reply to post by getreadyalready
Let me add that we spend some of our own money, but by and large all of the treatments were free. Even the $88,000 per injection steroid was covered
by a combination of insurance and medicaid. He was born prematurely, so he was eligible for Medicaid in Florida despite our income. The Medicaid had
the added benefit of assigning him a "nurse advocate" that followed up on his treatments and helped us get timely responses from some of the slower
moving bureacracies.
He has had close to $2M in Medical Bills from his premature birth to his 2nd birthday, but it all paid off.
At times his mother and I thought we might be doing the wrong things, and sometimes we even wished that he hadn't survived his birth. It was so hard
to watch him struggle, and we felt responsible for putting him through more and more torment. It was terrible to watch him suffer, and it was
terrible to wish that it would end.
He turns 3 this November, and I can't imagine my life if he had not survived. It all worked out in the end, and he is a little fighter!! He earned
the nickname "Sparky" because he is so little and strong and fearless. He already learned to swim, and he chases the older kids around. He
literally "dives" off the side of the pool. He doesn't jump, he goes in head first!
Stay positive, aggressive, proactive, tenacious, and do your own research! Use any and all help that is available. Listen to your doctors, but make
your own medical decisions, and don't deal with any doctor that won't follow your informed advice and decision.
[edit on 8-8-2010 by getreadyalready]
