way, but have you ever considered your problem might not be physical but psychological ?

Seriously it does happen and is just as real.

Also try and find medical universities and go there. The change that they are willing to go deep is a lot bigger as they are actually there to learn.


Yes, I have actually considered that and asked doc about it. The doctors don't think so though, as the eye is very definitely blind.

And yes, I have a friend who is looking into that for me as well. She says she thinks there is a university in Johannesburg that might help. Thanks



Originally posted by piercebitchone
reply to post by Fenix777
 


I don't want to scare you but, that sounds like an aneurysm. Have you had a CAT scan or an MRI ? This is not something you should delay.


As I mentioned above, yes, and they found nothing wrong. Which I might add, was a relief that you wouldn't believe. I was scared to death after they started talking stroke/MS/tumor.


Originally posted by isitjustme
I am sorry to hear about your health problems. You are correct about nerve pain...there is nothing as severe. I had two back surgeries before I was forty years old. Lost my wife and house and was off work over two years. The nerve pain I experienced was sciatic. Started in my low back and ran down my leg to my foot. Felt like a hot knife slicing all the way down my lower body. I was taking eight 80mg Oxycontin a day until they went through my abdomen and fused my lower vertebrae together,

The Oxycontin helped the pain quite a bit but there is a danger of addiction and the issue of building a tolerance to the drug. If the pain is unbearable you may find relief from opioids like OC or percocet but be wary. Hope you find relief. Pain is exhausting.


Yes, the pain is extremely exhausting and debilitating. And you still have to deal with every day life on top of it. Sometimes I have suicidal thoughts, because the pain becomes so unbearable. But I'd never do that, I have two kids, they keep me going. Although, I become rather ... agitated (for want of a better word). During those times I tend to close myself in my bedroom. I'll walk up and and down in my room then just sit and hold my head, I'd try to lie down, only to get up and go through the whole thing again. Sometimes I get lucky, and I'll pass out.

I will look into those medications, but I am very weary of taking something that's highly addictive.

The other day I have found a website that is all about healing with music. I found one audio that's extremely relaxing, I listen to that, and it helps me calm down. I find the more agitated I get, the worse the pain gets. What do you guys make of this music/sound therapy thing? I'm not sure whether it could actually work or not.


Originally posted by snowspirit
Try an omega 3 rich diet. It's anti inflammatory and couldn't hurt. Most of us don't get near enough omega 3 oils, found in seafood, walnuts, flax seeds, olive oils. Avoid sugar as much as you can, NO aspartame or other sugar chemical substitutes. Avoid processed food as much as you can also, much of it's loaded with chemicals you might be sensitive to. Good luck....

en.wikipedia.org...

www.empowher.com...

The University of Maryland Medical Center stated that “omega-3 fatty acids are highly concentrated in the brain and appear to be important for cognitive (brain memory and performance) and behavioral function.” Not having enough omega-3 fatty acids can cause some health problems. For example, symptoms of omega-3 fatty acid deficiency include poor circulation, poor memory, fatigue, dry skin, mood swings and heart problems.


longevity.about.com...

All fats are not created equal. To function well, your brain needs a good supply of essential fatty acids. Since the body cannot produce these fatty acids, you need to get them from food. Researchers think that these fats not only help supply oxygen to the brain, but work to protect the membranes of brain cells, prevent damage that causes dementia, Alzheimer's and other illnesses.


