posted on Aug, 8 2010 @ 11:49 AM
reply to post by zarp3333
When my baby was 5 months old, he developed infantile spasms. It is not auto-immune, but I can tell you that being involved in his treatment,
proactive, and doing my own research is what got him better! Not a lot of babies that develop that get better, and in fact the doctors did not expect
him to learn to walk and talk.
We found a Neurologist at Shand's in Gainesville that was the top in the country. We demanded treatment, but also occupational and physical therapy
to help him along in his development. We challenged and stimulated, going so far as to get him full body massages to stimulate each nerve and muscle.
He did "baby aerobics" where my wife and I would take him through every normal movement that he should be doing, etc etc.
In short, we attacked the "disease" from every possible angle, and he turned around almost instantly, and now at 2 1/2 he is completely recovered,
walking, talking, and is actually a little ahead of schedule in language development. He has zero lasting effects!!
The secret was a top notch doctor. Do your research, demand the best. The rest of the secret was refusing to believe or allow him to be disabled.
We treated him normally, we challenged him mentally and physically, and sought out and did every possible treatment that was available simultaneously!
We drove 1-2 times to Gainesville every week. I changed jobs to allow me the time to do it. We took him to therapy sessions daily. We had a nurse
visit him in-home once per week. We had child development specialists evaluate hiim weekly and pick a new target area to stimulate.