I am already on a omega 3 fatty acids diet, have been for about 3 years now. I'm sorry, I should have posted in my OP what I do take. I am only fat free milk, which I take in my coffee and tea only. I am on strictly decaf coffee, and rooibos tea. I get a shot once a week with all the vit B that I need. I take a magnesium and calcium supplement every day and have been since I was about 12, as per mom's instructions
when that time of the month first started for me *blush*. I don't take sugar at all, I can not stand sweet stuff, I don't take sweeteners either, I simply find it too sweet. So yes, my coffee and my tea is completely bitter, just the way I like it
As for processed foods, I try as much as I can, it's not always easy, as all of you would know, but I try to avoid it, much to hubby's disgust, lol. He is one of these that eat and drink whatever you want you only live once *sigh*. I have been teaching my kids about eating right, through example, rather than preaching, if this thing is hereditary, I want them to know how to live to avoid where I am now. Unfortunately as I was growing up, people didn't know about the bad stuff in processed foods, so I've had to re teach myself. But I'm not going to lie and say that I never eat the stuff. We do have our off nights, when nobody feels like cooking, then we'll have sandwiches with cold meat. We don't eat McDonalds though, EVER, they have a very bad rep here in SA. But you get what I mean with the off nights thing, it's few and far in-between. Also I don't eat eggs, I'm allergic to eggs, I wasn't always allergic to it, I am one of those few people who went for a flu shot, and ended up allergic to eggs because of it, it makes me very very sick, so that cuts out most cakes and tarts etc as well, not that I mind, the stuff's too sweet anyway
The only time it bugs me, is when we decide to have a big brunch thing on a weekend and I have to be happy with some toast while all the divine breakfast smells are hanging in the air. We started drinking filter only water about ... not sure about two, maybe three years ago. I even cook with it now, in case it was heavy metals in my bloodstream causing all these headaches, it has made no difference. Umm what else did I leave out? ... Oh yes, I'm really not very big on red meat, I would cut it out altogether if I could and live on fish or chicken. But this is SA, the men like their red meat, and cooking different dinners a day, is just too taxing, especially with a headache that's threatening to completely render you useless. So I just skip the meat part of the meal on those nights that we have it, in stead. Lastly, I don't think I'm leaving anything out, I hope, I don't drink. I mean I do drink, if you can count two drinks a year as drinking. So I'm not religiously a non drinker, I don't have a problem with it. I just don't like not being in control.

Thank you so much for your advise, and the links. It strengthens my resolve that eating right, and teaching my kids while they are still young enough, to eat right, is the best way.


Originally posted by hasjie
i had headach for a year long every day.
my problem was my wisdom teeth where pushing my other teeth around and my dentist told me it could cause blindness.
not sure if it helps but just wanted to share it


Thank you, hasjie, but my wisdom teeth were removed many years ago. If only that were the problem, then I would pull them out myself. Yes, the pain, makes you want to do insane things like that. Anything to make it stop.


Originally posted by bowlbyville
Could you possibly have sleep apnea?

My neighbor is a pharmacist (chemist) and was getting frequent migraines (three to five a week). The doctors told him all sorts of things and he was on all sorts of different pain medications but nothing worked. It turned out that he had sleep apnea (he wasn’t getting enough oxygen to his brain during sleep).

He now sleeps with a machine that helps him breathe and he takes it wherever he goes.

That’s my best guess – good luck to you.



Thanks for your reply bowlbyville, I first had to go and look up sleep apnea, before I could reply to you
I honestly have no idea whether I'm suffering from this or not. But the headache clinic, apparently tests for this as well, so once again, it brings me back to the headache clinic. I so hope that we could work on an account with them. Thank you for the tip, I will ask the doc about this as well.
Much appreciated.


Originally posted by twitchy
Just out of curiousity, do you drink diet sodas or use artificial sweetners? I was looking into aspartame for a thread here on ATS a while back and came across some really alarming studies that showed Aspartame can literally cause microscopic holes in mammalian brain tissue. My mother drank diet soda for a long time and was having severe chronic headaches, she quit the diet sodas and her headaches went away within about a week.
www.abovetopsecret.com...
www.abovetopsecret.com...
www.abovetopsecret.com...
www.abovetopsecret.com...


Hi Twitchy. No, very definitely don't drink sodas. I think the last time I drank a soda, I was 22 I went on a sugar high and decided I don't like it anymore. My dislike of sweet things was gradual, I was a kid that liked sweets just like the next, in high school it started, and I would from time to time go through a week and avoid sweet stuff, then I'd be fine with it again. Then a couple of years ago, this dislike for sweet stuff started getting more frequent. I tried sweetener once as I was hoping it wouldn't be as sweet as sugar, it was in my coffee that I tried it, but it changed the taste of my coffee completely, I found it disgusting and still too sweet. Now I can not stand sweet stuff, and soda, in regards to sweet level, is just way way over what I can handle. Thank you so much for taking the time to reply, I appreciate your input very much so.


Originally posted by DevolutionEvolvd
Are you supplementing with Vitamin D, Calcium or Magnesium?

I'd venture a guess that you're not on Magnesium.

Seeing how you're hypertensive AND you have chronic headaches...you could have a magnesium deficiencey. Or you could be taking other supplements (like Vitamin D and calcium) or medications that could be inhibiting intracellular magnesium uptake.

How healthy are you? You wouldn't happen to be diabetic, would you?


Other than in a normal diet, no not vit D, but as I said above, have been on Magnesium and Calcium from about 12 yo already
Health wise ... up until about a year ago, when my BP spiked, I was healthy, hardly ever got sick. But the last year since the BP, has been rough. Nothing specific though, I get tummy bugs easily, if it's in the air, I'll catch it. I even went on this whole health binge a couple of months ago, I did a detox you name it, btw, I don't care how they say you can make green tea nice, or it depends on the brand, or whatever, the stuff is horrible
but I kept at it, for 3 months. The alternative health person that I went to go see, put me on some strange stuff that I had never heard of, including some shells stuff. I don't have the names for all the stuff here in front of me, and I finished it. I will tell you this, after the whole detox expedition, I felt like a pill popper with all the vitamins and minerals she had me on, and so many per day at a time! At least the colloidal silver wasn't in pill form! I'm HIV negative, in case you're wondering


I don't know what's going on with my body, it's like it recons it's way older than what it really is, or it's under attack from some bug that nobody can figure out. I have had so much blood drawn for tests it's just not funny and every time the decide to draw blood, it's an issue, I have very deep lying vains, so to find one that actually gives enough blood for their viles, is a shlep. They're always complaining they can't find my veins and when they're done, I look like a black and blue pin cushion. As for diabetes, no, luckily not. I have my blood sugar tested every six months, not just the pin prick on the finger test. See I have diabetes in my family on both sides, so I am always watching out for it. So far, my sugar is the one thing that's always at a constant perfect. They've tested a whole bunch of things, including thyroid, and a whole bunch of long named stuff that I would never be able to remember off the top of my head. Nothing ever comes out significantly out of the ordinary. I have a little bit of a cholesterol problem, which is new too, but nothing too heavy and so far sticking to my cut out bad fat, keep the good fat diet, it's been sufficient to keep it under control. That one also gets tested every six months, just to keep an eye on it.

I am on medication for depression though, for the last 5 years, but the depression could very well be because of the headaches, as I wasn't a generally depressed person before they started. The depression came after, it's like I said, the thought of living with this pain, for the rest of my life ... it's just not something I can foresee myself being able to cope with indefinitely. I went off the medication at the beginning of this year, and stayed off it, for about 8 months. I wanted to go off, in case the medication was making the headaches worse. But I couldn't cope, I tried, but every day it just got worse. So we talked about it, with doc, and decided I should go back on, as it was making no difference in the headaches and that feeling of total hopelessness, was just too hard to fight any longer. In this regard the psychological aspect of all of this, played heavily on my mind when I lost the vision in my eye. But doc recons they eye, is not psychological.

After the first reply on migrains and cluster headaches, I did some more research on it. The first time I tried to do a search on headaches, the only answers I came up with, was tension headaches. Which we have now ruled out. Last night's search was on specifically cluster headaches and migraines. Sincerely it seems like a combination of the two. If I look at the images here:

adam.about.com...

And read the information on it here:

adam.about.com...

This honestly seems to be the case. The only problem is, that for the cluster headaches, I'm about 30 years too young. According to the article, it only happens to women over 60. But I swear, in the images, that's exactly where the pain is. And on the other page, their description and symptoms fit perfectly, halo and all. Another problem with this is the fact that mine has been continuous every day all day for the last 8 years According to the article, it's not supposed to be that way.

So once again, I find my only hope to find a solution, is the headache clinic. Please everybody, just keep your fingers crossed that we can arrange to pay off an account with them, as I honestly don't know what else to do.



posted on Dec, 4 2010 @ 10:49 PM
link   
reply to post by Fenix777
 


I wouldn't worry about the age thing with regard to cluster headaches. I have had this since I was 20.
Also don't let the continuosity mislead you, it is not so uncommon in cluster headaches.
I am on a daily dose of Verapamil hydrochloride, although like you my blood pressure is normal.
I also take Sumatriptan, on an almost daily basis. For many years I was using Ergot, at times with great success, however it is now banned here. There is also a problem with Ergot as a tolerance can easily build up and it no longer is effective, it becomes a balance between pain, tolerance and the health issue of side-effects.
I have had the occasional battle with GP's and even chemists on this issue. Over the years I have learned to take no nonsense from either. As it is now, they just give me what I need. I spent years of being prescribed useless painkillers and eventually could take no more pain. Cluster headaches will not be helped by cannabis, nor indeed any type of muscle relaxant, in particular alchohol.They are the opposite of what you need.
I won't go into the aspect of pain here, but I will say this...cluster headaches are not a 'lie down in a darkened room' sort of thing.
Lastly, even if, strictly speaking, you are not classified as a cluster headache sufferer, it does not mean that Ergot or Sumatriptan won't help.

Midicon.



posted on Dec, 5 2010 @ 12:07 AM
link   
How is your kindney function? Have you had your kidneys imaged? Sudden onset of hypertension is sometimes related to optic nerve swelling and often involves the renal system.

Sometimes there can be a systemic inflammation of the blood vessels, causing headaches, blindness, and kidney problems. It is an autoimmune disorder which has no cure, but can be managed with enzyme therapy. I don't remember the name of the syndrome and I can't seem to find it on Google. I saw it once on Diagnosis X or Mystery Diagnosis.



posted on Dec, 5 2010 @ 02:16 PM
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I'm gunna stick with...see your doctor and have him run your bloodwork. Just to see. If you've been supplementing magnesium and calcium for some time (which I personally believe can cause problems eventually) you may have mucked up the homeostasis.



posted on Dec, 9 2010 @ 03:20 PM
link   

Originally posted by OuttaHere
How is your kindney function? Have you had your kidneys imaged? Sudden onset of hypertension is sometimes related to optic nerve swelling and often involves the renal system.

Sometimes there can be a systemic inflammation of the blood vessels, causing headaches, blindness, and kidney problems. It is an autoimmune disorder which has no cure, but can be managed with enzyme therapy. I don't remember the name of the syndrome and I can't seem to find it on Google. I saw it once on Diagnosis X or Mystery Diagnosis.


Kidneys are all good, had that checked out in March as well. Sorry I took so long to reply it's been a hectic week here.


Originally posted by DevolutionEvolvd
I'm gunna stick with...see your doctor and have him run your bloodwork. Just to see. If you've been supplementing magnesium and calcium for some time (which I personally believe can cause problems eventually) you may have mucked up the homeostasis.


Why would calcium and magnesium supplements cause a problem? And what other blood work exactly? Because I've had tons done already, maybe you've got something in mind that the docs haven't checked?

Ok, well, we found out today, that the headache clinic is not going to be an option, they want R3500.00 up front and that's just the consultation fee, that's doesn't include treatment, no accounts. Also, they are likely to want to tie the arteries going into the scalp? Anybody ever hear of this? I have my doubts whether that's such a good idea. Cutting off the blood supply to the scalp, can't be good, right? Aren't they then just preventing me from feeling the headache? Which would be a blessing, but not if it's going to cause problems in the long run.
edit on 9-12-2010 by Fenix777 because: ETA



posted on Jan, 12 2011 @ 05:01 PM
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Well a natural way to get rid of headaches is to chew on a willow tree leaf, but this doesn't sound like you usual headaches so i don't know if it will work, but good luck!



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